What do you drink?

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Disneynut66
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   Posted 1/28/2011 7:48 AM (GMT -6)   
My surgeon told me that she didn't want me to drink a lot of water. She wanted me to drink things with sodium. She suggested G2. Well, I am getting tired of it. Fruit juice is out, right? I think milk might be giving me problems, so I just wonder what others drink to keep hydrated.

Also, after my reversal will it still be this way? I miss juice, milk and water. Soda is out, too, right. Luckily I am not a big pop drinker.

suebear
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   Posted 1/28/2011 8:28 AM (GMT -6)   
I like Vitalyte. It's only sold at REI stores or online at www.vitalyte.com The citrus flavor is very mild and comes closest to plain water. You might also consider eating more salty snacks, like pretzels. Salt helps us to retain fluids.

Sue

cghopper
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   Posted 1/28/2011 8:38 AM (GMT -6)   
I don't understand why they would tell you not to drink a lot of water.  Everything I have ever read or been told is the best thing you can do is drink water.  What's the reason?

Scrap Girl
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   Posted 1/28/2011 8:48 AM (GMT -6)   
I agree, G2 gets old fast. I couldn't even finish the six-pack my husband bought me. I never had any problems with dehydration and I didn't drink nearly as much water as I should. It seems like some people are more prone to it than others. I drank a lot of strawberry kiwi Propel and whenever I went out I would drink lemonade - which also gets old. At five weeks post-op I started back with Diet Coke - I'm an addict. I had no problems with it but the carbonation does cause the bag to fill up a bit with air.

suebear
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   Posted 1/28/2011 9:02 AM (GMT -6)   
ScrapGirl makes a very good point. Some of us don't have hydration issues. I drink 20oz of coffee in the morning and then don't drink anything until about 4pm. I do have a diet that is high in water content which I think helps. I drink more when I exercise than the average person but that's about it. You will learn your hydration needs as your progress with your next surgery and recovery.

Ostomates tend to need more fluids but water isn't always the best choice for us as we need to keep our electrolytes in balance.

Sue

summerstorm
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   Posted 1/28/2011 9:46 AM (GMT -6)   
I drink just water I don't know why they would tel you not to drink water that's craziness. Our bodies are 70% water not gatorade!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Disneynut66
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Date Joined Apr 2009
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   Posted 1/28/2011 10:45 AM (GMT -6)   
She said water was not my friend.  In fact, she was mad at the nurse because they left me a big thing of water.  She brought me the G2.  I think I was dehydrated while in the hospital--they gave me potassium (the nurse messed up and did something wrong and it went straight in my veins--boy did I yell loud).  I am sure it's because she didn't want me to only drink water which doesn't have electrolytes.  They did say to eat lots of salty snacks, so I will try that and see if water is okay.  I do miss juice, but I am already so watery in my output I just don't want to chance it.
 
Ron...what flavor G2 would you mix with ginger ale?
 
I will try Propel.  I went out to lunch at a place that has my favorite lemonade.  I didn't even think about it and had a huge glass.  OMG, did it burn when it came out!!!
 
I have been avoiding coffee so maybe I'll try it again.  I miss my morning coffee.

Lasardo
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Date Joined Jan 2011
Total Posts : 373
   Posted 1/28/2011 5:00 PM (GMT -6)   
I agree that the dctor not wanting her to drink water is odd, maybe it is only temporary but I was told to stay hydrated..I like those nutritional drinks, maybe you could try those..have had ostomy for 8 yrs

flchurchlady
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   Posted 1/29/2011 12:09 AM (GMT -6)   
Smart Water has electrolytes, and you can add flavoring to it to make it tasty.

Disneynut66
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Date Joined Apr 2009
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   Posted 1/29/2011 8:30 AM (GMT -6)   
Oh, I like smart water. Didn't think of that. Thanks.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 1/29/2011 8:30 AM (GMT -6)   
Oh, I like smart water. Didn't think of that. Thanks.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

ducridr
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Date Joined Apr 2008
Total Posts : 139
   Posted 1/29/2011 9:12 AM (GMT -6)   
I drink G2 a lot of the time but I make it from the powder packets.  I agree that the bottled stuff gets old fast and to me it tastes funny.  I usually make my G2 weak so that it's more of a flavored water taste than the strong G2 flavor.  I don't like the fruit punch flavor so I order cases of grape g2 powder.  I also drink tea, water, alcoholic beverages (with no bubbles), orange juice (on occasion), McD's orange drink, hot chocolate (I'm not a coffee drinker and I limit myself to a max of one/day), pedialyte (on occasion), beef boullion (when I haven't been drinking enough and am getting dehydrated).  As time goes on you will be able to figure out how things affect you and make your decisions accordingly. 
 
IMO, you will be able to drink juices - but you have to look at the ingredients.  I used to be a huge juicy juice fan until I figured out that it's primarily grape and apple juices (oops!).  You may have to pay more for your juices to get pure ones or ones that don't contain those filler juices but you will be able to find yourself a good mix of drinks that work for you and give you the variety you're looking for while getting the extras that you need.  I still have issues w/ fake sugars and HFCS so I try to avoid them in my beverage choices.
 
My selection of beverages got easier and more extensive as my body adjusted to my jpouch so I figured it was like the food rule, if you try it and it doesn't go well, wait a month and try it again, and wait a month and try it again... because as a general rule, you will be able to handle it sooner or later (or at least you'll learn the consequences and can prepare for them) as time goes on and your body adjusts and your meal options change.

Ducridr - 36 - female

Diagnosed w/ severe pancolitis 11/20/2007
J-Pouch surgery #1 of 3 on 8/21/2009!!!
Surgery #2 - 1/4/2010
Surgery #3 - 3/23/2010

NewShinyCD
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Date Joined Oct 2009
Total Posts : 474
   Posted 1/29/2011 11:28 AM (GMT -6)   
I drink whatever I want now. Sodas do go right though you though if you drink them the wrong way. If you eat before and then sip on the coke throughout the meal it helps a lot. Don't just chug it.

Also unfiltered water seems to be better for me to drink than filtered. Filtered water actually seems to run through me faster.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Temp Ileostomy and colon removal surgery - 6/2/2010
Takedown - Sometime next year; busy with job/school.

bearbear3
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Date Joined Nov 2010
Total Posts : 61
   Posted 1/29/2011 11:53 AM (GMT -6)   
I personally like Powerade. I even crave it to a point now. I was never a huge water fan but I definitely drink more now than I ever did. I never really got into Gatorade but the Powerade works great. I don't know why you would be told to stay away from water but hydration is important, especially if you're feeling dehydrated. Salt does help and I CRAVE it now but everyone is a little different. Find out what works for you and do it. If that's water than that's what you should do. Your body will tell you what you need and if you just follow it's cravings then you should be just fine.

I took back my morning coffee too. I don't have too many issues with it. I hope you enjoy having it back!

esoR
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Date Joined Jan 2007
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   Posted 1/29/2011 4:24 PM (GMT -6)   
I like Ultima in Smart water. The ultima powder mix has stevia for sweetner, so no sugar so does not increase water loss in effluent like sugar and fake sugars can. Plus the ultima and the Smart water have electrolytes.

Rosemary

Equestrian Mom
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Date Joined Mar 2008
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   Posted 1/29/2011 6:24 PM (GMT -6)   
Your doc's concern is probably that you have high output and have been dehydrated. That's the reason for the potassium, too, when we dehydrated that is low.

Like it's been said, salty snacks with whatever you are drinking will help. Did they give you instructions for Imodium and/or Metamucil? One slows and the other bulks which will help with your high output. Just remember that when you have an ostomy you don't have to go by the dose on the bottle.

If you really want to drink a juice to mix things up you can cut it with water...but make sure you eat salty snacks when you drink it. I wouldn't go overboard on them either. Have you tried vegetable juices? I like those better :-)

Once your body adjusts I am sure your doc won't be as strict with the 'free water'. I remember being the same way early on but now I am more like suebear and don't have to drink large amounts of fluids because my diet has foods that naturally contain them.

My guess would be that when you have your reversal you'll have to start the process over again...but remember it's usually temporary and once your body adjust to the change things straighten out.
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

CorgiMama
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Date Joined May 2010
Total Posts : 26
   Posted 1/30/2011 10:50 AM (GMT -6)   
I have found that for the most part I drink what I want.  I have one cup of tea/coffee in the morning. I don't really drink milk or artificially sweetened stuff ( I really bothered me when I was flared-up, so I don't want to chance it now that I'm not).  Against my WOCN's instruction I don't always eat when I have a beverage (they said to always eat some crackers or pretzels to thicken and slowdown the liquid in order  for my body to obsorb more) so of course I have to test the limits and know that if i chug a glass of something with out eating,i will have watery output.  I have only felt dehydrated a few times and will sip gatorade throughout the day.  I think you just have to be attentive to your bodys signals.  If im not urinating as much as i should or feel any lightheadedness then i'll be more cautious about my intake.  ALthough the mild saltiness of gatorade brings back bad memories of bowel prep nightmares! haha :) Thank Heavens I will never need one of those again!
Good Luck!

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 1/30/2011 11:17 AM (GMT -6)   
I drink whatever I want, a lot of Canada Dry, blackberry brandy with blackberry juice, rum, and water. We have well water. I wonder if it makes any difference compared to city water.

Dan

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 1/30/2011 11:29 AM (GMT -6)   
Thanks for all the suggestions.  I think a visit to the store is in order.  My doctor put me on Lomotil.  I know I need to start with the Metamucil.
 
Dan, you bring up a good point...when can I enjoy an alcoholic beverage?  My liver was compromised from the 6MP I was on, but looks like all is back to normal now.  I am not a big drinker, but when you go to a party and everyone is enjoying some kind of fun drink, it can be a little depressing.  Luckily I had a friend who didn't drink so we would always surprise each other with a special kind of root beer.  I am going to a surprise party in a few weeks and thought about having a drink there, but maybe I should test it before going to a public venue.

polishdan
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Date Joined Mar 2010
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   Posted 1/31/2011 10:09 AM (GMT -6)   
disney
Whatever you try, golightely at first. (Yes, that is a play on words) I find I can eat and drink whatever I want, whenever I want.

Dan

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 1/31/2011 10:55 AM (GMT -6)   
Golightly never again. My husband and I were discussing my red bag from some wild cherry icee I had and he reminded me of me getting sick from the moviprep I had before surgery and the color. I had blocked that out. So happy I don't have to do that again.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

Blueheron
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Date Joined Feb 2010
Total Posts : 720
   Posted 1/31/2011 11:19 AM (GMT -6)   
I also drink whatever I want, though I have not tried soda, anything with caffeine, or alcohol yet. I drink a lot of herbal tea. Also, instead of drinking straight juice, I cut it with water... generally about 3/4 water, 1/4 juice. I can't drink Gatorade straight from the bottle either- it is way too sweet- so I water that down too. Often I will use the Gatorade powder mix and add just a little bit to water. My surgeon never said anything about not drinking plain water though. Your output may get a little less watery as time goes on. Just when I was starting to get worried about how long my output had been watery and wondering if it would every go away, boom, it started to thicken up. I think this was around 7 weeks post surgery.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 1/31/2011 3:40 PM (GMT -6)   
Yea if you drink choose something...not heavily in alcohol. I had my first drink with my ileostomy a couple of weeks after I got out of the hospital. It was some wine from Olive Garden, but my stoma hates me and I didn't even get a buzz; it was just like drinking fizzy grape juice :(

Next time I decided to up the ante and bought some Rum and Tequila, which only after a couple of shots was completely floored. about 30 minutes later I was fine.

So I went to a party and decided to try straight up moonshine. This time I thought I was being smart by eating something that would slow my system down so I could absorb more of the alcohol. Well after about 5 shoots of moonshine and, again, 30 minutes later, I was able to walk a straight line.

:( I apparently fail at drinking.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Temp Ileostomy and colon removal surgery - 6/2/2010
Takedown - Sometime next year; busy with job/school.

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 2/1/2011 4:26 PM (GMT -6)   
NASCARon
Do you really think that water stored in plastic bottles for who knows how long, where it came from, and what was done to it is better/healthier than clear well water? My wife drinks it too. but not me. I prefer the god designed filtration/purification system. Our well water is clear, no smell, no sediment, no discoloration. To each his own.

And bottled water is more expensive than gasoline.

Dan

summerstorm
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Date Joined Aug 2006
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   Posted 2/2/2011 9:01 PM (GMT -6)   
i just mainly drink water, from my well. Water shouldn't have a taste, and bottled water has a taste, that's weird to me. Plus, usually it's just city water or water from a river somewhere. I don't have a filter on my water, i just drink it.
Anyway, i personally think just water is fine. All those other things have sugar or artifical sweeteners which aren't good for you. juice is empty calories which packs on pounds. Sodas, which i do drink occasionally, but not often, just make you gain weight.
Anyway as for the liquor i would wait until about 6-8 weeks out, because it can sometimes give you lots of gas, and the gas is worse at the beginning also. I also take some immodium if i am drinking, one because liquor speeds up my output, and also because its hard to empty a bag while drunk, lol. I just got back from a cruise where i drank pina colodas andstrawberry daquiris a lot, i didnt have any trouble, except for some bad gas one night. When that happens i just take some gas-x and lay down on my side for about three minutes, then im fine
Anyway, also try to drink some water while you are having your liquor and don't eat bread, that soaks it up!!! just drink a lot of it :D
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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