4 weeks since surgery

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lynn024
Regular Member


Date Joined Dec 2008
Total Posts : 26
   Posted 1/28/2011 12:43 PM (GMT -6)   
I havent posted on this forum for a while, but i decided to have surgery, and had a total proctolectomy with end ileostomy on Jan 3. Ive had Crohns for 12 years, and have been through the ringer since last June, developing 2 abscesses, one which turned into a fistula in my left labia, and urgent trips to the bathroom for even longer. I also had a herniated disc that required back surgery in November. When it rains, it pours.

I was really scared to have the colo-rectal surgery, but Im glad its over and Im adjusting to the new routine. Im having good luck with Hollister 2-pc pouch so far. I also have some Convatec samples I havent tried. They have a filter. Does this let the air out and help keep the pouch flat?

Im enjoying eating a variety of foods and trying to gain weight. Im 5 foot 3, and usually weigh about 125, and am down to 98. The only thing that disagreed with me so far is spaghetti, either the pasta or the sauce.

I also need to experiment with how my clothes will fit over my pouch. Id like to try the belly band or just snug tank tops under my shirts.

I spent many hours on this forum as I was making my decision about surgery, and posted a few questions. Thanks to everyone for your advice, encouragement, and experience. I hope and pray that Im going to be healthy and well now, and get back to my life with family, friends, work, vacations, and line dancing! :)

lynn024, 44 yrs old

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 1/28/2011 1:07 PM (GMT -6)   
     Hi Lynn!  I had the same operation as you back on June 28th, 2010.  My problem was ulcerative proctitis.
     I'm still having "issues" but hope they will be resolved before spring.  I have no problems with my stoma or with my digestive tract.  My problems are vaginal (since my operation) and osteoporosis (due to prolonged use of prednisone).
     The Hollister bags leaked on me twice, so I switched to the one piece Coloplast and they are amazing!  Not one leakage.  I find I can eat anything as long as I chew everything thoroughly.  At first I had to concentrate on the chewing but now it comes second nature. 
     Lots of luck to you and may you enjoy many long healthy years!

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 1/29/2011 12:56 PM (GMT -6)   
I still use Hollister 2 piece. I also use Eakin seals and the Sure Seals from ALP which goes over the wafer edges. I had leaks in the beginning as my stoma was shrinking but now I never have them.

I used to weigh 185 before my last flare up and now I can't ever get above 138lbs. I could eat McDonalds for weeks on end and probably be at the same weight :/

As for clothes. I usually just let the bag hang on the outside. My shirts that I wear are long enough to cover the bag. Also I found that using the sticky velcro dots you buy at office stores help with tucking the white flap thing at the end of the hollister bags up under the fabric of the bag. This way it shortens the length of the bag just a little bit.
There are also some products out there like Ostomy Secret and Phoenix belt(?) that you tuck the entire bag into so it keeps it snug against your abdomen.

As for food, I can eat anything. Heck, I don't even worry about chewing any more. Today I plan on going to subway, and getting a foot long chicken buffalo sandwich with lots of green peppers, onions, tomatoes, and chipotle sauce. Om nom nom.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Temp Ileostomy and colon removal surgery - 6/2/2010
Takedown - Sometime next year; busy with job/school.

lynn024
Regular Member


Date Joined Dec 2008
Total Posts : 26
   Posted 1/29/2011 3:24 PM (GMT -6)   
Christine, Ive seen some of your posts about your lingering issues. I also hope they will be resolved soon! Its a shame for ones backside to still cause problems when its no longer functional.

Could you tell me where the hollister bag leaked for you? Was it the bottom opening, between the two pieces, under the adhesive attached to the skin?

NewShinyCD, thanks for the tip about using velcro dots to turn up the bag. Im going to try that. I dont have any types of seals. I am having problems with the stoma paste coming off around the stoma within a day or two after I change my pouch, so I may need to try something else.

I forgot to mention that my surgery was laporoscopic. I think this has made my recovery easier. Four years ago I had my right colon removed with an open incision. Recovery was much more difficult, because I was very sore for weeks trying to use my core muscles to do anything.

lynn024
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