I havent posted on this forum for a while, but i decided to have surgery, and had a total proctolectomy with end ileostomy on Jan 3. Ive had Crohns for 12 years, and have been through the ringer since last June, developing 2 abscesses, one which turned into a fistula in my left labia, and urgent trips to the bathroom for even longer. I also had a herniated disc that required back surgery in November. When it rains, it pours.
I was really scared to have the colo-rectal surgery, but Im glad its over and Im adjusting to the new routine. Im having good luck with Hollister 2-pc pouch so far. I also have some Convatec samples I havent tried. They have a filter. Does this let the air out and help keep the pouch flat?
Im enjoying eating a variety of foods and trying to gain weight. Im 5 foot 3, and usually weigh about 125, and am down to 98. The only thing that disagreed with me so far is spaghetti, either the pasta or the sauce.
I also need to experiment with how my clothes will fit over my pouch. Id like to try the belly band or just snug tank tops under my shirts.
I spent many hours on this forum as I was making my decision about surgery, and posted a few questions. Thanks to everyone for your advice, encouragement, and experience. I hope and pray that Im going to be healthy and well now, and get back to my life with family, friends, work, vacations, and line dancing! :)
lynn024, 44 yrs old