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help daisy
New Member


Date Joined Jan 2011
Total Posts : 1
   Posted 1/31/2011 7:11 AM (GMT -6)   
Hi there!  I have had about 4 bouts with pouchitis over the last 18 months or so.  I was told in my annual gyn visit that I am severely anemic ... 7.4 hemoglobin level.  I am trying to get my pouchitis under control ... however, with the issue of us moving from STL area to SC ... my surgeon is in STL and I am working with getting doctors in Charleston on board to monitor my pouch.  This has been tough.  Any guidance would be greatly appreciated.  I did not realize I had pouchitis ... I was told that I was going into menopause ... this explained being tired and dizzy.  However, the vision issue ... I was told was due to my age ... I am 44.
 
Needless to say ... it appears that it has been pouchitis for some time and that I have been bleeding ...
 
I went back to STL last week and they said that I have pouchitis ... ulcerations in my pouch looked pretty bad.  They confirmed that I do not have Chron's Disease (this is really good!) 
 
Any suggestions on the all natural way of healing ... I am afraid to continue to take drugs ... with my history of UC ... I was on alot of drugs since age 18ish.
 
 
UC since around 1984
J Pouch surgery in April, 2005
 
 
 

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 1/31/2011 8:52 AM (GMT -6)   
Sorry I don't have a j-pouch but suebear will be along!

Welcome to the forum...you've found a great place to ask questions!
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 1/31/2011 9:04 AM (GMT -6)   
It sounds as if you might have cuffitis on top of pouchitis as pouchitis doesn't have bleeding as a symptom? It also sounds like you aren't getting high quality care. I think you need to seek out a GI who has pouch experience. You can go to www.j-pouch.org and ask in the General Discussion thread for GI recommendations in your new state. I also recommend that you visit the Pouchitis thread on that board too. I don't know of anyone who has been able to successfully manage PI without maintenance meds but I do know people who have been able to reduce their meds by changing their diet and incorporating other things, like Pepto Bismol.

Sue
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