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Hillhoney1
New Member


Date Joined Jan 2011
Total Posts : 7
   Posted 2/3/2011 11:14 AM (GMT -6)   
Does anyone know what the statistics are for a successful, permanent reversal?  In the experience of those here on this forum, are reversal's usually successful?
 
Thanks,
Karen

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 2/3/2011 4:34 PM (GMT -6)   
Well, I'm not sure if this is the right statistic, but my surgeon said that 95% the people that he has preformed surgery on goes on without any complications what so ever. The other 5% have complications because the original diagnosis isn't what they originally thought it was.

He told me that some people with UC can have surgery, but then it turns out they have Crohns.
I haven't had my reversal yet, but I'm going on almost a year now with a temp ileo and I have yet to have any issues with the jpouch or anything else.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Temp Ileostomy and colon removal surgery - 6/2/2010
Takedown - Sometime next year; busy with job/school.

Hillhoney1
New Member


Date Joined Jan 2011
Total Posts : 7
   Posted 2/3/2011 7:07 PM (GMT -6)   
Thank you for replying.  I'm glad you are doing well with your temporary ileostomy, and hope your takedown goes well.  It is a lot for a young man your age to deal with.  I have a son your age, and I know how hard it would be for him. 
 
My husband doesn't have any underlying disease, his ileostomy was necessary because his colon was perforated during a routine colonoscopy (so misidentification of the disease won't be an issue).
 
 Our first attempt at a takedown failed, due to a stricture that had formed in his colon.  The second attempt was successful, but the surgeon did note that there was a partial stricuture at the time they did the reversal.  He called in a gastroenterologist, who was able to put a flexible scope through, so they went ahead and proceeded with the reversal.  I am concerned about the future and whether or not that particular stricture will continue to grow, or if he will develop adhesions within the abdominal cavity which may cause an intestinal blockage. 
 
I am interested in hearing the experiences of others, and if you were able to prevent blockages by keeping the stools loose, or if you used steroid medications to stop the inflammatory process.  I have also seen studies on-line regarding the use of Celebrex to stop the inflammation, which in turn stops the growth of adhesions.  Has anyone had any experience with that?

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 2/9/2011 1:42 AM (GMT -6)   
Hillhoney1,

Oh, lord, your husband's story sounds somewhat like mine.

SHORT form of mine: 2005 for reasons still unknown, I started having issues with incomplete rectal emtpying during some bowel moves necessitating return to toilet. Unknown to me at the time, the defecogram scan I had had been misread by a resident identifying sigmoidocele (sigmoid colon internally herniating and closing off top of rectum.)

What I really had was just a loop of small intestine that descended only after I had passed the contrast, so even this was not the cause of my issue. Did not get scan reread until 2008-2009. Did not know pre-op that only a resident read this scan. Surgery based on the scan was removal of sigmoid colon per 3 colon docs. The docs I went to did that then far exceeded consent and did numerous internal organ prolapse surgeries for prolapses I did not have. (NOT normal medicine being practiced here. Not told of their numerous other law suits thought I checked with our state med board prior to going to these docs.)

RESULT: Severe stricture at the anastomosis where my rectum and descending colon were joined. It's thought that compromised blood supply in the area due to all the procedures done on me were the cause. That doc just said pass stool through the area to auto-dilate. That did not work. 2 weeks post surgery my colon closed into a diameter of only 4 millimeters, the diameter of a pencil. 2 dilations by another doc who tried to help did return that area of my colon to almost its original diameter, but what nobody realized at that time was the walls of my colon had turned to scar tissue and were no longer muscular to push poop along.

Then over 4 months, the scarring within the walls of my colon spread along a 4 inch segment of my colon proximal to the anastomosis. THEN severely dense scar tissue formed on the end of my small intestine giving me 7 months of small bowel obstructions. I was given no TPN and had to see 11 docs at 7 medical centers across the US before full extent of the issue was found. THEN finding someone to deal with this was a real trick as no doc wants to deal with damage caused by another. PLUS, it is very hard getting small bowel out of concrete like adhesions.

So 13 months from the date of what turned out to be the unneeded surgery, was my lysis of small bowel adhesions and ileostomy surgery. LONG post-op ileus, but thankfully since then OK. It's been 3 and a half years. BUT I will always be at risk for adhesion reobstruction. BUT I've been traveling and enjoying life figuring it may not last forever.

So like your husband, I had no pathology or disease originally. This is what makes our cases so sad in their own way. They were created at the hands of others.

I would say, look around for a colorectal surgeon who either works with or consults with a plastic surgeon on this whole adhesion issue. I am pretty sure the surgeon who assisted at my lysis and ileo surgery was a plastic surgeon. I looked the person up after the fact and they came up as a plastic surgeon in that area.

BEST wishes to your hubby and to you. Been there. Rosemary

I had an adhesion barrier Seprafilm put in me by my ileo surgeon. It is thought to retard the growth of new adhesions. Celebrex experiement had come out at that time done by Dr. Puder at Children's Hospital in Boston. I had asked about taking Celebrex just before and for 10 days post surgery as the mice in the experiment were given and developed NO adhesions. BUT I was told no because this was not yet fda approved for this. Plus it had been taken off the market even for arthritis treatment due to heart effects. PLUS, it is aspirin related, so can cause post-op bleeding. BUT wouldn't it be a miracle if some scientist did pioneer some pill to take post surgery to make NO adhesions come! That is my and other people's dream.

Post Edited (esoR) : 2/8/2011 11:49:54 PM (GMT-7)


gm_mexico
New Member


Date Joined Feb 2011
Total Posts : 6
   Posted 2/10/2011 3:41 PM (GMT -6)   
I don't know what the statistics are, but my colon was completely removed in August 2010 and I had an ileostomy. My surgeon waited 6 months and 2 weeks ago I had the reversal surgery. Everything seems to be acting normally, I am healing well and every day I am better. I feel very good and have had little ill effect other than very watery stool at the beginning. I now am going to the bathroom every 6 o 7 hours. I sleep all night without getting up and I seem to be functioning well. I was hesitant about doing the reversal surgery, just because I was doing so well in spite of the ileostomy bag, but my experience certainly has been good.

Hillhoney1
New Member


Date Joined Jan 2011
Total Posts : 7
   Posted 2/16/2011 1:54 PM (GMT -6)   
Thanks everyone for your replies.  It helps just to have someone to listen!  I hope you all have continued good health.
 
Like you, Rosemary, we are trying to just live in the moment and not focus on the possibility (probability?) that he will develop future adhesions which may require surgery.  It really is all we can do at this point.  Unfortunately, we didn't know the right questions to ask prior to surgery regarding methods to use which might prevent surgical adhesions.  I guess this is the true meaning of turning it over to God and accepting what life brings.  It is very difficult for me, as "Dr. Mom" of the family, I want to feel I can do SOMETHING to ensure his reversal is successful.  Accepting that it is out of my hands totally is not easy to take.
 
Thanks again.
Karen
 
 
 
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