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flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/5/2011 12:04 AM (GMT -6)   
I have worked at a church since 1997 and started out as a graphic designer/desktop publisher. Unfortunately, I got sick with Crohn's in 1999 and was moved from that job to receptionist/data entry secretary, since there were no deadlines to meet and volunteers could fill in for me if I was out sick. It felt like a demotion at first, but I was thankful to have a job and health benefits, and took on design projects every chance I could in order to keep things interesting.

Well, thanks to my ostomy, being healthy and having lots of energy, I've come full circle and am back to doing graphic design again! Our designer left two weeks ago to freelance, and I've been doing his job and mine in the interim. It has been super busy, but I'm loving it! I applied for his job, did a few impromptu design projects for them, and got the job! I'll also be managing our website, which is something new, but he trained me on how to do it. They're also going to hire a friend of mine to take over the secretary job on Monday, so I'm happy about that, too!

I just wanted to share a positive, success story from someone who understands what a toll disease, medicines, and surgery can take on your life, but once you're through it and are healthy again, you can get back to doing the things you love! wink

Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Shaz032
Veteran Member


Date Joined Feb 2003
Total Posts : 1251
   Posted 2/5/2011 5:37 AM (GMT -6)   
Where's the 'Like' button when you need it :)

Congrats!
Ileostomy for 34 years due to UC. I had my surgery at 10 years of age.

Moderator of the Ostomy and Psoriasis Forums

_______________________________________________

I'm not a complete idiot - some parts of me are missing!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/5/2011 6:19 AM (GMT -6)   
That's FANTASTIC smilewinkgrin
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/5/2011 8:55 AM (GMT -6)   
That's so great and gives me hope. I just had to resign from my job because of how much time I will be gone due to my surgeries.

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 2/5/2011 10:18 AM (GMT -6)   
That's great news, Cecilia!

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 2/5/2011 11:05 AM (GMT -6)   
Two thumbs up Cecilia!!

Sue

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/5/2011 11:06 AM (GMT -6)   
Yay!!! :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/5/2011 11:36 AM (GMT -6)   
CONGRATULATIONS!


Dan

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/5/2011 11:52 AM (GMT -6)   
very happy for you, Cece!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/5/2011 3:13 PM (GMT -6)   
Thanks, everyone! :-)

Disneynut, I'm very sorry to hear that you had to quit your job. I take it they didn't provide short term disability? Luckily, my workplace did, and I used it every time I was out for surgery or sick for several weeks. I would collect 60% of my salary from the disability insurance company, so all the church paid for was the insurance, but not my salary, while I was off work. In the future, if your next job doesn't provide short term disability insurance, you can sign up for it on your own through Aflac or another company like that.

Hugs,
Cecilia
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/5/2011 3:42 PM (GMT -6)   
Cecilia - You Go Girl!!!! Great to post these kinds of stories to help give hope to others that there is that light at the end of the tunnel. Doing a happy dance here for you as I know how important something like that is for your overall well being and self esteem too. GREAT NEWS!
64 yr old male --suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision in 6/10 to have surgery which was on 12/17/10 (permanent ileostomy - unable to have the j-pouch) and no longer in pain.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/5/2011 7:04 PM (GMT -6)   
Thanks! I'm still pinching myself, because I was told from Day 1 that there is no cure for Crohn's. But, ever since I had my proctocolectomy surgery 5 years ago, I have been disease-free! It's truly an amazing feeling to survive an "incurable" disease and come out on the other side alive and well! I wish that for everyone! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/5/2011 10:42 PM (GMT -6)   
yay cece! woo hoo!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

ucfree
Regular Member


Date Joined Oct 2005
Total Posts : 291
   Posted 2/5/2011 11:30 PM (GMT -6)   
Congrats chica ... I'm jumping on your train!!! :)
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