My daughter is starting Kindergarten next year...

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katiesmommy1
Regular Member


Date Joined Aug 2009
Total Posts : 94
   Posted 2/6/2011 9:51 AM (GMT -6)   
hello I'm wondering if there are other mothers/fathers that can help me,

My daughter is going into Kindergarten in September and I have to meet with the principal of her school tomorrow regarding what challenges my daughter will face. I'm looking to hear from other parents who were in the same situation. Or if you had an ostomy when you were young, could you please let me know if there were certain challenges that you had to overcome (if any).
I have no idea what to expect. I am going to start to teach her to empty her own pouch, but I know this is going to be difficult for her.
I am going to ask if I can volunteer for her lunch period so that I can empty her pouch mid day in case she needs help.
Did any of your children, or did you have any problems with gym class?
I would love to hear what were the biggest challenges (if any) you or your children faced when going back to school.

thank you in advance,

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/6/2011 1:55 PM (GMT -6)   
I didn't have one in school but we had a friend who got a colostomy and urostmy when he was about 8 he was physically unable to change and empty his so his mom went to school and did them for him. I'm not sure if the school has a nurse if so she can probably help her but I don't think the teachers are allowed to they weren't allowed to help with our friend something to do with possble complications. Anyway I'm sure they will be happy to have you volunteer I go once a week at least and there are some parets that stay all day not in the classroom but in the building making copies or cutting things out stuff like that. I'm sure she will be fine but kindergaten is scarier for you than her!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/6/2011 9:04 PM (GMT -6)   
I think they should let you help out as an accommodation for your daughter. They can't expect a five year old to take care of that herself. There are times when I have trouble! Do you have a school
nurse at her school? The other option would be for her to
help your daughter. I worked at an elementary school and the nurse handled things like that. Good luck to you and your daughter.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/6/2011 9:36 PM (GMT -6)   
Hello!
I am a teacher and although I didn't have my ostomy until just this year, I think she will be ok. Yes, her dexterity is going to make it hard for her to empty at this age, but it is good that you are teaching her, so she can at least try. I don't know what kind of school you are going to be at, but I feel like they'd be ok with you coming in. However, the nurse may be ok with that as well. As a teacher, I would be ok with whatever accomodations that she needed, and if you are taking her to a public school, they will have to accomodate her, so no worries there.

My biggest piece of advice for you would be the same thing I'd tell any parent of a child of any age who had an ostomy: make sure she is confident with what she has, and do whatever you can to educate her and don't let her feel like it is a bad thing. I'm sure that you've already thought of this and I'm sure you've already laid the groundwork here; I just thought it was worth mentioning. If she's happy emotionally she'll be fine physically and be able to deal with any mishaps. She just needs to be able to explain to her classmates/friends if they should ever ask, in a way that makes it ok. Most kids are very accepting if something is presented in a matter-of-fact way. If she presents it in a way that is shameful, they will regard it that way too.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

katiesmommy1
Regular Member


Date Joined Aug 2009
Total Posts : 94
   Posted 2/6/2011 9:39 PM (GMT -6)   
Yes they do have a nurse and she has expressed to me in the past that she has no problem changing it or helping out if it ever leaked. But she will not help empty it. I don't think it's a big deal if I empty it in the morning before school and then again at lunch. I was just wondering if there was anything specific I should tell the school. Like I'm going to ask if my daughter could keep her water bottle at her desk all day since she has to keep hydrated more than an average child.
Just wondering if anyone else had any suggestions.
I'm also going to volunteer at the school as much as possible.
and I know this is definitely scarier for ME than it is for her. ; )

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 2/6/2011 11:53 PM (GMT -6)   
So the nurse actually refuses to help empty the bag? Hrmm. Well, at least if there are any problems she will help your daughter. My only concern is if emptying in the morning and at lunch time wouldn't be enough. Especially if she's drinking water all day, the bag will fill up. Also, does she have snack time? That will be another opportunity to empty the bag, plus she'd be eating.

It will definitely be harder for you than her :) I'm 20 years old, have an ileostomy, think it's not THAT big of a deal, and my Mom is having an extremely hard time dealing with everything!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/7/2011 6:45 AM (GMT -6)   
That's kind of weird that the nurse won't help empty.

Anyway, again, I'm sure they'll let her have a water bottle.

As for emptying once in the morning and once at lunch, that sounds fine to me. I wear a mini-pouch (child size), and I empty in the morning and at lunch and I'm completely fine. Not even close to having a problem. I drink water all day--no biggie.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/7/2011 7:05 AM (GMT -6)   
I worked with kids with special needs. Often times the parent would come in and explain things to the other children so they would be comfortable. In our situation, the child would not be there. If you think it appropriate, you could talk to her classmates and explain in a kindergarten way why she has this. I have to say the kids at our school are so accepting once they understand. Not sure if you feel comfortable with that, but it seems like this will come up and either she will have to explain or you will.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/7/2011 1:21 PM (GMT -6)   
it may be different in state to state but its somethign to do wtih sanitary issues and sexual harassement issues also as to why the teachers can't help children with "bathroom" things. The system my sis teaches for, they aren't even allowed to help the kinders button their pants if they can't get them after the bathroom, because there could be a lawsuit.
It seems like there would be different rules for the nurse, but probably not.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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