newborn stoma here (7 days old) questions to those with experience

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hopein3s
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 2/8/2011 8:41 PM (GMT -6)   
Just had surgery  on Jan 31st. because of UC.  It is the first of three.  Next surgery they will make the jpouch.  Having a little bit of a hard time adjusting to the ostomy, but I love being able to eat again!!  Here are some questions I have: 
 
What do most people use one or two piece?
My skin seems to have a hard time adjusting to ostomy, does the skin "toughen" up?  My skin seems to be very itchy because of paste and rings.
Does anyone have any problems with their stoma not sticking out enough?
Do you use those sticky round rings or just paste and a bag?
Do you have alot of irritation at first around your stoma?
How many people have trouble with bladder waking up and working right again after surgery?  I had to go home with a cathater :(  Being taken out tomorrow.  Hoping it works.
 

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 2/8/2011 8:53 PM (GMT -6)   
1. 2-piece convatec with stomahesive flange

2. Use Allcare wipe before applying the flange. This puts a little coat of shellack on the skin.

3. Mine sticks out about a half inch

4. I use Eakin Seals right around the stoma. Be sure and press them flat then trim off the outer part of it. PUt it right around the stoma then put on the flange with the hole cut so that there is 1/8 to 1/16 of an inch between the faceplate and your stoma. The eakin seal will turtle neck up around the stoma. That is fine.

5. There should not be irritation if you have all the right products. For a burn just below the stoma I put on some stomahesive paste.

6. Lazy bladder very common. Hope all works tomorrow. Rosemary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/8/2011 10:30 PM (GMT -6)   
1 2 piece hollister new image

2 you may be having leaks, or be allergic to what you are using, you can use the wipes, but they will shorten your wear time. also, if you arent using sure seals be sure you are getting your wafer completly dry after showering/swimming

3 mine sticks out a lot, if it doesnt you need a wafer wtih convexity, or a belt i dont know much about those

4 i use the paste

5 you shouldnt have irratation, if you do its a sign you have a leak or are allergic to the product

6 i didnt have a problem with my bladder but it is common
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 2/8/2011 10:49 PM (GMT -6)   
WOW, same boat. I'm also having the three step, and I just had my first one done on January 19!

1. I use a two piece.
2. Mine's itchy too! Haven't had it for long enough to tell you if it'll change but I'd be interested to find out also.
3. My stoma sticks out enough, but there are wafers you can get that sort of pushes into your belly a bit right around the stoma which pushes it out a bit.
4. I use paste... I'm not familiar with the sticky rings :P
5. My skin's a bit irritated too.
6. I didn't have to go home with a catheter, but after they took mine out, the first time I tried to pee (and I really felt like I was going to be able to) nothing happened at all! That turned around later the same day, though. Yours will wake up!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/8/2011 11:24 PM (GMT -6)   
hi hopein and welcome,

glad you feel the surgery helped you.

to your questions:

1. i use coloplast sensura 2 piece.

2. the rings or paste are not supposed to cause irritation. it could be you're alergic to the stuff. better contact your stoma nurse to figure out what products can work for you.

3. my stoma doesn't stick out enough, so i use a convex wafer and it helps a lot.

4. i use hollister adapt rings.

5. i don't have any irritation around the stoma. if i start to get itches, it means it's time to change the appliance, cuz if i don't, it'll start leaking.

6. it's common to have problems peeing after surgery. i had a catheter during the first week post op, but it worked it self out.

good luck, hope it all resolves for you soon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

hopein3s
New Member


Date Joined Feb 2010
Total Posts : 14
   Posted 2/9/2011 1:59 PM (GMT -6)   
Thanks for all the good advice!!  Looks like I might try the 2 piece system,  seems to be the most popular.  I think the itching might be caused by the higher dose of pain meds I'm on I have a small rash on the front of me and I think the rash is under my skin barrier too, so itchy!!  Not sure what to do about that, Perocet seems to work really good for the pain but the rash and itching is starting to really annoy me and hydrocodone gives me a bad headache :( No pain meds is not an option yet either. Think I might call the doc and ask about taking benadryl.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/9/2011 3:07 PM (GMT -6)   
I use a one piece Marlan. It has a deep convexity. If yours doesn't stick out too much, you will need one with a convex. The nurses were able to use the two piece Hollister, but I couldn't do it at home. It isn't easy to do at home. I had kits of itching and burning when I got home. It didn't stop until I got the right appliance. Go online and order lots of samples. All the companies will send you things.

So, this is what I do. I change in the morning after a shower (I take off the old appliance and take a shower without anything on). Then I dry thoroughly. I then apply the powder to all the irritated areas. I then spray the 3M spray on it. Then I repeat (up to three times to get a good crust). Then I warm up a 4 inch Hollister seal with my hair dryer on medium. I then put the seal around my stoma so it butts right up to stoma. Then I apply the Marlan. I keep it pushed on for a minute then take hair dryer on medium and go over it and press more. Then I lie down because I am exhausted! I have to pre-sized one and although it didn't leak it burned and itches. I had to get a smaller size. The key is to get the right appliance and size. If it hurts you've done something wrong.

A tip for when they take out the catheter...they had to put it back in because I couldn't pee after they took it out and they wouldn't send me home with it in because I live 5 hrs from hospital. Anyway, I would take a clean cup and put warm water in it. I then poured it over the area. It helped so much. Whenever I take a bath I have to get out and pee so I thought this might work. Because they had to put the catheter back in, I did get a UTI. Long 5 hour drive home. They called me in a prescription right away.

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/9/2011 5:20 PM (GMT -6)   
1. One-piece Coloplast Assura extended wear. Want to try a two-piece but have to wait since my incision reopened, and I am on a wound vac. The one-piece works better with it.

2. I haven't had any major skin issues, but occasionally I get irritated around my stoma in a small area. I put powder on it and then Smith and Nephew No-Sting Skin Prep over that and it usually resolves by the next change. Also, I sometimes use skin prep under the whole wafer if I get any irritation. It does shorten wear time, but I usually change my pouch every 3-4 days anyway and it lasts this long.

3. My stoma is 1.25 inches tall, so I don't need convexity.

4. I use Hollister Adapt rings and love them. They have completely eliminated all leaks... even when drainage from my open incision wound gets under my wafer.

5. I haven't had any irritation around my stoma. I had a little bit of itching when the skin was healing before the sutures dissolved, but it went away eventually.

6. I only had a catheter for a few days after surgery in the hospital. It did take a little while to have to pee after they removed it. Can't remember exactly how long, but enough that I noticed it was strange.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/9/2011 7:18 PM (GMT -6)   
I use a two-piece.

I have allergies to adhesives so I use a no-tape barrier made of pectin from Hollister. It doesn't stick as long (4 days max), but it doesn't cause a rash.

My stoma used to stick out 1 inch, didn't use convexity. Then had a blockage and had stoma redone. Needed convexity. Had another revision and it sticks out 1 inch again. Now i'm good. You may need convexity if you have leaks.

I use adapt barrier rings. Used to use paste but these are better for me.

I ALWAYS have a hard time peeing after both anaesthesia and a catheter. It will come back. One thing that helps me is walking, for some reason.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)
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