ileostomates supposed to eat a tiny bit of "roughage"?

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esoR
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   Posted 2/9/2011 4:15 PM (GMT -6)   
STILL trying to wrap my head around the whole ileo diet after 3+ years. Mostly eat egg, yogurt, baby food meat, etc.

BUT the other day I tried some VERY well-cooked summer squash minus the seeds. Then I mashed it down and had it with butter and salt.

It passed a whole lot faster than the gush I've been eating and I have no transit problem with the gush.

My question, are we supposed to have at least a tiny bit of "roughage" if you can call this mushed summer squash roughage? It sort of makes sense as the small intestine is a muscle of sorts that needs exercise??

Thanks, Rosemary

summerstorm
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   Posted 2/9/2011 4:53 PM (GMT -6)   
i think you are fine with squash! i eat salad and all kinds of roughage, there is no need to limit yourself to the foods you are eating now, or to keep smushing them up, just drink a lot of water with them!
I eat fried squash all summer long, or squash casserole, everyday we have it in the garden and my mommy will make it for me :D
And yes we need roughage, everyone does, but seriously, you should try some more stuff, you are missing out on so many things!
Why are you just eating baby food meat? the only meat that could cause problems is "stringy" meat, and even then if you chew well its ok.
The only things you should really watch out for is the hard part of fresh pineapple, and the skin of oranges, not the peels, that white skin.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

esoR
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   Posted 2/9/2011 5:56 PM (GMT -6)   
Hi Summer,

I had 2 actual food blockages on mashed potato of all things when I was on my world cruise. Nothing passed for 6 hours and I was in agony. Lucikly able to walk out on deck, drink hot tea and grape juice, and all of a sudden all the mashed potato shot out all at once. Since then really careful I have been :-)

Hence the baby food meat and so on. BUT that well cooked summer squash was soooooo good. YUM!

Reason for needing ileostomy was severe damage to colon and rectum and seriously dense adhesions on small bowel. Ileo surgeon in 2007 able to free up small bowel and do the ileo so I could eat, get nutrients and pass waste (which I couldn't prior to him result of a serious gut-scarring surgery that never should have been done after all in 2006) so I more than likely may have leftover adhesions that are not directly blocking me off nor even partial sbo, but could be a reason for the "potato clog?" Not sure. All open and good on CT Enterography. Hard to say though. So that is why all the caution.

Sounds like you eat well. That is good. Thanks, Rosemary

summerstorm
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   Posted 2/9/2011 6:34 PM (GMT -6)   
did the potatoes have skins? i know potatoes make me slower, but i can't see how mashed potatoes, which are like mush anyway should cause a blockage, thats strange!
i'm sorry you have all those problems and can't eat stuff, that's no fun.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

polishdan
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   Posted 2/9/2011 6:55 PM (GMT -6)   
Esor
After three years you are still eating mush? Unless you have some kind of problem, you should be able to eat just about anything. You do have to watch out for stringy things like celery, the hard stringy part of cabbage (been there), tough fruit skins (apples, grapes). Try some new foods. Just golightely at first. (play on words)

Dan

Another UC wife
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   Posted 2/9/2011 9:31 PM (GMT -6)   
Ditto on what Dan said. Hubby had surgery 7 weeks ago. Definitely chew, chew, chew but he is eating quite a few different things.

Mashed potatoes have not given him any problem (creamy-no skin). He had shrimp cocktail tonight, small piece of baked haddock, 2 of my baby back ribs and few slices of potatoes. Small appetite overall but varied.

Definitely avoiding cabbage/coleslaw/fruits and vegs. with skins and fiber.

I grilled hot dogs last week but he wouldn't take the chance with the skins so that's off the list. We are still learning and being careful but I think you should be able to tolerate foods that are not so mushy.

I made a fresh fruit platter the other night for company - he had a few pieces of melon - when I was putting the tray together, I peeled a few fresh cherries as I was worried about the skin - he didn't want me to bother but it at least gave him the opportunity to have a few and not be totally deprived BUT was very careful to spit out the pits!!!

Havent tried salad stuff. That won't be for quite awhile and even at that it will be a few forkfulls here and there is my guess.
64 yr old male --suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision in 6/10 to have surgery which was on 12/17/10 (permanent ileostomy - unable to have the j-pouch) and no longer in pain.

esoR
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   Posted 2/9/2011 10:47 PM (GMT -6)   
Thanks for replies.

No, the potatoes did not have skins, just the creamy but heavy mashed kind. Maybe it was the amount, it was sort of a lot as it tasted sooooo good with butter and salt.

Maybe underlying problem may be leftover adhesions but who knows cause all was open on the CT enterography that I had after the potato episode.

Very soft, ripe watery melon might be something to try, like maybe just a few bites well chewed. That would taste good. A lot of what I eat is either soft sweet stuff, chocolate loaded with FAT, and other unhealthy things. I have gained 30 lbs since my ileostomy. 25 of that was needed weight regain, but I need to knock off that last 5 lbs and not gain more because excessive weight gain can cause issues with stoma function. Sure not want that.

Yeah, Dan, that's a good one, I will golightly on new things. :-)

Rosemary

summerstorm
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   Posted 2/10/2011 10:24 AM (GMT -6)   
i was wondering what you eat on the cruise, not to be flip, but i haven't seen much baby food on the cruises! or mashed up stuff!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

esoR
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   Posted 2/10/2011 10:49 AM (GMT -6)   
Hi Summer,

I do a LOT of scrambled eggs and scrambled egg substitutes on cruises. RJ

PS No baby food in stock on cruise ships. Really weighs up toting those little glass jars in my luggage. Good for side trips though.

Christine1946
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   Posted 2/10/2011 2:28 PM (GMT -6)   
     Rosemary...I eat everything!  The only thing I haven't tried yet is pop corn, but then, I am not crazy about it anyway.  I was afraid to eat salads but I LOVE salad.  So, a few months back, I tried it for the first time.  I chewed and chewed..lol.  No problem at all.  My surgeon did a great job with that stoma.  As a matter of fact, I was in another hospital one month post op because of dehydration.  Those ninnies gave me huge potassium pills and they came out whole in my bag.   I figured if my stoma could spit those suckers out, it could spit out almost anything.  Don't get me wrong, I take no chances, I just chew very thoroughly.

polishdan
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   Posted 2/10/2011 3:05 PM (GMT -6)   
The mashed potato problem.......were they made from whole potatoes or instant mashed potatoes?

ucwife
What kind of hot dogs were you talking about? Ball Park dogs, for instance don't have skins that won't chew. How about strawberries....no skins, no stringy stuff.

Dan

esoR
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   Posted 2/10/2011 5:51 PM (GMT -6)   
Hi Chris,

Who on earth would give a big potassium pill to an ileostomate! No doubt it was enteric coated to protect the stomach that is why it came out whole. You are lucky it came out.

Dan,

One case was instant mashed potato and the other case was real mashed potato. Interesting huh?

Rosemary

polishdan
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   Posted 2/10/2011 6:53 PM (GMT -6)   
Rosemary
Yes, that is interesting. I just finished dinner. Had a country fried steak, a load of mashed potatoes (instant), gravy and wax beans.

and I don't golightely.....

Dan

esoR
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   Posted 2/10/2011 7:53 PM (GMT -6)   
Dan, You are so funny. How the h--- did you eat a country fried steak?

Even if you chew, chew, chew, you cannot desicrate it to mush. Surely there must be pieces to it. Auuuugh!

Well as long as everything comes out OK (hehehehe! excuse the pun), then I say good for you.

For dinner I had ice cream, 2 chocolate covered cherries (MINUS the cherries) and 2 chocolate ring dings.

Yeah, not one of my better nutrition nights. I gotta get with the program.) That sweet just barreled right through me. Sugar travels real fast and chocolate puts it on express mode!

Rosemary

polishdan
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   Posted 2/10/2011 8:52 PM (GMT -6)   
Rosemary
Country fried steak is ground beef in some kind of coating. You just fry it in oil. It is not stringy at all. And I really don't chew that much. If your digestive juices can "digest" around your stoma if you have a leak, why do you think it would have any problem with meat?

TSK, TSK. You need to eat better.

Dan

esoR
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   Posted 2/10/2011 9:07 PM (GMT -6)   
Dan,

Interesting, I didn't know that country fried steak was ground beef in coating. Man, that sounds soooooo good.

Yeah, those digestive juices really eat up that peristomal skin if any gets on it right under the stoma opening. One would think my digestive juices would have whipped right through that mashed potato, but Nooooooo.

I know, definitely TSK TSK on me for my chocolate dinner. I am still outputting bags of chocolate as we "speak." Auuugh!

Rosemary

esoR
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   Posted 2/10/2011 9:16 PM (GMT -6)   
Dan,

Whole separate story......European train story Paris to Rome. Picture this if you will.

In Paris, I ask for decaf coffee for breakfast. MUST have been caffeine. I fill bag after bag with clear yellow liquid. Stoma is going off like a fire hydrant. I run back and forth to hotel bathroom from where we are waiting in the lobby on "train day." I'm having a fit. Feel fine except for the yellow geyser.

So, I eat this apple-peach sauce with extra pectin from my nature food store. I lugged this stuff all the way to Europe from Massachusetts. It does not thicken up my poo. So then I try some pretzels. Still no effect. Yellow geyser still going off.

So, I start taking immodium, one tablet and I thought it would kick in. Yellow clear output still coming out. In about 30 minutes I take a second immodium. Another 30 mins and a third immodium.

Finally flow goes to normal. Then stops. But so what, had to get to the train.

Get to train, get on, get into our bedroom cabin. Then I have NOOOOOO POOO at all. Bloat, distension. Train starts off. NOBODY speaks English. OH, joy! So I start drinking grape juice and hot tea and stalking the halls of the train. 6 hours later the bag fills all at once with the THICKEST EFFLUENT ON RECORD.

I had to really milk the stuff down and out of the bag. The poo is sooooo thick it stands up in the toilet. Better out than in. I feel much better. BUT GOOD GRIEF!

Lesson learned: In Europe don't count on getting decaf. If yellow clear bag after bag diarrhea starts ONLY take immodium, do not also eat thickening food. Thought I was going to die, but thankfully I had my grape juice with me and the train served hot tea.

Is that not a scary story? Rosemary

polishdan
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   Posted 2/10/2011 9:21 PM (GMT -6)   
Rosemary
Nothing wrong with chocolate for dinner. What is for dessert? Nice piece of fish? Or shrimp stir fry? I had a good dinner (not according to my wife) and I am having blackberry brandy for dessert. We are visiting Florida. The seafood is great. Had shrimp scampy with mushrooms and artichoke on linguine with garlic/butter sauce at a restaurant a couple days ago. Brandy for dessert.

If you are a good girl and eat better, you can have blackberry brandy for dessert too.

Dan

polishdan
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   Posted 2/10/2011 9:34 PM (GMT -6)   
Rosemary
Very funny story, but only to an ostomate. A person with all of their plumbing would not understand. It would be funnier if you still had colitis!!

No it wouldn't......

Dan

esoR
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   Posted 2/10/2011 9:35 PM (GMT -6)   
Hey Dan,

Florida sounds good right now. I have 9 foot snow piles in my front yard. We are freezing in Mass. It is only 2 degrees out. Yeah, with a chocolate dinner not much is left for dessert. You are really brave eating shrimp. Jeeze! Or does the Brandy chase the shrimp out? Hope all keeps moving along smoothly :- )

Can't wait til 4 weeks goes by and I go to the Bahamas. I want to go NOW.

Rosemary

polishdan
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   Posted 2/10/2011 9:46 PM (GMT -6)   
Rosemary
All has been moving along smoothly for 3 1/2 years.

We are here from Michigan. I would rather be HOME. Warm Florida is nice, but home is home. This is all my wife's idea....for four years now.

Bahamas??? We were there about 1980. BE SURE TO TRY COCONUT RUM MADE BY TODHUNTER-MITCHELL. The distillery is in the Bahamas. The name at the time was Don Ricardo coconut rum. It is not available in the US. It is a straight sipper. Soooo good.


Dan

esoR
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   Posted 2/10/2011 10:32 PM (GMT -6)   
Ok, Don Ricardo it is. Michigan huh? Wow! I think you are in the right place now for this time of year. Home is home, but warm Florida oh so good now. Rosemary

summerstorm
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   Posted 2/10/2011 10:33 PM (GMT -6)   
ok so if coffee makes you go like that, why not have coffee along with a food you are afraid will cause a blockage? the coffee will keep it going!
although i cant say much about your dinner choice because i had ice cream for dinner last night, well frozen yogurt actually, lol.
so that makes it ok, cause yogurt is good for you, right?

Dan, i wish i had known about that rum! maybe i will get to try it next year. oh and theres a thought to rose, i don't know if you drink or not, but alochol really speeds me up, like crazy, so try some liquor with your food!

esoR
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   Posted 2/10/2011 10:41 PM (GMT -6)   
Oh, yeah, liquor actually totally empties me out big time. One glass of wine is like a gallon of Golytely to me. Now there is an idea, have a drink with some solid food for dinner. Also it seems like salty broth breaks everything up and sends it on through in a hurry. And chocolate we all know the story there. Grape juice clears me out big time. I think you are right. The whole key is combinations. I think I just get frustrated and turn to sweets. BUT I gotta get a handle so I can live life the best I can and have energy for all my travels and feel the best I can.

Ironically my blood work is looking good.

I did discover one thing. I can't eat bananas as they cause a clog like mashed potato. BUT I found out that coconut water has twice the amount of potassium as a banana, so with my adding coconut water to my diet I can keep up my potassium levels. So I am learning.

Yeah summer, that frozen yogurt is AOK. Yogurt in any form is good for you. :-)

Rosemary

polishdan
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   Posted 2/11/2011 7:56 PM (GMT -6)   
Oh, Todhunter-Mitchell also makes banananana and pineapple rum......equally good.

Dan
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