Sorry for the double post on this subject, on the U.C. forum, I thought it had disappeared, and didn't realize it was on this forum instead. So I edited most of it out
Anyway, they never have diagnosed me with Chrohns, so hopefully it stays that way. As far as losing more bowel, you just lose the amount of small intestine used to make up the pouch, and hopefully no more than that. I'm not sure exactly how much is actually used to make a pouch. I do remember one time when a new doctor was doing scope on me in his office remarking to his nurse that "this pouch is huge!" I have to wonder if the original surgeon used too much intestine to make my pouch, leading to clean out problems, and pouchitis.
I really do think it is a good idea to go just for an ileostomy first, get back to great health first, see how the ileostomy goes, and then later on think about a j pouch if you are not happy with the ileo. I went in to my first surgery practically on deaths door. Looking back, I would have thought the surgeon would have told me I was not a good candidate for a j pouch, because of such poor health. I also remember after my first surgery, and having a loop ileostomy thinking that this is the best I have felt in years, I don't care to have the takedown. But then the loop pulled inside, and I had to have emergency surgery for that, and they just went ahead and connected me up. And it was all downhill from there. Wishing you the best.
Post Edited (gmark) : 2/10/2011 8:17:25 PM (GMT-7)