things have been really rough for us lately.
As far as my ostomy is concerned, everything is fine. but, as far as the baby's health, things are really really not fine.
a few weeks ago we found out that she has a major heart defect that will require surgery when she is a few months old (hoping that she could wait that long). It's called complete AVSD (arterioventricular septal defect) and is basically two holes in her heart. It is a strong marker for down's syndrome. So strong that the Dr.s told us to assume she had DS (70% chance she does).
Well, today we back for a recheck and possible amniocentesis. We decided to decline the amnio, b/c we couldn't deal with the risks. It ended up that we didn't really need it anyway, b/c they found another defect which is strongly associated with DS. The 'new' defect is called duodenal atresia. It's basically where her stomach and small intestine don't even connect. So, she will have to have surgery to repair that before she can even leave the hospital.
She can't eat without it. The perinatologist has prepared us for a NICU stay.
Coupled with the heart defect, he told us that he would be very very very surprised if she didn't have DS.
I don't even care about
the Ds anymore. I just fear for all of the other health issues.
I'm not one to usually feel sorry for myself. In fact, I'm usually a pretty optimistic person, and laugh at much of what I've gone through, but this has beaten me down. It fricken SUX! I feel like a dark cloud just follows me wherever I go, and craps on me. I'm exhausted.