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Regular Member

Date Joined Sep 2006
Total Posts : 241
   Posted 2/16/2011 3:30 PM (GMT -6)   
Going in for my surgery next Thursday.  Getting a stoma due to Chrones disease.  Very scared.  Any words???

Regular Member

Date Joined Feb 2011
Total Posts : 20
   Posted 2/16/2011 4:04 PM (GMT -6)   
just want to wish you thoughts and prayers will be with you.
think positive, live life to the fullest!!!

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 2/16/2011 5:09 PM (GMT -6)   
     Thoughts and prayers from me too!!!  You'll be fine yeah

Regular Member

Date Joined Jan 2010
Total Posts : 106
   Posted 2/18/2011 8:30 AM (GMT -6)   
I wish you the blessings of a fast recovery and a full life in the future!!

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 2/18/2011 9:52 AM (GMT -6)   
Congratulations on taking this step, and hooray for what will probably be a great start to new health. Any surgery is stressful, but you will be fine. Read through the posts on here and get familiar with ostomies. Ask if you have specific questions! We have been there. Good luck on Thursday! It will all be over soon.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

New Member

Date Joined Feb 2011
Total Posts : 11
   Posted 2/18/2011 11:11 AM (GMT -6)   

Words that my husband said four years ago have stuck with me and they were:

Look at your stoma as a new body part that has given you a new lease on life AND that is exactly what I have done. Take the time to recuperate after surgery and come here with questions as this group is GREAT! Good luck and know we will all be thinking of you and waiting to hear from you.

Veteran Member

Date Joined Apr 2009
Total Posts : 587
   Posted 2/18/2011 12:03 PM (GMT -6)   
Thinking of you.  I was so incredibly scared when I had my surgery six weeks ago.  You will be fine.  Like others have said, find out information about appliances before your surgery.  That was a mistake I made.  I didn't know there were so many companies that made these, that stomas were different sizes and that they could be convex or not.  Most of my problems post surgery were with my stoma, but all is good now!

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 2/18/2011 8:23 PM (GMT -6)   
Surgery is surgery so you'll have to get through the initial pain...BUT once you do you'll be amazed at how much better you'll feel:) and NO Urgency!!!

Your ET/WOC Nurse will help you with finding the right appliance for your stoma. Make sure you get up and walk and walk a helps get things going:)

Is your surgery open or laparoscopic?
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

J's Mom
Regular Member

Date Joined Oct 2008
Total Posts : 109
   Posted 2/18/2011 9:01 PM (GMT -6)   
Best of luck. Surgery was the best thing that happened to my son. He is healthy and happy once again!

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 2/18/2011 9:29 PM (GMT -6)   
Had my first stoma operation in 1992 when I was 20 after 2 years of pretty horrific CD symptoms. Even though I have since had problems with two abcesses over the years and few flare ups it has made a massive positive difference to my life. Even during a flare up when the bag is filling really quickly, not having that butt clenching urgency to rush to the bathroom is amazing.

I could feel the difference as soon as I can round from the operation. I felt so good after have 2 bad years I was back to work after 3 weeks, prob not best idea but put it down to exuberance of youth!!

Best wishes and agree with others who said to check out all the appliances available. I didn't know there were so many until 3 years after my surgery, then again times have moved on since then. I now use a two piece system, the flange has a extra piece of adhesive covering so if overnight the bag goes nuts and fills so much it gets slight leakage, I have some extra time before it breaches the second adhesive layer. But it is trial and error as what suits you best.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 2/18/2011 9:36 PM (GMT -6)   
good luck! and take some gas-x!
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