sleeping with an appliance

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knahs1
Regular Member


Date Joined Jun 2010
Total Posts : 86
   Posted 2/18/2011 9:38 AM (GMT -6)   
I had my colon removed and now have an illiostomy I am sore from sleeping on my back, any suggestions?

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/18/2011 9:49 AM (GMT -6)   
How long ago did you have surgery? Once you've recovered, you can sleep pretty much however you want.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/18/2011 10:22 AM (GMT -6)   
i sleep on my tummy with no problem. i just bend my right knee a little so i won't lay too flat on the stoma.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

claygirl4#90
New Member


Date Joined Feb 2011
Total Posts : 11
   Posted 2/18/2011 10:53 AM (GMT -6)   
I sleep on my side every night and sometimes on my stomach. It has been four years since my surgery; however, I think I may have used a pillow at first. Give it a try and see how it feels.

bellypooper
Regular Member


Date Joined Feb 2011
Total Posts : 20
   Posted 2/18/2011 1:13 PM (GMT -6)   
I sleep on my side mostly. was always a tummy sleeper before gizmo [ilio stoma] but am gassey at nite from pepsi and don't want bag to explode and fly me around the room like a balloon.lol
think positive, live life to the fullest!!!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/18/2011 3:27 PM (GMT -6)   
I sleep on my back or either of my sides (not much of a belly sleeper) and have since my surgery. No problems except that the filter on my pouch always gets gross and clogged, but that happens no matter how I sleep.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/18/2011 6:32 PM (GMT -6)   
Sleeping on his back and sides for hubby now. Pillows do help to relieve and alleviate some of the soreness and stiffness following surgery. His low back he remembers pulling playing golf before the surgery 8 weeks ago and it definitely gave him some aggravation. Today he felt great and we walked a bit - so maybe it has finally worked itself out. If you have any tenderness or discomfort with your back hopefully it will work itself out soon.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 2/18/2011 9:20 PM (GMT -6)   
I can no longer sleep in my stomach after my ileo first done in 1992, so start off on my side and end up on my back. Seem to turn over onto my back naturally. If I sleep on my side, cause my stoma produces quite a lot even through the night, I have found the bag has been full enough to pull itself away from the flange.

I have arthritis and damaged discs in my neck so 6 years ago we bought a tempur mattress and pillows and this is amazing if you get joint pain, it is like sleeping on air.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/18/2011 9:40 PM (GMT -6)   
once your incision heals, and you dont have stomach pain anymore, you can sleep on your stomach.
I kept a waterproof pad, sewed a sheet on it, and i sleep on that. That makes me feel more secure so that i can sleep on my stomach. I have found if i go somewhere and forget that, i can't sleep on my stomach i get too nervous!
Usually i start out on my stomach and i either wake up on my back, or start dreaming about having to go to the bathroom and wake up to empty.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/18/2011 10:02 PM (GMT -6)   
Try sleeping on the same side as your stoma and gently press a pillow up against your stomach. If you need to roll onto your back or onto your other side, keep the pillow pressed against your stomach while you roll. Once you're fully healed, you'll be able to sleep any way you want. :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 2/19/2011 2:10 AM (GMT -6)   
You guys really sleep on your stomach? I was told by nurses at the hospital to completely avoid sleeping on my stomach. My entire life I've been a stomach sleeper and was devastated when they said I could no longer do that. I'm almost 7 months out from surgery; you think it's ok to sleep on my tummy? I'd be nervous to damage Mt. Vesuvius!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 2/19/2011 2:37 AM (GMT -6)   
Yes, I sleep on my stomach, and you can, too! I always empty before I go to bed, and then, I lay on my stomach and bend my right leg and hug a pillow on my right side, which lifts that side up a bit. It's so comfy. Give it a try! :-)
Dx'd Crohn's in '99 at age 28. Proctocolectomy and permanent ileostomy in '06.
Disease-free and medicine-free since surgery and very thankful to be healthy again.

windy city
Veteran Member


Date Joined Dec 2010
Total Posts : 607
   Posted 2/19/2011 12:56 PM (GMT -6)   
OMG...thanks so much for the advise. I didn't think either that you could sleep on the stomach. I hate being a side/back sleeper now. I'll give it a try!!

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 2/20/2011 1:53 AM (GMT -6)   
I will definitely give it a try too! Thanks so much fchurchlady! I may need to get another pillow, but if it means I can sleep on my stomach its totally worth it! :)

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 2/20/2011 2:11 AM (GMT -6)   
Why would anyone with an ostomy WANT to sleep on their stomach?

Not being sarcastic or anything, but why would you want to do this?

Rosemary

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/20/2011 12:31 PM (GMT -6)   
cece you sounded like an infomercial!

I don't see how it could hurt anything to sleep on your stomach, once you are healed of course. Like i said, the key to me being able to sleep on my stomach is that pad, that way if it does blow up, it will only get on me and the pad. I do usually sleep with one leg up, but not on a pillow, just pulled up.

And i want to sleep on my stomach cause thats how i have always slept. And that's how i like to sleep, a bag doesn't keep me from doing anything else i want to, i don't see why it should take that away from me!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

RiddleMeThis
Regular Member


Date Joined Nov 2010
Total Posts : 269
   Posted 2/20/2011 5:55 PM (GMT -6)   
Yes it's the same thing with me...sleeping on my stomach is the most comfortable for me and it's how I fall asleep the fastest. Why wouldn't I want to sleep on my stomach? lol As long as it doesn't hurt my stoma, I don't see a problem with it. :)
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