Surgery over now comes the FUN part...

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hvacchronie
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Date Joined Oct 2009
Total Posts : 43
   Posted 2/19/2011 4:38 PM (GMT -6)   
I'm posting for Tony since he's recovering in hopsital! All went as expected, they DID have to open his abdomen also to get all of it so that sux since he has 2 surgery incision sites to heal from :( but he's doing pretty well so far. Been up walking & even sat in the chair once (PAINFUL!). Keep him in your thoughts and wish us luck please! It's so nice to have this site to talk about all this fun stuff!! :-)

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 2/19/2011 8:06 PM (GMT -6)   
     By Tony, do you mean Anthony the fireman from NY?

hvacchronie
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Date Joined Oct 2009
Total Posts : 43
   Posted 2/19/2011 8:30 PM (GMT -6)   
No, from Kentucky actually:) Yee Haw

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 2/19/2011 8:48 PM (GMT -6)   
Tell Tony hello and I'm sure with each passing day he feels better. As different tubes, catheters, drains etc are removed it makes it easier and easier. The drain though the nose to the stomach was a big deal and relief when that was taken out for sure as that bugged my husband.

Walking with a podium walker was a great help as they had him up real quick too as it is so important for so many reasons. I would walk with him once or twice a day and it was incredible to see him do that so soon after such major surgery. Sitting up was kind of tough but he did it...a soft pillow with one of the quilted pads over it helped make the tush more comfortable.

Since we were not near home I stayed at the Marriott Courtyard which is owned by Mayo Clinic and connects to the Mayo Clinic and Hospital so I was there all the time. I stayed in the room on the pull out sofa bed the first night following the surgery. Any time you can be there to visit and keep him company and go get the nurses if something is needed even though he can buzz them....I found I needed to intervene a few times nicely even though they were busy... sometimes they just forget. Being there to help position pillows was a big thing I did to try to keep him comfortable and little things like that which the aides/nurses didn't have to be bothered with.

Be sure he has enough pain medication to keep him comfortable. Hubby had to insist once with one of the nurses (she was kind of timid) that she get in touch with the Dr AND LET HIM SPEAK WITH HIM as he was too uncomfortable and then he was given some additional pain medication. I'm sure they want patients to get along with as little as possible but in a hospital setting it makes no sense to be in unnecessary pain. My husband has a high tolerance for pain and is not a cranky guy so if he complains there is reason for it.

Good Luck to Tony and you during this hospital stay.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 2/19/2011 10:12 PM (GMT -6)   
get him some gas-x!
and like they said, make him walk!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 2/19/2011 10:34 PM (GMT -6)   
UC wife: Thank you for all the advice! They took his morphine PCA pump today and so far the pain pills have kept his pain under control, only needed morphine once for breakthrough pain. I had him up walking twice and helped him sit in a chair for 15 min (all he could stand). He tried to start a fever last night but all the moving around today got that back down. His backside is giving him the most pain now :( We had an awful time the first night of his surgery with the unit we were on and the nursing staff but since we got his room moved to this floor everything has been wonderful. He is being treated soooo well and I am actually getting good rest on the recliner-bed! He told me today, "I don't know what I'd do without you, honey". Ya know, I feel the same way about him! That's what the preacher meant by "in sickness and in health". :-)

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 2/20/2011 12:01 AM (GMT -6)   
hvacchronie,
Can I ask what surgery did he have and where in Kentucky he had his surgery, I had my ileostomy in Louisville,  I hope he is doing ok and I do know that having someone there with you to help out it great. I am not one to be clingy but I don't know what I would have done without my husband and daughter with me all the time.  They took turns staying with me and seen to it that I had everything I needed.  Even making me walk when I did not want to. I am sure that Tony appreciates you being there. 
We will be thinking about him. Keep us posted.
 

Christine1946
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Date Joined Aug 2008
Total Posts : 5975
   Posted 2/20/2011 8:48 AM (GMT -6)   
     We live in south Jersey and I had my operation in Philly (much better hospitals and doctors).  My hubby visited me every day and it was during that unbearable heat wave last summer skull .  He is 72 yrs old, but always had much better health than I, who is 64, and he took that high speed line train over and walked two blocks to the hospital in 104 degree heat...what a trooper!  It meant a lot having him there.  I don't remember being in much pain.  I had a morphine pump by the bed but forgot how often I was allowed to use it and only hit it twice after surgery..lol.  I was under the impression I could OD on it.  about 10 pm the nurse came in and asked..."Didn't you use that morphine pump?"  I said yes...twice.  She almost passed out.  I think I was just so out of it, dosing on and off, that I didn't feel much pain.  The one time they gave me a pain pill when I asked for it, was three days post op and I threw the darn thing up. 
     The important thing was to walk, walk and walk.  My surgeon was very adamant about that.  I tended to hooch over but was told to walk as erect as possible.  Things will get better with each passing day. 
     Wishing your hubby a speedy recovery! yeah

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 2/20/2011 9:05 AM (GMT -6)   
Yes being there as much as possible is so helpful for them...a simple thing like hand me the box of tissues, ice chips, pull my blanket up, take my blanket off...lol or whatever. The simplest thing he was unable to do I could do for him. Sometimes I was up and down like a jack in the box...lol...but didn't mind. There's no way he would have been buzzing a nurse or aide for some of those nitty gritty things but at the moment of need it is important for them too.

The podium walker I mentioned really helped when he walked and keeping him erect if they have that type at his disposal.

Unfortunately my husband was on a regimented pain medication routine prior to surgery due to his major discomfort so he might have needed more pain meds due to that. Happy to report his Friday appt with his pain mgt. dr. he is now in the final month of tapering and will be totally off any and all pain meds which is wonderful...the Dr and I are so proud that he was able to accomplish this as quickly as he did...but with the UC pain gone it made it an easy tapering process. I did worry about "dependence & withdrawal" but it was all needed due to the UC pain.

(12 Asacol, 4 azathioprine, 4 gaba pentin, 3 oxycodone and fenatnyl pain patch GONE GONE GONE!!!!! It is wonderful to take a few pills in the AM and a few @ bedtime for normal stuff not UC related anymore.)
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

hvacchronie
Regular Member


Date Joined Oct 2009
Total Posts : 43
   Posted 2/20/2011 10:13 AM (GMT -6)   
Pswift, He had his rectum and anus removed and a hernia found by the surgeon removed (freebie!). We are in Lexington at UK.
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