Any advice/solutions to high stoma output

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stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 2/21/2011 10:58 AM (GMT -6)   
I posted my 'hi, forgot to say hello' and whilst loads of people looked at it no one has offered any advice or possible solutions to the question of reducing high stoma output. Maybe the question got lost in the rest of the post as tried to detail everything.
 
So anyone anything they have found worked for them. It is not that it is loose, just whatever I eat seems to multiply 10 fold by time it has worked it's way through to the bag.

Trixiemom
Regular Member


Date Joined Nov 2010
Total Posts : 89
   Posted 2/21/2011 11:01 AM (GMT -6)   
I have an ileostomy but my output is thick...hopefully someone will be able to help...I have heard immodium helps but it might be something for your ostomy nurse or dr to help you with.....Trixiemom
have loop ileostomy
diagnosed with colon inertia
I love my ileo and life

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 2/21/2011 11:08 AM (GMT -6)   
The problem isn't that it is watery, it is thick. The problem is the amount, having to empty bag every hour. Have tried immodium before and I don't absorb it due to short bowel syndrome and cannot have lomotil as low kidney function. This has only happened in last 6 months and they are treating it as CD flare even though on MRI not necessarily active CD just area of stricture. That is why started Humira and already take Azathioprone and pred.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 2/21/2011 11:38 AM (GMT -6)   
I think most here have the problem of too watery output so that might be why you didn't have any responses. Is the Immodium in a pill form? I have it in capsule form and maybe you would absorb it better that way. I was on Lomotil pill form and it didn't do much, but the capsule form of the Immodium works wonders.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 2/21/2011 12:02 PM (GMT -6)   
It was very watery and they put me on immodium capsules, didn't work so tried the immodium that you put on your tongue and it dissolves. This burnt my mouth and tongue and inflammed gums so stopped that. Now have codeine and co-codamol. Was already taking co-codamol for old neck injury twice a day already so gave me codeine as didn't want me to take any more paracetamol. That has thickened things up but the amount is still the same.

It is like whatever amount of food I eat it multiplies by 5 inside. I could cope with the extra gas from the codeine it is just having to keep emptying the bag hourly that is doing me in.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Trixiemom
Regular Member


Date Joined Nov 2010
Total Posts : 89
   Posted 2/21/2011 12:48 PM (GMT -6)   
I hope you get an answer as mine is thick but my output is i guess average I empty about 4 times during the day and 1 or 2 times at night depending if i ate late...Trixiemom
have loop ileostomy
diagnosed with colon inertia
I love my ileo and life

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/21/2011 1:04 PM (GMT -6)   
It is just so annoying as have had ileo for 19 years and never had this before. Have had periods of D but never the output on this level. Just would really like to get it under control so can get back to work!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

answers4me2
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Date Joined Dec 2008
Total Posts : 1325
   Posted 2/21/2011 8:20 PM (GMT -6)   
Have you tried changing your diet to a low fiber/low residue diet? Because if I eat foods such as bananas, sweet potatoes, high fiber foods, then I have a ton of output. YUCK But, if I eat white foods, like chicken, white bread, white rice, french fries, pasta, etc., then my output is not as much.

Also, baby food bananas thicken and decrease my output, where real bananas thin and increase my output. Weird!

I wish you luck, Tracy

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 2/21/2011 9:44 PM (GMT -6)   
i agree with the bananas and potatoes, its like one banana or one serving of fries turns into 5!!! And with pizza it does that and comes out almost as fast as it goes in!
have you changed your diet recently?
and also they make liquid immodium
maybe if you ate something that thinned it it wouldnt be so much?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/22/2011 10:07 AM (GMT -6)   
I have changed yesterday to a high protein/low residue diet and also bought some protein powder as have lost some weight again in last 10 days. Before that hadn't changed diet and never had problems before even during other flare ups, that is why iot is so odd. Even when I have been on massive doses of steroids and eating 6 large meals a day never had output as much as this.

Then again, the MRI showed the stricture that they operated on 7 years ago is back in same area so maybe that is causing the problem, not sure how but only thing I can think of.

Also started on B12 tablets, bee propolis tablets, probiotoic tablets and de caff tea. Hoping that this and the Humira will settle it down. If not as I have short bowel syndrome it could be that the temporary obstruction I had in May last year (just before problems started) has caused a short cut in what is left of bowel and may mean food replacement instead. Shame as I love my food!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/22/2011 12:41 PM (GMT -6)   
There are a few posters that deal with short bowel syndrome...I am sure they will be along to give advice!

Are you on TPN?
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/22/2011 2:38 PM (GMT -6)   
Immodium also comes in a liquid form....minty green in color and looks like it would be the consistency of Pepto Bismol...maybe that would deliver results faster?
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/22/2011 4:02 PM (GMT -6)   
No I'm not on TPN, my GI is keen to avoid that as it can cause problems and never had an issue before, but was told this could be something have to consider at some point due to lack of bowel.

Post Edited (stripey) : 2/22/2011 3:08:01 PM (GMT-7)


summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 2/22/2011 8:59 PM (GMT -6)   
if you cant find the liquid immodium for adults, they make it for kids too, sometimes its hard to find it for adults.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/23/2011 11:22 AM (GMT -6)   
Had to speak to my GP today anyway and asked her about liquid immodium. She had never heard of it but looked it up and yes we do have it in UK and in available so she has written a prescription for me. I'll give that a go, the codeine is working but don't really want to have to take it constantly just to slow bowel down, only want to have to take it for the neck pain and nerve damage pain. Fingers crossed it doesn't have same reaction as the melting put on the tongue version of immodium.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.
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