Ileostomy surgery set for March 1st

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supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/21/2011 1:02 PM (GMT -6)   
Hello all,
I have posted questions here before asking about ostomies. Well, I have officially set the date to have my diseased colon removed. I pray I have made the right decision. Right after I got off the phone with the nurse, I got a call from a friend who said she talked with someone who had an ileostomy and he told her that I should never get one, especially since I am so young (29yr). Okay, so now I am freaked out that it isn't the right thing to do. Any advice or reassurance that life after an ileostomy isn't horrible is welcomed :) I have never been more scared in my life.. and the surgery is a week away; I can't imagine how I am going to be day of.
Thanks

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/21/2011 2:29 PM (GMT -6)   
     Gotta just love these gloom and doom people rolleyes .  Think to yourself...."How is the quality of my life now?  Do I have to keep running to the bathroom?  Am I in a lot of pain and discomfort?  How about all the drugs I am taking?  What are the long term effects going to have on my body?"  If you answer..."It sucks.  Yes, the port a pot is my closest friend.  I have bleeding and cramping most days.  I am taking tons of pills a day."  Then surgery is your answer.  No one can tell you what to do, this is YOUR decision.
     I suffered with ulcerative proctitis for twelve years.  My husband and daughter were my cheerleaders in addition to several people (suebear always comes to mind) in the forums.  They gave me wonderful support when I made the decision to have the surgery.  If you read my numerous past posts about all the meds I took, the bleeding, the cramping, basically not having much of a life, then you know why I made the decision for surgery.  Scared isn't the word for me pre surgery...I was downright PETRIFIED!  However, I found a great surgeon who is head of colorectal surgery at one of the best hospitals in the nation.  I am no spring chicken, 63 at time of surgery.  My surgeon would not do a j-pouch on me because he considered me high risk.  It was not a walk in the park.....but ooooooo....how wonderful I feel now.  Where I was taking anywhere from 17 - 25 pills daily plus rectal meds...I now only take one pill a day for my blood pressure.  Having an ileo, is not a problem at all.  I wear the same clothes as I wore before surgery.  Basically, I have my life back!!!!
     So don't listen to any ole fuddy duddy.  Sure there are people with problems, but you have to weigh the pros and cons.  To me, the pros far outweighed the cons and I have not one regret.
     God bless and think positive!!!  You will be fine!

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/21/2011 2:53 PM (GMT -6)   
Thanks Christine, it makes me feel a little better reading your post. Yeah, I am still definately petrified. I am going to be asking for relaxing meds before the surgery.. or I may just have a panic attack!
I don't remember what life was like for me before this stupid disease wrecked everything (diagnosed at 16). I wonder what life will be like without taking tons of pills a day? Although I am going to be happy to take pills the day before the surgery. They were going to give me that yucky liquid stuff for the surgery prep, but I asked about pills. Yeah! No yucky liquid to drink! I would pick 30 pills over that stuff any day! It only makes me mad that I have never been offered the pills before; after having seven or more previous colonoscopies (lost count). I am not having a severe flare at the moment (six bathroom trips a day), but I do know it's a matter of time before it gets worse. It's weird though, because my colon feels a little less agitated today, the day I chose to make the appointment for surgery. It always keeps me second guessing myself.

gmark
Regular Member


Date Joined Jan 2011
Total Posts : 55
   Posted 2/21/2011 3:19 PM (GMT -6)   
Supernova, just remind yourself that you will need the surgery someday. It is much better to go into surgery in better health, and of your own choosing, than it ending up being emergency surgery and on deaths door. Recovery can be tough, but I remember once I was back home, feeling in heaven that I finally had a really good nights sleep, the first in years, and no more tons of drugs to take. (which were killing me). I know what you mean about second guessing yourself. I will feel better and think about postponing my j pouch removal surgery. But then I have to remind myself that this pouch is slowly killing me, and will have to come out if I am ever have my life back, and lead a normal life. Best wishes for you and we pray for your speedy recovery.

ring of fire74
Regular Member


Date Joined Oct 2009
Total Posts : 71
   Posted 2/21/2011 3:40 PM (GMT -6)   
I totally agree with christine,dont let one person put you off.
It is a massive decision to make and i swung back n forth loads of times until i decided that enough was enough and took the plunge as my colitis was affecting my everyday life and 3 months on and im so glad i did. The only regret i have is that i should of had it done sooner.
The op itself is no walk in the park but you will feel better almost straight away and now i take no meds at all which is another bonus...Im back running again which is my passion in life and i race(10ks and half marathons) all over the south west of england,i had to stop running for 3months but i have earmarked a race in late march as my comeback.
To me the op has also given me my life back,my 1year old daughter has her daddy back and to me that is all that counts.
Living with a stoma is no where near as bad as i thought it would be,it definately is not all doom and gloom.
I wish you all the best
leyton
Male 36
England
Diagnosed 2007 with moderate UC
2 year remission till June 2009
Colonoscopy Sep 09 showed left sided UC
Since then, continual flares
Medication - aza 100mg, tried 150 but abnormal liver function, asacol, probiotic.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/21/2011 4:08 PM (GMT -6)   
Even though I have had some problems over the 19 years since I first had my ileo at 20 yo and am currently having a few issues, at no time have I ever regretted having it done. If I still had my colon for the past 4 months I would only have seen the inside of the bathroom!

Even as I am currently emptying 20 times a day, CD flare up, it is still not the sudden urgency and pain of before I had the ileo. As soon as I came round from the first surgery I could feel the difference, it was total bliss.

Good luck and best wishes for the 1st.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/21/2011 5:10 PM (GMT -6)   
Hi Supernova!
I was in your shoes a year ago. I was diagnosed with Crohn's when I was 18 and spent 10 years with diarrhea every day...enough!!! Finally, I was having such an awful flare (an entire year on 60mg of steroids), with 20+ bathroom trips a day at the end, that I just had no choice.

Coming on here really helped me though. There are tons of ostomates our age. And anyway, it isn't about age--it's about quality of life! Do you want to live the next 60 years taking that many drugs? Trust me, I haven't regretted this once since I had it done almost a year ago. On the contrary, I am so thankful, every day. I can LIVE now.

It's funny how you get used to being sick all the time so you don't even realize you were living a half-life.

Good luck with your surgery and keep us posted! We're here for you!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 2/21/2011 5:27 PM (GMT -6)   
If you're suffering.. believe me, it's the right thing. I was 20 years old and racing motocross, and wakeboarding every other day before I got my surgery, I am a VERY active 20 years old. The problem wass I had 3, 2 month flares that had me in the hospital losing 55 pounds each time.

The last one was the end of the line for me, went into surgery at 20 years old, woke up from surgery feeling like 8,000 pounds was just released off my shoulders.

Yeah it's something you have to get used to, I had the ostomy for 8 months and was living a completely normal life after about a month out of surgery, going out with my friends, eating whatever I wanted, and working 6 days a week... I just had my j pouch surgery last month and am doing grea. now back at work AGAIN and living a normal life, and ready to get back to motocross very soon.

If you are suffering... the best thing is to get that diseased part of your body OUT!
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/21/2011 5:28 PM (GMT -6)   
Ditto on the advice above. 8 weeks ago for hubby and once you get past that first week of healing after the surgery and you see day by day the improvements you will be amazed. Immediately the difference in the pain is noticed....a different kind of pain from the surgery but that gets better and better where your UC and flaring did not.

I'm sure your friend means well and is afraid for you and wants to be sure you're not making a mistake....but please keep reading the info on the forum here to give you the reassurance and comfort you need from those in the know and who know what we are all talking about.

The most important thing is for each and every one of you suffering that you make the decision on your own, on your own terms when you feel the time is right for you. Hubby wishes he did it sooner but he wasn't ready. When he finally got sick and tired of being sick and tired as he says, then it was the right time.

Good Luck and try not to stress or freak out. Of course when you are up to it - let us know how you're doing after the surgery.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 2/21/2011 7:00 PM (GMT -6)   
You've just made the hardest decision...the rest will be easier!

I was 30 when I had emergency surgery that resulted in a temporary ileostomy. It wasn't a year after the reversal that I elected to have #2. I lived with that ileo for almost 10 years when I decided to make mine permanent. I still had all the issues of my Crohn's during that time, I just wasn't running to the bathroom 100 times a day. #3 is with me forever and I am very thankful!

My quality of life is where it should be and my family isn't suffering along with me anymore!

Most people don't post on sites like this when they are out living life and you never know if the person next to you at any given time has one either...we wear normal clothes, go to the beach, dance at clubs...there's no difference yeah

Talk to your doctor if you need something for the anxiety...you'll be okay and we are here to help with questions!

sending (((HUGS)))
Crohn’s dx 1989
some terrible years before my
temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/21/2011 7:04 PM (GMT -6)   
The same thing happened to me... some friend of a friend with an ieostomy saying "don't let her do it". By that time I was so firm in my decision and actually excited about the surgery that I tried to not let it faze me. I just kept reminding myself how sick I was from UC and from Remicade. I knew surgery was my best option.

Now over three months out, I can honestly say I have no regrets. Everything is better. I can eat almost anything, I have more energy than I have had in years... even being intimate with my hubby feels better without that painful colon. I am 100% happy with the outcome.

Surgery is not easy and it does hurt, but just take it day by day and know that there will be some ups and downs. And unlike UC, the pain goes away! Even with some abdominal incision complications that I am still healing from, I still feel so much better than with UC. I saw a huge improvement in my energy level, ability to eat a variety of foods and ability to manage my appliance a little after the two month mark. Before that, things were a little overwhelming at times, and I did have a period of time where I grieved the loss of my colon. I let myself be sad and cried as much as I had to and after a while these thoughts started to melt away. I am back to work now and am already forgetting I have the appliance sometimes. Life is starting to feel wonderfully normal again. I was pretty preoccupied with healing for a while, but now all my interests are coming back. I want to cook and create art and do things with friends again. It is amazing!

You may surprise yourself and find yourself more relaxed before the surgery than you anticipate. I thought I would be a wreck, but I slept really well the night before, and on the early morning drive to the hospital felt completely at peace with the decision.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/21/2011 7:33 PM (GMT -6)   
I was very freaked out before surgery. My bp was very high because I was so nervous. It is super low now. The morning of the surgery I, too, was overcome with a peaceful feeling. I woke up from surgery very sick from the anesthesia, but very happy it was over. I thought I would never get used to my appliance, in fact I thought those that said they don't even notice it were lying through their teeth, lol. Anyway, I am now at 6 weeks post op and feel great and truly forget about it.

Why is that person saying not to get it?

Sending you hugs. It will be okay. For me, it was so worth it!
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/21/2011 7:44 PM (GMT -6)   
Thank you so much for the posts. You have no idea how hearing from you all is so helpful to me. It is so wonderful to have a site like this full of caring, compassionate people like yourselves to talk to. I honestly don't know what I would have done without people as supportive and reassuring like all of you. I have my family, but they have the outside perspective. It is so wonderful to have people to talk to who have been through life with IBD and surgerical treatment. I have been reading the forums quite often and it helps me to keep a postive view of my life with this disease and in the near future.. without the disease. My colon does not make me who I am, and neither will having an ileostomy. I will definately keep you all posted as to how the surgery went and how I am recovering. You all have been such an inspiration to me, and I look forward to sharing my experience and helping others in the future.:)

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/21/2011 8:08 PM (GMT -6)   
     Oh....I forgot to add...my surgeon didn't require me taking a prep before my operation.  Even his assistant was stunned.  All he told me to do was adhere to a clear liquid diet the day before surgery!!!  For good measure, I stuck to a clear liquid diet for two days before surgery..lol.  No problems at all!!!!  I was soooo glad not to have to take a prep yeah .

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/21/2011 8:33 PM (GMT -6)   
Christine- That's so strange that you didn't have to do a prep. Gosh did you get lucky. I unfortunately do have to do the prep, but on a postive note.. it will be my last!! :)

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/21/2011 10:56 PM (GMT -6)   
i was 29 when i had surgery too! and i was worried and scared and came up with some of the dumbest reasons in the world to not go through with surgery! and you will probably come up with some weird stuff between now and then, just keep remembering why you are doing it! Find something that you can't do now that is important to you, that you will be able to do after surgery and keep focusing on that. For me, it's the crayon drawings on my shower wall that my then two year old son put there while he was having to play in the bathroom all the time while i was too sick. Kept me going, and keeps me going now, in the rare occasion that i think, ugh what the heck!!! In four years i have probably thought that, tops, 10 times.
and i promise it isn't horrible. I don't know what kind of stuff you like to do, but i can tell you what i like to do that i can with my ileo, going anywhere i want, clubs, cruises, shopping, out to eat, eating anything i want, wearing anything i want (except a bikini, but noone wants to see that anyway!) I now have enough energy to stay outside and clean up my yard. i can hang out in my pool for hours and not worry about having to run to the bathroom, i can use my hottub. i don't know if it's important to you, but alcohol is still ok, there really isn't anything you can't do. the only major thing that annoys me, is that i had to swtich to putting stuff in my left pocket instead of my right! because i'm bad to put anything and everything in my pockets and after i stuck a pair of earrings in my pocket right next to my bag, i decided that was bad! It's not a huge thing and i'm used to it now, it was just the only thing that really annoyed me. Now what a silly little thing, lol.
what im trying to tell you with that is, that's the only thing i can find that i don't like about having an ileo, out of all the things in my life, thats the only thing it affected!
about your prep, i've done those pills, and while they are better, they are not good. they are really salty or something, and don't take them with lemonade, big mistake on my part, lol. Just keep remembering when you are having to take them that it's the LAST time, ever!!!
good luck and ask anything you want!
Oh and very important, when you go to get marked, be sure you wear your normal clothes, so that you will have good placement, that's very important
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/22/2011 1:07 AM (GMT -6)   
My husband had to do a prep also..but the fact it was his last one was a good thing. It was a tough prep and the last two 8 ounce glasses were an effort.

If he didn't have this surgery his local GI had told him last June that she honestly felt he needed colonoscopies twice a year to try to keep ahead of a cancer situation that she was most concerned about becoming an eventual situation. Once a year was tough enough...twice a year wasn't happening...lol. The cancer thing really resonated with him and he felt it was finally time to stop putting off the inevitable.

Just keep telling yourself it is the last one and no more after that!!!
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/22/2011 11:09 AM (GMT -6)   
     I thought it very odd that I didn't have to do a prep.  As a matter of fact, my surgeon's assistant told me I had to take the Miralax prep.  When I went in for my pre-op visit and blood work, EKG, etc (all was done four days prior to surgery), I just happened to ask my surgeon what prep he preferred me to take.  When he said...no prep, just clear liquid diet...I almost fainted!  But it was a "good" almost fainting feeling.  His assistant was there too and looked perplexed.  It was kinda scary.  I remember thinking.."geez, I hope this guy knows what he is talking about."  However, I had NO problems after surgery except when one of the resident's told me I could eat.  My body wasn't quite ready for that, especially the lemon cake...hehehe. devil   
     My surgeon also didn't sew my anus closed.  Guess he has his own methods.  I go for another follow up visit on the 8th of March.  My bone specialist (I have bad osteoporosis from years of prednisone use and three back fractures), wants me to have the Reclast injections.  I am going to run that by my surgeon and get his opinion.  I certainly don't want to suffer any more fractures.

bellypooper
Regular Member


Date Joined Feb 2011
Total Posts : 20
   Posted 2/22/2011 12:16 PM (GMT -6)   
having my ilio is the best thing i ever did.not gonna say it was easy but once you get the right appliance, it's not that bad.have you talked to a stoma nurse? they can help in finding right system for you. also contact all the suppliers they will send you free samples.
warm thoughts from jan and gizmo [stoma]
think positive, live life to the fullest!!!

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/22/2011 12:33 PM (GMT -6)   
Christine- Glad you are doing well after surgery, prep or no prep :) I know what you mean about the prednisone; I don't have osteoporosis yet, but I was scanned this year and I have thinning of the bones in my right hip. That is yet another plus of getting the ostomy; I would like to be able to walk down the street when I'm 80 and not break a bone. Reclast injections.. that sounds painful. I thought they had some medication that can help rebuild bone. I wish you luck with everything.
Belly pooper- Haha, Your screen name is great. When I was hospitalized back in Oct. I wanted my colon removed and spoke with the stoma nurse. But then I backed out of the surgery when I found out I had a cdiff infection. Thought I could go on the antibiotics and be fine.. hmm. didn't work out that way. She didn't really tell me which appliance would work best for me. I am supposed to meet with a stoma nurse again the morning of the surgery to pick the spot. I hope I will be able to concentrate enough to listen to her the day of the surgery. And I will definately get some samples, thanks!
29 year old female
Ulcerative colitis- 13 years
Current meds- sulfasalzine
Meds tried- suppositories, enemas, asacol, prednisone, lialda, immuran, sulfa, remicade
End ileostomy surgery- March 1st

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/22/2011 1:31 PM (GMT -6)   
I am surprised you aren't getting your spot marked until the morning of surgery. Maybe that is normal, but my surgeon had me meet the stoma nurse and have it marked before I even scheduled my surgery date. I think he wanted me to have all the information and know exactly what I was getting into to make sure I had no second thoughts. Of course, that appointment only made me more excited about it:) My surgery ended up being a little over a week later, so I used that time to tape an appliance on and try on all my clothes. I saw right away that it was in a great location.

I hope you will have time that morning to get marked in your regular clothes. Someone had warned me to never let them mark your stoma spot when you are in a hospital gown, as you want to make sure it works for your style of pants and doesn't end up on your belt line. I even brought my climbing harness and backpack to my meeting. I felt like a goofball walking into the office with my pack, but these activities were so important to me that I wanted to make sure I had a good location for those things as well. The nurse said that was a first, but thought it was a great idea. I love the spot I ended up with and have not found one thing (except my bikini) that I can't wear.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 2/22/2011 2:14 PM (GMT -6)   
ask them to mark your spot earlier, even ask them to let you wear a bag for a while to make sure its ina good spot.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 2/22/2011 6:42 PM (GMT -6)   
I didnt' have to do a prep either. I was so sick that I'd LONG since gotten rid of anything in me. I was on a clear liquid diet the day before...but I had been on one for like a week before that anyway.
 
I had my stoma site marked the day I had my surgery while wearing a gown. The nurse had me sit up so she could see where I had skin folds when I sat. (not that I had any, as I was like skin and bones...) That was good. My stoma could be a bit lower but I think if it was it would be on a fold, so I'm ok with it :)

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 2/22/2011 7:09 PM (GMT -6)   
Mine stoma site was also marked on the morning of the surgery but it did involve a long discussion and also moving around and sitting/standing up and bending over to ensure it was in right place. I am high waisted which could have caused problems if they weren't careful as waistbands don't take that into account and so can end up being sitting lower than my waist actually is, but thanks to surgeon careful checking it was sited perfectly.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

susans53
Regular Member


Date Joined Jun 2010
Total Posts : 318
   Posted 2/22/2011 10:37 PM (GMT -6)   
I was actually happy and not afraid of having the surgery. It was everyone else around me that was negative. Even with all my problems it was the best thing I ever did for myself.
Good luck with your upcoming surgery.
UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000, Emergency j-pouch surgery
Multiple complications, J-pouch redo- July 3,  2001.
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Gall bladder out-Oct 1997
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?
Adhesions

Post Edited (susans53) : 2/22/2011 8:40:58 PM (GMT-7)

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