Yes! One has to heal emotionally too. I was sooo excited for my surgery and I still cried a lot afterwards. I know it worried my husband and mom. Still, those tears had to come out. I had to have time to grieve the loss of my colon. And getting used to the pouch is hard. The first month or so, my stoma always decided to output massive amounts of liquid just as I was changing my appliance. It was so frustrating and I cried, thinking it would always be that way. But, the body adapts and it does get better. And the emotional side does get better too. Slowly, as the pain of surgery dissipated, the fatigue lost its hold, and I started to realize how much better I felt without my diseased colon, those sad moments started to fade.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010