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polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 2/22/2011 2:05 PM (GMT -6)   
I read your post about the short time you get with J's pouch. You have probably posted what you do when changing, but tell us again.
 
Dan

Collicat
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Date Joined May 2009
Total Posts : 827
   Posted 2/22/2011 4:47 PM (GMT -6)   
A little humour Dan...

I read this as if you were talking about a J pouch instead of "J's pouch" and I was thinking that "Dan must have enjoyed himself a few cocktails this afternoon"....ha ha ....it appears that it is I that have the problem. lol

Cathy
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/22/2011 9:12 PM (GMT -6)   
HAHA that is a funny about the J-pouch.. tongue
Dan,
Over the past 2 1/2 years we have tried several things as well as different appliances, pastes etc. After pulling my hair out trying different things I have conceded that "it is what it is". Thank goodness we seldom have any skin issues and when we do, they are very short lived (usually have things back to normal within a couple days). What we (he has a caregiver during the day while I work) do is very basic. We use a one piece Coloplast pouch, probably one of the most basic ones. This is the one that insurance will allow 30 per month since we get short wear time. We are only allowed 5 Eakin Seals per month and I purchase add'l over the internet (those things are pricey). We actually cut into 1/3 and use 1/3 each time we apply the pouch. I tried using a whole one and had no more success than using 1/3 of one. I currently use no skin prep or anything. Wash him with mild soap and water and dry skin well. I also purchase the Osteo EZ-vents and put those on his pouch as well. He is VERY gassy which I am sure contributes to why his pouch comes off at night. As I previously stated he is incotinent so he wears a diaper. I also put a pull up under his diaper with the pouch on top of the pull up to try to protect the pouch from as much urine. I used to set my alarm and get up in the night to vent and empty, but I work full time and it was really getting hard on me.
Sorry for getting so long winded, but you asked  :-) Got any suggestions?

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 2/23/2011 2:49 PM (GMT -6)   
Mom
Soap and water? What kind of soap? Most soaps leave a residue on the skin. I use no soap but have heard that Ivory leaves no residue. Why don't you try clean up with just water. I use 1/4 of a full size paper towel (or 1/2 of a select-a-size). Just wet the paper towel with warm water, no soap. If you use any powders or skin barriers, try without. All that stuff reduces wear time because the wafer adhesive can't stick as well. I do coat the wafer of my skin with a product called Friars Balsam Compound Benzoin Tincture. When it dries it is sticky and will help heal any open skin areas. IT DOES BURN ON open SKIN, but not for long. Fairly expensive, $35 for 100 ml. but goes a long way. My insurance does not cover it, There is a similar product called Tincture of Benzoin. My insurance coves it. It makes a sticky seal. cover the  entire area. I believe the difference is that Friars has a healing effect that Tincture of Benzoin does not. Also, is his stoma retracted or does it stick out? If it is not retracted you should not need the ring barrier. All that extra stuff leaves more places for adhesive failure. I hope some of my suggestions help.
 
Dan

J's Mom
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Date Joined Oct 2008
Total Posts : 109
   Posted 2/23/2011 4:49 PM (GMT -6)   
Thanks Dan. Actually only time we use soap is in the shower. When just changing without a shower we just use warm water. He has a beautiful stoma smilewinkgrin at least that is what all the medical folks say when they see it. It is not retracted.  We use NOTHING on his skin other than 1/3 of an Eakin Seal. Maybe he doesn't need it, but when we started using it we did notice getting an occasional 2 or 3 days of wear time. I might have to get some of the tincture stuff and try it. I think if he wasn't so gassy and incotinent it would help tremendously. Thanks for the suggestions we are always willing to try anything.

pswift520
Regular Member


Date Joined Sep 2010
Total Posts : 91
   Posted 2/24/2011 8:18 PM (GMT -6)   
HAve you eve tried the adapt barrier rings from hollister. I use them instead of eakin seals and I like them much better. Also have you tried the sure seals? I have just recently gotten some. So far so good. Good luck to you all.

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/25/2011 5:33 AM (GMT -6)   
pswift, we have not tried the adapt barrier rings..we will do that. I requested the free samples of sure seals, have not got them yet. Thanks for the suggestions.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/25/2011 8:29 PM (GMT -6)   
Mom
Are the pouches you use pre-cut or do you cut to fit the stoma? Do they have a tape border? When the wafer leaks s it susally all around or one place? Just brainstorming.

Dan

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/25/2011 8:59 PM (GMT -6)   
Dan, we cut to fit. Yes they have a tape border. The leaks are not always in the same spot. It does seem to happen more often toward his midline or toward the bottom. Sometimes in just a small area, sometimes major blowouts. Thanks for you concern and help.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/25/2011 9:02 PM (GMT -6)   
Mom
I'm sure you make it tight around the stoma.
Have you thought about trying the Friars I mentioned?

Dan

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/26/2011 11:50 AM (GMT -6)   
Yep we cut pretty close. I have not had a chance to get any Friars yet, but it is on my list of "things to do". Thanks again for your suggestions. Will keep you posted.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 2/26/2011 12:23 PM (GMT -6)   
Mom
The phone number to Rougier is 866-470-6886. Website is www.rougier.com

Dan

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/26/2011 12:56 PM (GMT -6)   
Thanks

Another UC wife
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Date Joined Jun 2007
Total Posts : 2111
   Posted 2/26/2011 1:13 PM (GMT -6)   
Do you think you need to apply some paste to the underside of the flange before you put it on? 
 
Hubby has a crease and was told by the Ostomy nurse to put paste (in his case) at the 3 o'clock and 9'oclock positions.  He does first apply an Eakin Seal and has used 2 samples of the Adapt Seals and I am going to order more of those as they seem to leave less residue behind to remove than the Eakin ones for some reason.

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/26/2011 9:18 PM (GMT -6)   
I have tried paste in the past. Didn't really seem to help. I might check with our supplier this month when I place J's order and see about getting some adapt seals instead of eakin seals to try. I really think the main problem is that he is so gassy and also his output is high at night. Many days I really don't have to empty his pouch until late afternoon/early evening (needs burped many, many times before that though). I can't adjust his eating habits, cause that is the only thing in life that gets J upset is when he doesn't get to eat. He loves to eat and is a big eater even though he only weighs 85lbs.
I appreciate all the suggestions. I have tried many many things and willing to keep on trying:) Never know when we might get the right combination.
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