Colonic inertia

Colonic inertia
1
Cleveland Clinic GI Doctors for colonic inertia - 100.0%
0
Problems after colectomy - 0.0%

 
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by/his/grace
New Member


Date Joined May 2010
Total Posts : 4
   Posted 2/23/2011 1:39 PM (GMT -6)   
This is my first time writing in any forum so please be patient.  I had a colectomy & anastomosis back in 2006 for severe colonic inertia.  Felt better for about 3 to 4 months and I have been sick ever since.  I still deal with the colonic inertia even though they removed 7 feet of my bowel.  Three of my large colon and 4 of my small.  I asked the surgeon why so much and he told me that is what looked the best.  Ridiculous!!  Maybe I am the one wrong here.  I am lost and scared.  I was seeing a doctor at Johns Hopkins they have a motility department but very few people seem to know what they are doing.  Hopkins seems to be the experts at Crohn's so they say, that may be debatible.  I have been researching the cleveland clinic.  I would really appreciate to hear from anyone who has gone to the clinic for colonic inertia.  I also have garaperisis, and a collapsed duodedum bulb.  Help does anyone know a good doctor at cleveland we will be traveling from PA.

Post Edited (by/his/grace) : 2/23/2011 1:01:55 PM (GMT-7)


J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 2/23/2011 4:57 PM (GMT -6)   
We are headed to the Cleveland Clinic for the first time on the 3/3 as well. Want a second opinion before having son's rectum removed. He already had total colectomy in 2009 for UC. Everyone on here praises CC. We are seeing a colorectal surgeon..Dr Strong. Good luck.

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 2/23/2011 5:46 PM (GMT -6)   
you really can't go wrong with GI problems at the CC. It's considered first or second best in the country by medical experts for GI problems. I have two friends that had surgery there, one to have a section of his colon removed from diverticulitis, and another who had rectal cancer and had her rectum removed. The surgeons there really know their stuff. I personally haven't been there; i'm having jpouch surgery done by Jan Rafferty at University Hospital. She is in Cincinnati where I currently live and is one of the best on her field. Her practice might be another option for you. Martha Ferguson is out of the UC Physicians as well and is also highly recommended by the GI docs I've seen.
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery scheduled 3/21/11

by/his/grace
New Member


Date Joined May 2010
Total Posts : 4
   Posted 2/28/2011 3:58 PM (GMT -6)   
Dear J's Mom, I will pray for your son if that's ok. Colonic inertia or any digestive disease is so hard to deal with. I am 51 and it has been so hard. I can't imagine going through this as a young person. From all the postings I have read throughout this site. The Cleveland Clinic has a reputation second to none, so I pray you get one of those fantastic doctors for your son. I did read somewhere else on this site about Dr. Strong and it was good. If you haven't I would search this site more. Look under Chron's disease. There are many postings there. My son has a friend at college that has chron's and she knows quite a few young people and older people who have had to have their rectums removed and went onto have ileostomies, and they all got their lives back. No more pain, pushing, bleeding. It was a new day, and a new beginning. God Bless
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