Coughing and receiving Remicade?

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Regular Member

Date Joined May 2006
Total Posts : 37
   Posted 2/24/2011 1:03 AM (GMT -6)   
Hi! It has been a long time since I last posted.  I am a Crohnie for close to 20 years.  I had an emergency ostomy in 2006 and was put on Remicade since Nov 2009.  Everything was fine until my last infusion in December.  I broke out with a hive after 30 minutes on IV.  The nurses had to stop IV and consulted the doctor.   They put in Benedryl (IV) then restarted Remicade in a much slower rate.  The infusion lasted for over 7 hours vs 2 hr in the past.  My throat usually feels a little funny every time after Remicade but it usually lasted only for a week or two.  I felt terrible during the entire time because I was in a really groggy state.  Another thing is, things have been complicated with a nasty cold afterwards (I even got infected with pink eyes!  First time in my life!) which lasted for close to a month.  Now the cold is mostly gone but I still cough a little at night.  My next infusion is coming up and I am wondering if it is o.k. to go for it?  My doc said that I would have to have Benedryl (via IV) before Remicade from now on which is something I would rather not but I have no choice.  Anyway, I am quite alarmed by my last infusion.  Can anyone please share your experience and tell me if it is o.k. to go ahead with it?
Another thing is, the nurses almost always have problem getting the needle in for the IV.  There will be at least 3 nurses poking before they get it in and takes an hour or more before they can really put the drug through.  I get really traumatized and I actually got phlefitis (inflammation of the vein) after my December infusion which I am still feeling.  Do you know if I can request on getting certain nurses to start the IV? I tried but I was told that they were busy.  (I do know the ones who are good at finding my veins), 
Thanks for your help.

Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 2/24/2011 12:42 PM (GMT -6)   
     My heart goes out to you!!!  Been in your shoes and it is NOT pleasant.  I have horrible veins too.  As a matter of fact, when I was hospitalized back in 08 for UP, they had to put a PICC line in.  I received three infusions of Remicade before building up antibodies to it.  My final infusion was a horror shocked .  The nurse stuck me no less than seven times before finding a vein.  Then it collapsed.  UGH!!!  Another four sticks before finding another spot.  All for naught because Remicade failed anyways, so did Humira which is a snap to receive...self injections.
     I always had a Benedryl shot before Remicade.  They first gave me 50 mgm which sent me into lala land and I did not like that feeling.  At my second infusion I requested only 25 mgm and it was much better. all means request a nurse who can find your veins.  Don't be embarrassed to do so.  With me.....they have to be expert.  Wish I could do it myself because I worked as a lab tech for over twenty years and could do it

Regular Member

Date Joined May 2006
Total Posts : 37
   Posted 2/24/2011 7:33 PM (GMT -6)   
Thanks so much for sharing your experience.  Really apprecaite it.  Sometimes I wonder if there is something wrong with me.  smhair The disease itself and everythingelse that comes with it.  I am sorry to hear about your experience though.  The worse I had was  6 jabs.   My, it must be hard for you being a lab tech yourself.   I will ask for the nurse who did it without problem before when I go in.  Now I just hope that things will go well without complications.  I wonder if I can ask for 25mm Benedryl instead or if I will have to get the doc's authorization.  I will ask anyway because it really was not a good experience. 
I am glad that Himura works for you.  Maybe I should look into it.  I guess I am kind of afraid of injecting myself but I will do it if that's what it takes to stay healthy.
Thanks again for writing.
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