surgery went well

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blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 2/26/2011 10:10 AM (GMT -6)   
Since I was posting about my surgery on a few threads, I thought I'd start a new one. I had surgery on Thurs Feb 24th. It took ten hours! It was laparoscopic, and my surgeon said a bit tedious, as my rectum was more inflamed than she realized, and she had to be careful to work around my vagina etc.

Everyone says I'm doing really well. I feel kind of helpless, with not being able to reach things etc.

I'm not in that much pain. I had the epidural, but they had to take it out the next day because it made my legs so numb that I could barely walk. Switched to a pain pump, and today they are transitioning me to oral meds. It hurts a lot if I get at the abs or the butt wound, but that's usually just a few seconds in passing.

A friend just came in, so more later......

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 2/26/2011 12:13 PM (GMT -6)   
glad it's behind you now. it'll get better every day from now on. keeping my fingers crossed for you.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/26/2011 12:24 PM (GMT -6)   
So glad that everything went well! :) I am having my surgery this Tuesday, and it is reassuring to hear that everything went well with you. Pray you have a quick, speedy recovery.
29 year old female
Ulcerative colitis- 13 years
Current meds- sulfasalzine
Meds tried- suppositories, enemas, asacol, prednisone, lialda, immuran, sulfa, remicade
End ileostomy surgery- March 1st

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/26/2011 1:15 PM (GMT -6)   
Thanks so much for checking in...was wondering about ya! Just make sure they give you enough for your pain...makes no sense to me at all to be in a hospital in pain. You don't want to be comatose either...lol..but kept comfortable is not a lot to ask when in the hospital.

Take care
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Brannah
Regular Member


Date Joined Oct 2006
Total Posts : 109
   Posted 2/26/2011 3:00 PM (GMT -6)   
I'm glad everything went well for you Blueglass. Hoping you have a very speedy recovery. :-)

Christine1946
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Date Joined Aug 2008
Total Posts : 5958
   Posted 2/26/2011 3:33 PM (GMT -6)   
     Glad to hear everything went well.  The worse is behind you now (no pun intended).   Remember,  only attempt to eat when you feel you are ready.  Don't make the same mistake I did, and chew, chew CHEW!!!

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 2/26/2011 7:38 PM (GMT -6)   
Yay, blueglass!
I felt the same way you do after surgery--not in as much pain as I expected, but annoyed at how lame i was, lol!

It will get better, and hopefully quickly. If you get up and walk around the hosp floor as much as possible and CHEW YOUR FOOD WELL, you will be great before you know it!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/27/2011 11:31 AM (GMT -6)   
So glad to hear your surgery went well and that your pain isn't too bad. I can remember that my ab muscles were the most sore part. I wanted to roll over in bed one night and it hurt too bad and I had to ask the nurse for help. I hated feeling so helpless and lame, but I realized that the nurses were there to help me and I shouldn't be so silly about asking for assistance.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 2/27/2011 12:59 PM (GMT -6)   
So glad it went well for you. I hope your recovery is speedy! :-)
UC dx 2/08
Former treatment:

Asacol, Rowasa, Prednisone, Canasa, Cortenema

Current treatment:

Lialda (4 pills 1xday), Prednisone, Rowasa nightly, B-12 Supplement

Unable to stay off Prednisone for more than 4-6 weeks without flare up. Looking at other options.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 2/27/2011 11:58 PM (GMT -6)   
Thanks, great to read all your supportive responses! I have been very internal, not wanting to talk on the phone or get on the computer. But I am doing well, everyone keeps saying I'm doing great (I feel like, I was doing much better last week, before the surgery....). I am on oral pain meds, the pain isn't so bad, doesn't really get above a 4. I've been walking around some -- three laps around the nurses' station, maybe four times today. I started on crackers and toast (and yes, chewed well!) today, even started eating the jello, which I haven't had since I was 12 or so (it's way easier to eat in bed than the broths and juices....)

The weekend doc was talking about letting me go home tomorrow, although I don't feel quite ready; I think Tues might be better. I just got my catheter taken out, that's a big relief.

One thing that was a surprise to me (even though others told me about it) was all the tubes -- catheter for urine, something called a JP for drainage (looks like a plastic hand grenade shaped container that fills with Hawaiin punch), and of course the ostomy bag. But starting this way, the ostomy bag just feels like one component of a whole new plumbing system..... and actually in some ways the easiest one to deal with. I definitely need to refine my technique, but I have emptied it a few times myself. What comes out now is green slime.... green is bile, not sure why it's so slimy, but it's harder to clean up than what I was expecting.

I did wake up a few times the first two nights and think, "I did this," with a big smile... was having dreams that I forgot to do the prep or showed up in the wrong place and the surgery was cancelled.... it does feel kind of huge, and just wrapping my mind around it.... course, I am also on pain meds that make the mind wrap in rather odd ways.

I had to get help every time I turned over the first night.... my legs were dead weight....

Supernova, wishing you luck with your upcoming surgery!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 2/28/2011 2:14 AM (GMT -6)   
so glad you're doing well. yeah all those tubes are a real pain, but it'll all be over soon. but isn't it so much better with the bag? your waking up at night and smiling all the way to the b/r proves it :) i was happy with it right from the start and never regreted having it, thanks to my ileostomy i feel the best i've felt in so many yrs. taking care of it is really no big deal and gets really easy with time.

it'll take time, but you will soon feel 100% better!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 2/28/2011 5:45 AM (GMT -6)   
great to hear you are through the surgery & on the road back to a nomal life. i had laparoscopic surgery too & about 2/3 days after I had a dull but pronounced sore pain in my shoudlers for a day or two, my nurse said it was caused by the pressure of gas pumped in to my abdomen so that the surgeon can do his work. ?? did you experience this

i was told that at the 6 week mark after the op a person feels a real sense of gettin over the whole thing, i did find this true but in the days just after the op, six weeks felt like a lifetime away-- luckily time marches on at its own pace and this milestone does come around - you really do have to be a patient patient

i found it very strange, and still do, that after 20 yrs of UC being the bane of my life, i entered hospital on a wednesday May 12, 2010 & since the op on the day after Thurs May 13, I have never had any of the sensations of UC since - i still find it hard to believe.

anyway, wishing you speedy & continues recovery
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 2/28/2011 6:26 AM (GMT -6)   
I did have the shoulder issue, and I thought it was so bizarre when the nurse said the shoulder pain was because of laparascopic surgery. I guess the air they pump in settles in the shoulders. That seems to be gone now, though, and it didn't hurt that much (I had thought it was just from lying down funny on it)

It is weird to me to not have the anal muscles down there... I keep thinking I need to pass gas or something, and the mechanisms aren't there.... it has been amazing though to interrupt my panic when my roommate is in the bathroom..... I can wait. I can wait! Wow, I can really wait, it's no big deal!

We are looking at me going home tomorrow. They might even let me go today, but that feels premature. My team at home would like to know that I can handle more food, and I want to meet w/the stoma nurse again today. I am just getting it that I will be weak and have some pain at home.... I mean, I knew that, but it is going to take a while.

It is really nice to have the catheter out, although I feel a bit numb when peeing .... nurse said that's normal. I seem to have full control.... but doesn't feel quite right....

So, that's the scoop this morning..... thanks.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 2/28/2011 7:39 AM (GMT -6)   
     Oddly, what stands out in my mind are the little purple dots on my legs.  It was from the heparin shots but I thought I contracted some weird disease....lol. Never had heparin before.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 2/28/2011 7:45 AM (GMT -6)   
Yes, I'm getting heparin twice a day .... my roommate called it the "bee sting," but it hasn't been that bad for me.... it will be interesting to see what stands out in the long run for me....

I was just blown away by how nice everyone was the day of the surgery, though. I mean, I know it's in the medical people's best interest if the patient is more at ease, but I felt like they went out of their way to make things less stressful for me, just kept feeling like there really is so much kindness in the world. I even had a random nurse who was in the hall in the surgical floor say welcome to me, as they wheeled me by. It was so scary to be that vulnerable, and people here made it OK.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 2/28/2011 8:22 AM (GMT -6)   
Yes hubby's shoulder really bothered him a lot after surgery too. I guess the way you are strapped down in surgery for all those hours.

While it is nice to be a cooperative patient and not have many complaints just be sure you are not released too soon if you have justifiable reason(s) for needing another day or two. You definitely want to be released with proper pain management. If you don't need it great...but if you do you want to stay ahead of it for those first few days.

And yes isn't it absolutely wonderful to no longer have that urgent panicky feeling. Definitely a lifestyle change nobody really wants but the trade off overall makes it far easier to accept.

Thanks for the updates and so happy you are doing so well already.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

supernova
Regular Member


Date Joined Jul 2006
Total Posts : 69
   Posted 2/28/2011 9:19 AM (GMT -6)   
blueglass- I am so happy that you are doing well. Just wondering, what was the hardest thing for you to handle so far.. emotional, physical?Can't say I'm not freaking out right now, as my surgery is tomorrow. Much thanks for the wish of luck.
29 year old female
Ulcerative colitis- 13 years
Current meds- sulfasalzine
Meds tried- suppositories, enemas, asacol, prednisone, lialda, immuran, sulfa, remicade
End ileostomy surgery- March 1st

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 2/28/2011 10:12 AM (GMT -6)   
All the tubes are pretty annoying. I was so glad to get the catheter out and I had the same funky feeling peeing for about a day, but it went away. I had the JP drain still for a little while at home too. I got so sick of it dangling there. You are correct that the ostomy pouch is the easiest to deal with. It takes a little while to get the hang of emptying it, and you will definitely see your output change. I remember panicking when I saw bright red output one morning until one of the doctors asked me with a smile if I had red Jello. Yep- that was it:)

I was also amazed at how nice everyone was too. My anesthesiologist even came up to visit me and say hello about two days after the operation. I wasn't expecting that at all. And my surgeon was wonderful. He checked on me a couple of times a day, called when he couldn't see me in person and continued to check in with me by phone once I went home. I really lucked out in getting a surgeon who was both skilled and very kind and compassionate. My GI definitely knew what she was talking about when she said she was going to refer me to the best! And the nursing staff was so caring too. I have had to go back to the hospital four more times since surgery (fortunately for pretty minor complications) and the nurses have all remembered me and have been so wonderful. I am so thankful for the care of the entire medical team.

I found that I needed a lot of quiet time to process things too and didn't spend much time on computer. I had some friends want to visit and a few times I said no. I just felt the need to be alone sometimes, or at least just with my hubby.

I am glad you are starting to feel better. Remember that there will be lots of ups and downs, but pay attention to the general trend in improvement. Heck, I am about four months out and I still have a few issues, but I feel so much better and have a strong sense that my body is not wasting energy on my sick colon. You will feel much better once you get home too, but don't rush it if you feel like staying in the hospital longer. That was another thing I liked about my hospital experience. I never felt rushed to get out of there. They always said I could head home on a certain day, but that it was up to me if I wasn't feeling ready. I had surgery bright and early on a Monday and got out of the hospital the following Friday evening.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

Post Edited (Blueheron) : 2/28/2011 9:15:07 AM (GMT-7)


Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 2/28/2011 11:42 AM (GMT -6)   
Glad you are doing so well. I forgot all about the shots...I was so bruised when I got home.

I agree, about two days before six weeks I said I feel normal again.

Take it easy and don't do too much when you get home.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 2/28/2011 11:42 AM (GMT -6)   
Glad you are doing so well. I forgot all about the shots...I was so bruised when I got home.

I agree, about two days before six weeks I said I feel normal again.

Take it easy and don't do too much when you get home.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 2/28/2011 6:07 PM (GMT -6)   
I saw my surgeon today, and she thought everything looked great. She took out the JP drain thing, had no idea that there was a foot or so of tube in me.... weird feeling, but nice to have it out. My IV died too, and wasn't replaced, so it's ostomy bag only. I feel good about going home tomorrow and not rushed. I can walk around a lot, and I'd say my pain only goes up to a 4, when I haven't had the meds in a while. Mostly it's at 0 or 1.

Supernova, good question .... what is the hardest so far? Physically I think it might be the nausea -- comes on very quickly, but then the drugs take care of it, and it was mostly in the first few days. The helplessness was really hard too -- feeling like I couldn't turn off a beeping alarm or roll over myself etc..... but that is much better already too (and was partly due to the epidural that didn't work quite right).

The loss of my anus is still weird for me. There's no muscle there to flex in and out, feels like a strange change, and coupled with the weird feelings from the catheter just is strange.... the wounds do hurt a lot if I move wrong -- figuring out how to get in and out of bed has been interesting (I am doing something where I go down on one knee first and then sort of roll over)

I do want to say that things have changed so much, so quickly..... I really felt like crap coming out of the anesthesia, and I'm much better now.

OK, so there are the negatives, but I'd say pay even more attention to all the folks who have been done longer -- they remind us of the prize. Not sure whether you'll get this in time, but I'll be thinking of you tomorrow.... hope it goes well; please let us know when you're up to it.

CrohnieCJ
Regular Member


Date Joined Jan 2011
Total Posts : 423
   Posted 2/28/2011 9:37 PM (GMT -6)   
 
This is the first chance I have had to get back to the board.   So glad to hear that things went well.   My surgery will be open, as my surgeon doesn't do Laproscopic.  But, that is OK.  He removed 10 inches of my colon last June and I got along fine.  Guess this will show him I am determined to have the surgery since I am willing to do it so soon after the last one.  I have an appt with him next week.
 
I do remember the Heparin and my epidural kept my right leg numb high up, so I made them put it there.  Once, they removed the epidural, I was on my own--OUCH !!!
 
I will certainly be looking to all of you who have gone before me to help me through my surgery.
 
Again, I am so happy that things went well and you are on your way home and on your way to a wonderful new life :)
 
 

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 2/28/2011 11:32 PM (GMT -6)   
ChronieCJ good luck w/your surgery, when is it?

I'm having a bit of a setback now, just started having a lot of pain around the stoma site..... more like what i was expecting from what people described than what I've had in the last 4 days.... I took more meds, and they are starting to kick in.... the resident poked around and then said it's probably because today was my first day with real food, and the intestine is just getting going again.... probably won't change my going home tomorrow etc....

Did anyone else have pain kick in w/the start of soft foods? Course, I'm still on pred, and so was quite hungry after about six days w/out non-liquid food....

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 3/1/2011 12:00 AM (GMT -6)   
I have had some pains around my stoma on occasion, and they seem to go away with no incidence. Also, I did have some harsh gas pains once I started eating real food. These started to go away around week 6. I had a lot of painful muscle spasms in the area between my stoma and rib cage too. They were pretty severe and worrisome and I kept thinking something was wrong. Tests revealed nothing though and they ended up dissipated in about 8 weeks. That was one of the hardest things about surgery (and still is) for me... those strange pains that you wish had an explanation. Just take it day by day and if pains continue, have them checked out further. Some of my pains through all this ended up being something significant (incision related) and others didn't. In the end though, it is all working out just fine. Patience with my body and emotions, and a good open line of communication with my surgeon have been key for me.

Wishing you the best as you return home. Take lots of short walks and lots of long naps:)
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 3/2/2011 11:27 AM (GMT -6)   
Well, I had an awful night last night -- major nausea and vomiting pretty much all night long. Mostly from the pain meds (dilaudid) and also the pain around my intestines was much greater as I went on solid foods. So, back to clear fluids to slow things down, and hopefully I can just stick to tylenol and be OK. Now that the food is mostly out of me, it doesn't hurt as much. Not sure whether Im going to be able to rehydrate myself or whether I'll need to go in for fluids.

My partner has been awesome, holding my hand and dumping the bucket all night long..... so not what I'd like us to be doing..... we're not married, but this is surely part of the "for worse" part ....

It is painful for me to sit on the toilet at home.... it's lower than in the hospital and no bars. So, I've been using that pstyle thing I bought to help women pee standing up.... it's really very helpful and easy to use. I am having some trouble finding a position I can get into that's low enough to empty the bag w/out splashing though...... I'm tall, and kneeling hurts etc..... if anyone has advice, much appreciated. Otherwise, the bag part doesn't feel like a huge deal.

I have a visiting nurse coming in few hours.....

Hope you're all well....
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