All the tubes are pretty annoying. I was so glad to get the catheter out and I had the same funky feeling peeing for about
a day, but it went away. I had the JP drain still for a little while at home too. I got so sick of it dangling there. You are correct that the ostomy pouch is the easiest to deal with. It takes a little while to get the hang of emptying it, and you will definitely see your output change. I remember panicking when I saw bright red output one morning until one of the doctors asked me with a smile if I had red Jello. Yep- that was it:)
I was also amazed at how nice everyone was too. My anesthesiologist even came up to visit me and say hello about
two days after the operation. I wasn't expecting that at all. And my surgeon was wonderful. He checked on me a couple of times a day, called when he couldn't see me in person and continued to check in with me by phone once I went home. I really lucked out in getting a surgeon who was both skilled and very kind and compassionate. My GI definitely knew what she was talking about
when she said she was going to refer me to the best! And the nursing staff was so caring too. I have had to go back to the hospital four more times since surgery (fortunately for pretty minor complications) and the nurses have all remembered me and have been so wonderful. I am so thankful for the care of the entire medical team.
I found that I needed a lot of quiet time to process things too and didn't spend much time on computer. I had some friends want to visit and a few times I said no. I just felt the need to be alone sometimes, or at least just with my hubby.
I am glad you are starting to feel better. Remember that there will be lots of ups and downs, but pay attention to the general trend in improvement. Heck, I am about
four months out and I still have a few issues, but I feel so much better and have a strong sense that my body is not wasting energy on my sick colon. You will feel much better once you get home too, but don't rush it if you feel like staying in the hospital longer. That was another thing I liked about
my hospital experience. I never felt rushed to get out of there. They always said I could head home on a certain day, but that it was up to me if I wasn't feeling ready. I had surgery bright and early on a Monday and got out of the hospital the following Friday evening.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 2/28/2011 9:15:07 AM (GMT-7)