This will be my 10th surgery after a blotched bowel resection two and a half years ago. I had a temporary ileostomy a couple of years ago after developing a fistula from the initial surgery. I've since gotten help through surgeons at the Cleveland Clinic. My rectum and sphincter muscle are non-functional. I am sick so often and have such difficulty both passing and controlling bowel functions. They performed a defecography test a year ago and it showed that I could only expel 10% of the barium...the average is 80-85%. 50% is bad, 10%
Everything has just gotten worse, so the surgeon agreed this was my only option. I do trust her and have gotten a second opinion anyway. That doctor agreed that I had two options, either a total bowel reconstruction (which Cleveland felt would fail) or the colostomy.
I'm just really scared. I had a terrible time with the ileostomy. I was sick all of the time, wound up with gastritis and had such skin irritation from either the appliances or the leaking under the wafer. Can someone please share what to expect? How do you control accidents? How long it takes to recover? Am I making the right decision. I can't even begin how to explain how terrified I feel.
Thank you so much for any advice or support you can lend.
Post Edited (Tinamarie) : 2/27/2011 2:07:09 PM (GMT-7)