can anyone help

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strawberry36
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/1/2011 4:46 PM (GMT -6)   
CAN ANYONE HELP PLEASE, I AM WORRIED about MY MOTHER, SHE IS 68 AND HAD AN ILEOSTOMY DUE TO GANGRENE OF THE BOWEL 4 WEEKS AGO, AND SINCE SHE HAS COME HOME FROM HOSPITAL SHES FEELING EXTREMELY WEEK AND TIRED ALL THE TIME AND IT DOESN'T SEEM TO BE GETTING ANY BETTER, CAN ANYONE TELL ME IF THEY HAVE EXPERIENCED THE SAME PROBLEM AND IS THIS NORMAL, YOUR EXPERIENCES WOULD BE SO HELPFUL
KIND REGARDS

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/1/2011 5:27 PM (GMT -6)   
if she only had surgery 4 weeks ago she is probably going to still be tired. Is she drinking enough?
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 3/1/2011 5:36 PM (GMT -6)   
Hi Strawberry36, I hope your mother does begin to improve. I am a good 20 years younger than your mam & I would always have been fairly fit, I did find that for many weeks maybe up to 3 months after my perm ileo op in May 2010 I was absolutely exhausted. Despite a full night in bed, I would nearly every afternoon need to collapse into bed for another hour or two. I dont know medically the reason for this but I put down to my body trying to get over the op & to get over many years of not being properly nourished thru UC.

Now that its 9 months later I dont have the same prob - personally I feel that plenty of rest, good quality food, good source of protein will allow eventual recovery from what is a major surgery.

? hope this give some litttle comfort.
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!

puddney
New Member


Date Joined Mar 2011
Total Posts : 13
   Posted 3/3/2011 2:47 AM (GMT -6)   
hi strawberry
i had prem ileo 3 and a bit weeks ago was very ill before hand had uc flare up in oct 10 and didnt really get better until my op ,i still sleep most afternoons and sleep 9-10 hours per night
i have found small snacks and lots of drinks has made me feel not so exhausted
im about 28 years younger than your mum and if she has had an illness before her op ,her body probleys wants to rest

good luck to you and your mum

strawberry36
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/3/2011 4:00 AM (GMT -6)   
thank you all for all your information its really reassuring. can anyone tell me if they had problems with indigestion and feeling sick after there ileo op, my mother is struggling to eat because of this, has anyone got any suggestions please,
kind regards

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/3/2011 7:18 AM (GMT -6)   
Hi Strawberry....Protein is super important to assist in the healing process. Not easy to get a large amt of protein eaten every day especially if the appetite is low after surgery. The Slimfast (I prefer the powder you mix with 8 oz milk versus the pre-made ones in the can) protein shakes give you 15 grams of protein. It is like drinking chocolate milk. Try to get your Mom to have one or two of those each day to help.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

villager
Regular Member


Date Joined Aug 2010
Total Posts : 130
   Posted 3/3/2011 5:36 PM (GMT -6)   
I was also advised by the wound / dressing nurses that an good level of protein is needed for all the healing for internal & external wounds. I was recommeded a protein drink named Cubitan & I took 3/4 bottles a day in the inital months after surgery; i loved it. There are a few flavors available & I found it very tasty, easy to drink. There are probably many other such product avalable where yoy live - maybe your Dr, nurse, pharmacist could recomment one.

I suspect the difficulty with getting protein from usual sources meat / cheese/ tofu is that you would have to eat a lot & the bodily energy required to digest & extract the nutrition is vastly more thn with a more readily available protein source.

I have more recently taken some of this drink & I found it overly sweet & not so palatable. I believe that this tells me that my body was craving the nourishment at the time.

? worth a try maybe

Best wishes to you & your mum
UC since 1990, not a lot of fun
Qualified as ileostomate May 2010, a much happier boy now
panproctocolectomy, abdomino perineal resection, perm ileostomy
my colon may not be, but my heart is in the right place !!
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