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Charlie1
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 3/1/2011 6:54 PM (GMT -6)   
I had the 3 step J-Pouch procedure starting in July 2010 with the take down in Janurary 2011.  I managed to hit just about every stumbling block possible (infection, cellulitis, abcess, adhesions, bowel obstruction, stoma herniation, nacrotic bowel, pouchitis).  I am 5 weeks out now and seem to be doing much better, however I am having alot of trouble with skin breakdown.  It is to the point that it keeps me awake most nights and I panic at the thought of a bowel  movement.  I have  tried camlseptine, tucks pads, butt past and 2-4 showers/day but continue to suffer.
 
Does anyone have any advice.....please.
 
GMH
________________________________________________________
 
dx 2007 with UC, Tried asacol, predsone, remicade, imuran
 
am med free at this point

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 3/1/2011 7:20 PM (GMT -6)   
Man I wish I could help you.. I've had my J pouch since January and have had small skin issues... but the first thing my surgeon told me in the hospital was do NOT use toilet paper... that's your worst enemy.. so I am using strictly wipes. I keep the wipes in a wipe warmer, the warm wipes are definitely a good thing to use
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 3/1/2011 7:49 PM (GMT -6)   
Charlie, I'm a huge fan of bidet seats. My takedown was in mid-December and until I bought my seat I had to use creams all the time and I still had a couple of stubborn spots that still got irritated. Since I started using the bidet seat about six weeks ago I have not had to use creams once. Don't know if you are familiar with them or not but the seat just sits on top of a regular toilet. Mine is heated and sprays warm water for up to a minute after you are done with a BM but they have all different models. I learned about them on jpouch.org. I' had never heard of them but now I can't imagine my life without one. If that's not an option for you, using a simple squirt bottle filled with warm water afterwards would also help. Good luck. 

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 3/1/2011 8:25 PM (GMT -6)   
I don't have my j-pouch yet but I'd second the vote to check out j-pouch.org great stuff over there. Also, I know this sounds like TMI and unpleasant, but some people shave their bottom hair so it can't hold on to any digestive enzymes and break down the skin. So that may be something else to consider.

@scrap girl what brand is that bidet seat? that sounds fancy! I've just got a plain bucket like one right now.
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery scheduled 3/21/11

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 3/1/2011 8:32 PM (GMT -6)   
J pouch is for sure an informative site... I just never got into it because the first time I read through the site before my J pouch surgery it scared me to death. Nothing but horror stories, just remember, only people that are having complications post there mostly, everyone else is out living there life
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 3/2/2011 8:47 AM (GMT -6)   
Betsaronie, my bidet seat is made by Coco Bidets and I bought it from Bidetsplus.com. I forgot to mention is has a dryer too wink

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/2/2011 9:02 AM (GMT -6)   
We had a relationship with a guy who has had his j-pouch for over 20 years from j-pouch org as hubby was hoping for a j-pouch. He helped to prepare us in so many ways before the surgery and pending (what we hoped was a temp ileostomy) and I remember him saying that Desenex is what he found to work best for him. After your BM and using wipes and cleaning & drying the skin then using desenex to provide the barrier against the butt burn before the next movement.

However - some very good suggestions above that are definitely worth pursuing without a doubt. Good Luck.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/2/2011 9:19 AM (GMT -6)   
Ilex is the barrier of all barriers. It leaves a protective shield on the skin. Must be applied in a tiny amount and then with a coat of vaseline over it. And great recommendation on the bidet.

Sue
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