J has an appt at the Cleveland Clinic (main campus, Cleveland, OH) on Thursday for a second opinion. It is about
a 3 hr drive for us. I did research online as well as looking around this website and others. Here is a website that has patient comments as well.
I called and told them his history, they connected me with one of the nurses and I set up the appt that way.They told me what records to have sent from Nationwide Childrens and I have the disc with his last radiology films to take with me. I called Childrens Hospital and had the records sent. Unfortuantely CC called me today and had not received them yet. She was going to call and have them faxed. They were very helpful in helping get things arranged. Good luck.