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knahs1
Regular Member


Date Joined Jun 2010
Total Posts : 86
   Posted 3/3/2011 2:18 PM (GMT -6)   
Not sure if I spelled it right, anyone ever use this for high output problems, if so how much per day?

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/3/2011 5:02 PM (GMT -6)   
I used to take Lomotil for diarrhea when I had Crohn's...is that what you mean?

I took 1 pill per day...I think it was like 5mg? some days I took 2.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 3/4/2011 8:29 PM (GMT -6)   

I took 6 pills a day as well as a capful of imodium before every meal for about 5 weeks but didn't have any success with it.  I don't have an ileo, just a subtotal; been having severe diarrhea issues since middle of November. 

I hope it works for you though!

Judy


aunt diane
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/4/2011 9:01 PM (GMT -6)   
I had a my ilio reversed about five years ago. I have so much diareah i go about 15 times a day. as soon as i get up from sitting. i take about five or six lomotil aday. any suggestion would help. does something like benifiber over the counter help.
aunt diane

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 3/5/2011 10:39 AM (GMT -6)   

Some have had success with an over the counter bulking agent, they haven't worked for me.  I've also tried Questran but this hasn't helped either.  Am on entocort (steriod) for the gut to try to help but not improving at this time.  Am meeting with my gi on Monday, will post after that to let you know what we come up with next as I'm extremely limited with my diet and this is one of the causes of my severe anemia.

Judy


aunt diane
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/5/2011 12:21 PM (GMT -6)   
Thanks judy....i too am anemic...absolutley no energy

finallyfree
Regular Member


Date Joined Aug 2008
Total Posts : 470
   Posted 3/8/2011 8:47 PM (GMT -6)   

Hi Diane,

Sorry I didn't get back to you yesterday but we woke up to almost 2 feet of snow and my dr is 3 hours away! So by the time we got home and got our daughter home from work, got in the driveway, dinner, etc. it was 9pm.  My drs. (I always see the NP) but this time the dr wanted to see me too bc I had to have 2 transfusions on the 17th, a scope on the 18th where they found some bleeding vessels that they cauterized & then a blood clot on the 19th that I had to have emergency surgery on.  By the 25th my blood levels were almost back down to the same level as before the transfusions so they are quite concerned and are trying to figure out what is going on.  Most of the problem appears to be from the diarrhea and my limited diet.  They want me to try a bulking agent (fiber) again to see if it will work this time.  They also put  me on a maintenance dose of tylenol #3 to see if that will help slow things down as when I had the blood clot in my leg & I was on pain meds things slowed down. So we are trying that for a mo.  I wasn't for this at all but they just want to try it to see if it will slow things down enough to get some nutrients in me.  They are doing a pediatric scope to go down further from the top to see if there is any bleeding on the 17th.

Has your dr tried you on any regime besides lomotil?  We started with the BRAT diet for 5 weeks, then a bland diet & imodium for 4 weeks, then 6 lomotil with a capful of liquid imodium before every meal.  A tapered dose of Entocort (a steroid for the gut), & Questran (a scoop every day).  There are several things to try & I hope your dr is being proactive as this is taking a very big toll on my health at this point.

I hope you can get the help you need and everything works out well for you.

Take care,

Judy

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