Just got home from J's second opinion at Cleveland Clinic with Dr Strong. First let me say we were impressed with the whole experience. Everyone was very nice and there was not waiting. Best news is Dr Strong says there is not reason for J to have surgery at this point (he was scheduled to have surgery today at another facility!). He said that the daily mucus and the bloody mucus that he has occasionally is ok. He explained that the blood is probably not the UC as normally the UC basically "burns itself out" once the diseased colon is gone. He only has approx 5" of rectum/colon or whatever remaining. He said the blood was likely caused because the stool that normally passes thru the rectum/colon nurishes the mucosa and since it no longer gets that nourishment it can become irriated from time to time (i get a litte irritated when I don't get nourishment too
). His said that they don't start watching for the increased risk of cancer until someone has had the disease for at least 5 years. His recommendation was to return in 3 years and they will scope the remaining colon/rectum and take biopsies. They will continue to do this every few years. The only reason he would need to have surgery would be if dysplasia (precancer) was present with the biopsies, if J seemed to not feel well or if the rectum started to stenosis off so they could not get the scope in. He said if the surgery would be needed anytime in the future that they would get all they could thru the outside and would get the remainder if needed laparoscopically.
I can not tell you the emotions that Daddy and I went thru on our 3 hr drive home..thinking that had we not decided to go get this second opinion we would right now be sitting in the surgery waiting room while J was having a major abdominal surgery.
Praise God for guiding us in the right direction. Thanks to everyone here for offering recommendations to go to the Clinic.
Post Edited (J's Mom) : 3/3/2011 3:51:51 PM (GMT-7)