I had an ileo performed as although I had disease in small bowel, the disease in the colon was the worst area affected. They got the ileum into remission and once that had settled down then they did the ileo.
The original plan was to reconnect after usual 6 months but colon so badly diseased said they would never be able to reconnect. So since original op have had periods of flare, more settled when I started azathioprine 16 years ago, and two abcess around stoma so had to be resited twice.
However, without the ileo think I would have had to give up work years ago as was getting to the stage where I was in hospital more than I was out of it due to malnutrition and dehydration as unable to absorb anything.
So have a word again with your GI, as it will be his ref to surgeon not your GP. The ileo has worked for me, even with problems I have had in the 19 years I would not have changed it for anything, it gave me back my life, so a few ups and downs on the way are nothing.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.