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frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/8/2011 1:12 PM (GMT -6)   
Hello everyone,
 
I just joined hoping that someone could give me some answers, or somewhere just to let out my frustrations.  All my life I have struggled with constipation.  As a child, my mother gave me suppositories all the time.  As the years progressed, whenever I went to the doctor, they always told me I was constipated.  As I got into my teenage years, I never thought about it that much because then I struggled with a disorder, anorexia. 
 
Well, in the past few years, things have gotten extremely worse.  I have tried every single laxative known, or try other alternatives to get off of them, but I can never stop using dulcolax, and I hate taking them!  A few years ago, I noticed this pain on my left upper abdomen getting worse and worse.  I was not sure what it was.  I had an EGD and colonoscopy done to reveal what the problem was.  Nothing at of the ordinary.  However, I still had this pain on my left abdomen that could not go away, and got worse every time I ate or drank something. 
 
Also, I started to notice that I made these weird gurgling noises all the time on my left abdomen that hardly ever went away.  I had the worse time passing gas; it always seem to be caught in there.  I had trouble expelling it properly.  I was always taking gas-x or something or ate very little to help with the pain and bloat on my left side.  Well, I got to try and help with the gas to help my constipation as much as possible by trying to stay cleaned out because I don't go to the bathroom at all without the aid of laxative.  It could still be 2-3 weeks, and I will not go the bathroom.  Well, it was taking me at least 5-6 dulcolax or in combination with colace to go the bathroom!  Plus, when I did get cleaned out, you tell the laxative was done, and then gurgle, gurgle and bloat on left abdomen.  Laxative did it's job, and not my left side felt tired!!!!
 
Finally, had another test done, a colon transit study.  After a week of not going to the bathroom, of course I knew would happen, all the markers got stuck in my splenic flexure, right where I start my pain all the time.  I met with a surgeon, and the gi doctor and surgeon both consulted and determined a laprascopic left hemicolectomy would help.  When the surgeon performed my operation a couple months ago, he found I had a major kink on my left side, my descending colon went well above my spleen, back down, and then went horizontally to my transverse colon.  Well, we all thought that would help!
 
However, here I am again still having constipation problems.  Now, the only problem is that I am still getting pain on my left abdomen every time I eat or drink something.  It just migrated from my splenic flexure down to the lower part of my abdomen.  Also, I still make gurgle, gas noises sometimes just not as frequent or loud.  Plus, I still have a hard time passing gas, it just stays put in there unless I take a laxative.  It is like stool tries to force itself out, but it can't, so then that is about the only time I pass gas with a laxative.  The only thing that really works again is dulcolax!  Ughh!!!! confused    I have to take like 3 of thing to get the best bm!  The only part I cramp the worst when I take a laxative is the left lower abdomen.  It tries sooo hard to push the stool out.  It makes me wonder now if I was never tested for an outlet problem.  What does everyone think?
 
Tomorrow I am scheduled for a barium enema to see how my anastomosis is healing, and to examine the rest of my colon?  Will the barium enema check for an outlet problem?
 
Right now, I just know I am tired of losing weight.  Constipation (get afraid to eat sometimes due to pain getting on left lower abdomen now compared to before or afraid of not being to expel it out or just not wanting to go through the pain of taking a laxative!), problems expeling gas, etc. 
 
Has anyone else had problems with a constant bulge, trapped air on left abdomen trying to expel out, but they can't even after having a bm?  Also, I have tried more fiber, but when I can't expel any gas, all I do is get more bloated on my left abdomen, it just builds up and up!  Any input here would be suggested?  What do you think will happen?  I hope we can find the solution soon b/c I know I am getting very weak and tired now-a-days!!!!!!

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/8/2011 8:23 PM (GMT -6)   
Sorry, I don't have any suggestions, but I wanted to welcome you to the forum smurf

Have you read any of the 'total colectomy' threads? Many of the posters on that thread have similar issues.

Welcome!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/9/2011 3:52 AM (GMT -6)   
hi hurtboy and welcome!

so sorry to hear about your struggles. reading your post has reminded me of the way i used to feel for yrs till i had my colon removed. are you a guy? i'm asking, b/c colonic inertia is mostly a women's disease, but there is a small % of men with CI.

not being able to release gas is another known simptom of CI. it's called a Hyper Timpanic abdomen - like a drum that is full of air. it means that the colon is so nonfunctional, that it can't even push the air foreward. i had it too, if i ate more, it would worsen the bloat, but even w/o eating my abdomen was full of air all the time. very painful. i also used to go days w/o eating and got so weak and tired, but on the other hand, if i ate i felt worse, so like you, i preffered keeping as empty as possible.

how old are you? have your drs ruled out Hirschsprung's disease? that usually can be diagnosed with a biopsy from the rectum and anal mamometry test.

living with a nonfunctional colon is no life. your drs thought that only your left colon is the problem, but the way you describe your simptoms, sounds to me like your whole colon is diseased. a barium enema can't diagnose outlet disorders. it can demonstrate what your colon looks like, whether it's too long and loopy and all. to test for an outlet disorder you need to do both anal manometry test and defecography. i don't understand why your drs havn't sent you to these tests so far. they are ones that are the basic tests for ppl with chronic constipation.

with colonic inertia only removing the whole colon can help, on condition there isn't an outlet disorder. an outlet disorder can be caused by: anismus (non relaxation of the pelvic muscles), Intussusception (a condition in which a part of the intestine has invaginated into another section of intestine, similar to the way in which the parts of a collapsible telescope slide into one another), rectocele (when the front wall of the rectum collapses and a pocket is created - this pocket gets filled up with stools that can't be released and causes an incopmlete evacuation), rectal prolapse.

you mentioned you eat fiber, well DON'T! fiberous foods are the worst thing to eat for someone with colonic inertia. you must try to eat low residue/low fiber diet and try to make it soft-liquid diet as much as you can. no whole grain breads, rice etc. fruits and vegies are not so good for ppl with colonic inertia either - they are also very fiberous.

you can also learn a lot about CI by reading the "total colectomy" threads - google "total colectomy part 3" - it goes up to about 39 i think. there's a wealth of information there that can really help you learn about CI, the surgery and it's outcome.

removing the whole colon is the right way to go in my opinion. i hope your drs can help you soon, cause i know how bad you're feeling right now. hang in there. keep us posted.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/9/2011 6:01 AM (GMT -6)   
2bcolonfree,

Thanks for the reply! You did, you described exactly how I feel. Also, I do the same thing either sometimes try to eat as little as possible, and then get really weak, or finally, get soo hungry, then I feel horrible for eating. Yes, I do try to eat low-residue foods at times, but I could never figure out what the problem was b/c I wanted to try to get off of laxatives, so I would try fiber, but yes, it makes me feel sooo bad! However, by reading your post, it sounds so familiar. Well, I will go in for my barium today, and then I meet with the doctor again next Tuesday. I think I will take your post, and review it with him. I have been trying to keep a journal lately of how I am feeling. I will post again after my barium and dr.'s appt. to let you know how it went. Thanks soo much for the response. It just feels better to talk to people to know what I am going through b/c I know other people worry about me, but they just don't get it. They recommened this and that, and I am like it doesn't work!!! Don't they realize how bad I want to live a normal life, but I can't????

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/9/2011 6:03 AM (GMT -6)   
Oh, yes! I am a guy, which I do know is highly ununsual, and currently 26 .  I will be 27 this July. Wish I wasn't cursed with this, and for being soo young!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/9/2011 8:00 AM (GMT -6)   
you are most welcome, hurtboy! i remember too well how i also felt so alone and isolated with my problem for yrs and yrs, never heard of someone in my same condition and no one around me understands what i'm going through. i thought maybe i was some kind of a freak. till about 2 and half yrs ago that i found this site! it was like i'm home. suddenly i found dozens of women (and 3-4 men) suffering from the very same condition as me. suddenly i didn't feel alone. reading those threads was like reading about my own life! not to mention the very useful info about the surgery and it's outcome. that's why i recommend you to also read those threads.

at first it took time for me too to realize that fiber is not good for me, cause drs and nutritionists always talk about how good fiber is for constipation and all, but with CI it's just the opposite, cuz the colon can't push and the fiber just creates a plug in there.

good luck with your test and dr's appt!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/9/2011 12:01 PM (GMT -6)   
Well, the doctor actually ordered a more water-soluble contrast enema. Still, the procedure was very uncomfortable! Glad to have that done with. I do have one question. The only reason the surgeon was trying to avoid removing the whole colon, and just my kink was because he said the colon absorbs more nutrients on the right side. Is that true? How do you get all your proper nutrients without you colon today? I really can't wait till my doctor's appt. next Tuesday.

I did feel awkard today because the techs and radiologist asked me what kind of problems I have been having. I really do not think a lot of doctors understand colon inertia. Heck, it took me 3 doctor's till I was finally referred to the current surgeon I am seeing that is trying to understand my condition. The last GI doctor I saw before I went back to my current one thought I was nuts! He referred to my past condition of an eating disorder (might have triggered part of my colon inertia, but of course I have had problems all my life, and did have a kink). Yes, that was like 15 years ago now that I suffered that! Do you realize how much I love food and to eat healthy, but about half to 3/4 the time it hurts me??? Some days are better than others, and I think I will be okay, but I can guarantee you later that night (night is the worst b/c you keep putting food in you all day!) or the next day I start to feel like cramp again!!! Ughh! I really love reading all these posts, and thanks for all the help everyone!!!! Hope to talk to you soon 2bcolonfree!!! =)

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/9/2011 1:30 PM (GMT -6)   
hey guy! glad it's behind you now. can't wait to hear what your dr has to say. what i know is that nutrients are absorbed in the small intestine, mostly the ileum - the last part of the small intestine, and not the colon. the colon's job is to mainly absorb the water from the stools and that way it causes the stools to form. when removing the colon you at first have frequent liquid-watery bms, but after few mons it slows down, cuz the small intestine kinda going through an addpation period and learns to do the colon's job and bms start to be more formed. that's why you can live w/o a colon, but can't live w/o your small intestine. i don't know about what your dr said about the right side.

oh and i get my nutrients pretty good. with me, unfortunately the colecotmy w/ileorectal anatomosis didn't work, b/c first, i have severe anismus - outlet disorder - in which the puborectalis, which is the muscle that holds the pelvic ograns can't relax. it is supposed to relax while having a bm and by relaxing it is letting the stools pass. mine does just the opposite and tightens even more when i try to push... there's no cure for that. second, it is now known that i also have inertia of my small intestine. not as bad as the colon's inertia, but i still need LOTS of prune juice to make things moving. so i now have an ostomy, mostly cuz of the outlet disorder. but i'm happy with it and feel the best i've felt in 17 yrs and very thankful for that :)) living with the bag is not so bad at all and i can eat again (still am limited, but now it's a LOT better than what i could eat before). so b/c my small intestine is slow, my absorbtion is really good, maybe even too good lol. but i'm doing ok really and would never go back even if offered a million bucks.

i know, there isn't enough awareness to this disease and i've had my share of drs thinking im crazy... :( like you, i went through yrs with drs thinking that im just crazy and it's all in my head. very miserable times. i know how much it hurts to eat in this condition, there were days i couldn't even function at all, just lay down till it clears.

but you know, i just thought of something, if you say that now you still have that specific pain on your left side, maybe your drs are right and it is a narrowing of the anatomosis site and not your whole colon....?? i don't know. i guess we'll have to wait and see what your dr sais.

glad you're enjoying the posts. it's the best info you can get, cuz drs don't explain much and the best info is from those who went through it themselves. hope you're hanging in there :))

waiting for your update!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/9/2011 2:18 PM (GMT -6)   
but on a second thought, you said your constipation was severe long before you started to have that pain on your left side, so i'd guess it IS your whole colon and the severe constipation is what cause the creation of the kink. sounds logic, wouldn't you say?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/10/2011 6:22 AM (GMT -6)   
Never thought about constipation creating a kink.  Last night I was actually running to be bathroom with all the fluid they shot up me trying to expel it.  I still felt very uncomfortable and sorted do this morning.  I looked it up, and what they did was a gastrografin enema.  You might be right, it is possible it is just plain CI and getting stuck once my laxatives have finished, and not a outlet problem.  Of couse, like you said, it could possible be just the narrowing of my anastomsis.  Well, we will see how today goes, since I have to go back to work, and see how the weekend goes before my appt. to get the results.  
 
I try not to doubt, but for some reason I have feeling everything will be fine.  I think doctors get stuck on colon inertia b/c it prob. is a hard disease to diagnose.  I mean; how can one tell if the nerves are bad. One of my friends said I needed another transit study again b/c she knows I won't expel a single thing, and you are right I prob. still need those other tests like an anal manometry to make sure for the outlet.  I think the transit study is a good test b/c it shows how the tablets don't move.  I remember when I had it done.  I had the tablets still located half way on my ascending colon, and then the final one got caught in the kink at the splenic flexure.  The report said colon inertia.   

Post Edited (hurtboy) : 3/10/2011 5:32:02 AM (GMT-7)


2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/10/2011 8:12 AM (GMT -6)   
yeah, i know that a chronic life time constipation causes the colon to stretch and become longer and loopier and that can cause kinks, loops and sometimes even a perforation of the colon from being so stretched.

never had the gastografin, but i heard it can cause diarreah. glad they used that on you and not the barium. sounds like it's easier to get rid of than the barium. i actually went to a colon hydro theraphy after my barium enema, cuz there was no way i could make it come out.

i also think you def need to repeat the transit study. you had it before your op and now things has changed in there and a whole new evaluation is needed. no doubt. you also need the anal manometry, but the defecography is much more important. now that you're describing the last transit study you had, that's def CI. many times before drs tried to treat CI with removing only part of the colon or just the sigmoid colon, but it has been proven to be inefficient, and those who had only part of it removed had to go back later to remove the rest of it. CI requires removing the whole colon.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/10/2011 7:15 PM (GMT -6)   
You are soo great to talk to you.  :-) Today I lots of air in me, and had trouble passing it.  I mean I am glad I don't make the gurgle noises as much, since the kink is gone, but I still get it everyday!  It is like it builds up on my left lower side, and never wants to come out!  Then, when I able to force it out, it is never enough b/c it is not free-flowing.  Tonight I feel bloated, just ate supper, fool of food and everything else.  I am glad that I have a job where I can sit down more b/c some days I really don't know how I do it anymore.  I just hope something else gets done soon!  It has been soooo bad for the past 3 years!!  I am growing weaker everyday, and I am tired of losing weight due to my colon inertia.  Also, I am tired of the heartburn I have.  It seems like I travel some of gas instead upwards instead of downwards!  Def. going to talk to the doctor on Tuesday about these tests and a possible transit study again, but still have to wait and see what the enema test says!! 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/11/2011 3:49 AM (GMT -6)   
gosh i feel bad for you.. i remember being in that stage, the stage of the unknown, not knowing yet what will happen, what will be done, what will the drs decide.. this is the hardest part. i'm glad i can help as much as i can. are you under weight yet? i know how eating hurts. i love to eat, but all those yrs i had CI i just couldn't either! it's NOT an eating disorder! just too painful to eat!

if and when your drs finally decide to send you to surgery, which i think is the necessary thing to do, you should make sure they check your stomach motility and small bowel motility. it's very important to make sure your stomach and small intestine don't also have inertia. i don't remember the exact name of those tests, but you should just ask your dr to test the motility of your stomach and small bowel. my drs never did those tests on me, cause we don't have these tests in israel, and it turnes out my small intestine is really slow. but even when the whole digestive system is slow, it is still worth it to remove the colon.

there's another guy on the "total colectomy 2.2011" thread - currently active. he hasn't posted in a while, so i wasn't sure he's around, but i think he just posted yest, he's having the surgery soon. but anyway, he just had those tests for the stomach and small bowel motility, so you can ask him about that. and anyway, it'll be so good for the both of you to connect, you're both going through the same process right now and can be of a lot of support for each other. he's screen name is boatnerjy, or something like that.

and of course i'll also will always be here for you :)))
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/11/2011 5:50 AM (GMT -6)   
Good morning,
I was always a small person to begin with, but now I am getting scared b/c yes, I am underweight due to this!  Like you, I actually do love food.  I have always been one to try to eat very healthy, but I mean, I like indulge on sweets and treats as well.  Like I have told everybody else, I want to be able to eat regular 3 meals a day like everyone else.  Not just little snacks here and there, and then when having a half decent day, be able to eat at least somewhat of a good dinner just b/c I starved myself all day.  However, I know when I am hungry and try to eat as regular as possible; I just get in sooo much pain, bloated, constipated, and not knowing whether my laxatives are going to work or not!  I tell some people; ummm, I feel bloated right now, or having my little ball of air trapped in me for hours when I haven't even ate anything, and then get a gurgle, gurgle noise.  Like I told somebody else, I guess you never think about it, but there is, constant air flowing through you.  The whole digestive system goes in and out, and I can't get nothing out!!!!
 
Well, glad today is Friday; every morning I just hope I am able to get through the work day.  I always enjoy my weekends anymore b/c I can rest, which is what I feel like doing a lot now-a-days!  I try to force myself to do things sometimes, but it is still hard.  It all just depends on how I am feeling!  Def. going to check out that thread.  I have never thought about a motility in my stomach and small bowels, but I guess anything is worth checking to make sure I get better and soon and fast!!!!!  It has been going on long enough!!!!!!!!

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/11/2011 6:16 AM (GMT -6)   
hope you get a good rest on the weekend. you can boost your weight with icecream and sherbet, it's easy to digest. give it a try. hang in there. when do you see your dr again?
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/11/2011 5:21 PM (GMT -6)   
My doctor's appt. is Tuesday.  Can't wait b/c it is getting harder and harder each day.  I don't drink milk or eat ice cream too much.  It just depends.  My body can't handle too much milk, but I do love frozen yogurt, plain yogurt, and I eat pudding.  I never thought about sherbet!!!  That would be easy on the stomach!!! wink

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 3/11/2011 8:13 PM (GMT -6)   
Reading this thread along with some others is awesome.  It's nice to read it and know I am not the only one dealing with these issues.  I don't have time right now but I'll catch up with my "story."  I guess it's not really too different from either of yours...  I wish I hadn't stayed quiet for so long.  Even with my current doctor, it has taken me nearly two years to feel like he is listening to me or taking me seriously. 
 
I had my second transit test (sitzmark) x-ray yesterday (day 5) and all 24 markers were still there - 16 on my upper left, 6 on the right and two down low.  The rhinestone on my underwear made a nice little square marker on the x-ray.  Didn't even know it was there until after racking my brain trying to figure it out.  I am going back tomorrow for another x-ray.  My doctor called me this afternoon to tell me I have colon inertia and to go for tomorrow's x-ray, followed by "I'm going to be on vacation all next week but i'll catch up with you the following week."  I was at work when he called and really didn't have a chance to ask him anything.  Now I have to wait about ten days until I even speak with him again.  Now i can't wait until Saturday night to take a laxative!  I feel like if I put one more bite of food in my body I will explode. 
 
One more note before I go to bed - When I went to x-ray on day 3, I checked in at the receptionist and told her why i was there.  She kind of lowered her head and voice and whispered "usually we only do these for people who are constipated."  *** do you think I am here for????  I told the x-ray tech and she said sometimes people assume that small people have no physical probs.  Hmmmm.... 
 
What should I expect from my doctor the next time I hear from him?  (aside from details of his vacation).  confused
 
night, night
 
 

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/12/2011 7:19 AM (GMT -6)   
Hi fitgal,
 
Glad to have another person on here to talk to.  Like I have mentioned before, I know how frustrating with some people thinking you are nuts.  Like I have mentioned, I have always been a small person, but now due to my colon inertia, I have lost a drastic amount of weight lost now.  Just due to the fact I have problems passing gas as well, which make is hard to eat (Also, when you do eat, just going through the pain of taking laxatives wondering is it going work?  Sometimes it does, sometimes it doesn't!  How much is too much, is it too little? (gurrrrr! mad ) It is like I have this constant pressure of air trying to come out in my lower left abdomen even after I have had a bm.  The laxative worked, and now it is done! 
 
Also, I have had my share of doctors, too that just don't listen; or like you, it takes forever to get another appt.  I remember when I had my transit study.  The GI doc said in my report worse case sceranio is a total colectomy, so it is hard to say what could happen next when you see him.  Now, I have been seeing a surgeon, and like I have said, about a month and a half ago, I had a laprascopoic left hemicolectomy b/c I was making sooo much gurgle noises, had trapped air, and everything there due to a kink found in my splenic flexure (The surgeon said my colon was huge, and severly kinked!).  The surgeon was trying to save part of my colon, but personally, I am starting to think I really needed all of my colon removed b/c I am suffereing just as bad now I was before, which even the surgeon said I should have been improving by now. 
 
I guess just like 2bcolonfree as suggested; read the prior posts, make sure your doc does a full-work up on you.  I am on the virge of tears everyday now b/c I feel soo bad.  I try to do the most I can, but it is hard when you feel sooo bloated all the time even without eating, or busy just trying to clean yourself out b/c you have ate pretty well.  Every doctor is different with their approaches.  I know how anxious you are b/c I am in the same boat currently at the moment!  That is why I am sooo glad I found this site, too!  I was just getting tired of talking to people that don't understand how I feel or just say eat more fiber, drink more water, just eat, etc. etc. etc.  Believe me!  I was trying to eat a perfect IBS diet before it got really bad, and it just made me feel worse till I have found out my true problem is colon inertia!

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 3/12/2011 8:14 AM (GMT -6)   
I'm home from my Day 7 x-ray.  I felt like I was 14 months pregnant!  I am a stomach sleeper and could hardly do that last night because my stomach was huge (relatively speaking) and painful. 
Anyway, back to the x-ray.  I didn't get this one on CD like I did the first two.  I had about eight rings up high on the left and about eight on the right, gradually starting to move down the side and probably about eight in the lower abdomen.  I wish I had written it down because I can't really remember but these numbers are probably close.  The radiologist wasn't in yet so she said he may want to see me again.  I was really hoping that wouldn't be the case because I felt the urge to use a stick of dynamite, or at the least an enema today followed by a handful of laxatives tonight.  The girl at CVS probably thought I was crazy - a 6 pack of enemas, a jar of suppositories and the tiny bottle of saline laxative.  Of course I had no intention of using them all at once but they were all HALF PRICE. 
 
I got home and and unfortunately had to give myself some assistance.  Shortly after that the phone rang and they want to see me for another x-ray Monday.  I work about an hour from the hospital so I'll barely make it there before they clsoe at 630pm.  (What happens if someone breaks a leg at 9pm?  Wait until the next day for an x-ray?)  I hope I didn't mess up the test but I couldn't wait any longer.  I'll just tell the doctor if the next x-ray looks too unrealistic compared to the last three. 
 
I know i am totally rambling but my daughter is trying to read this as I type and I'm really not ready to inform her (10 yrs) of this issue. 
 
I am pretty uneducated about all of this and only know what I have read online.  So far, my doctor has only told me that it is CI.  I don't know what all of the GI terms are or the procedures.  Just getting started...
 
 

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/13/2011 6:13 AM (GMT -6)   
hurtboy, keep me posted on Tues. good luck. and eat sherbet :)

hi fitgal and welcome! i suggest you read the threads i mentioned, it can educate you a lot about this condition and the treatments offered. basically, removing the colon is the only way to treat CI, unless you're managing with laxatives and get enough relief. but with severe colon inertia and nothing helps any more, only removing the colon can help.

make sure your dr tests the motility of your stomach and small intestine. also make sure he tests your pelvic for outlet disorders. the tests for outlet disorders are: anal manometry and defecography.

you should mentioned to your dr you took laxatives after this last x ray. good luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/13/2011 6:53 AM (GMT -6)   
Good morning everyone,

I will def. keep you posted about Tuesday! Fitgal, yes, I remember when I had my transit study, I felt miserable, too. All that gas and stool that was not moving efficiently, and I remember I had to wait another day, too b/c they wanted another picture! It was awful, and yes, I am a stomach sleeper, too. I feel the same way buying laxatives, too. I def. hate laxatives b/c sometimes they work and other times they don't. I feel sometimes anymore I have to purify liquify my stool with a lot of laxatives after not going for quite awhile to get things out, and that is painful, too (drinking magnesium citrate is yucky!). Or I would not have a problem with laxatives if my gas moved efficiently, and maybe just take a couple colace a day or do miralax or something, but I swear all laxatives make me feel worse. Never know how much to take, guessing game? They do not work properly like they should! I have told my friends I just want to be able to eat and poo like a normal person! Can't wait till my appt. on Tuesday b/c I know I am sure tired of not trapped air inside me all the time! 

Post Edited (hurtboy) : 3/13/2011 7:02:46 AM (GMT-6)


frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 3/13/2011 11:53 AM (GMT -6)   
I just thought about a question I would ask too, 2bcolonfree, pre-surgery before you had your whole colon removed; did you experience heartburn a lot? Because I know actually I feel my heartburn as worsened since I had my surgery. It is like I try to expel the gas in the lower left abdomen, but I can't get it out; instead, I let out little burps and get heartburn - it is like I let out gas the other way if I need to. Either way, it is never still seems to be effective enough.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/13/2011 12:19 PM (GMT -6)   
yes, before my surgery i would easily get heartburns, but i managed to avoid them by barely eating. but when i ate normal, like full meals, then i'd get unbearable heartburns. although my colectomy w/ile-rectal anatomosis didn't work, it did relief my heartburns and lots of the pain in the abdomen i used to have. i was still constipated, yes, but it was not as bad. one of the reasons why i felt relieved even though i was still constipated, was that i wasn't keeping so much gas in me anymore, that was major relief. and i guess just having a nonfunctional colon taken out of you is a major relief on it's own.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

fitgal
Regular Member


Date Joined Mar 2011
Total Posts : 157
   Posted 3/13/2011 5:20 PM (GMT -6)   
Thanks to both of you for your responses and I look forward to having a "place" to talk about this. It's not exactly dining room table talk and I don't really even feel that comfortable talking about it with my husband. We've been together since I was eighteen (25 yrs) so he really hasn't known me any different way.

Good luck Tuesday at your appt. hurtboy.

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 3/13/2011 5:55 PM (GMT -6)   
I have colonic inertia and an outlet obstruction defecation syndrome. I now have a temporary loop ileostomy.

Before surgery, my stomach would bloat and I would literally look 6 months pregnant. Strangers would ask me when my baby was due. I suffered severe heartburn and nausea and had to sleep sitting up. I could not pass gas or burp and this made me very miserable. I could only eat tiny amounts of food and was accused by family and friends of being anorexic.

I took mega doses of miralax and used 100 suppositories every week. I spent hours everyday in the bathroom. This was no way to live.

I had all of the tests, colonoscopies, anal manometry, ultrasound, ct scans, sitz marker test, endoscopies, defogram, pudendal nerve studies, etc.

The doctor recommended removal of the part of my rectum that was intussussecpted, removal of the sigmoid colon, and a temporary, loop ileostomy. He also took down alot of adhesions that were wrapped all around my bowel, small intestines, and stomach. He said these adhesions were like none he had ever seen before and that I was born with them.

The surgery was rough, but after a week, I was sooo much better. I could pass gas and poop through the stoma and I could burp again. My nausea has been drastically reduced and my heartburn seems to be a thing of the past. I can now sleep laying down and can eat LOTS of food. YIKES I now have to watch that I do not eat too much or else I am going to get fat. :)

I will have another surgery over the summer to have a total colectomy and have my temporary loop ileostomy turned into an end ileostomy. I do not plan to ever get reconnected! The bag did take some time to get used to, but it is so much better than taking toxic doses of laxatives and feeling sick all of the time.

Good Luck, Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.
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