Have you researched this surgeon? I am sure there are some very qualified surgeons in Boston. That being said, I do remember them telling me lots of very scary stuff. Did he say you specifically may very well have chrons or that when they go in there they might find out there is chrons? I wasn't too concerned with that because no gi (had three) had ever said I might have chrons.
What did he say failure rate was? Between 90-95% of people who have the j-pouch surgery are happy they had it. I think the other percentage is people who end up having chrons or who didn't have a qualified surgeon...that's just my opinion.
I say go to the j-pouch.org board and see if someone recommends a surgeon in your area and talk to them. It is normal to be scared, but if you are this uncertain, you may want to talk to another surgeon.
The sad thing is if remi is failing pretty soon you may not have a choice...you can't stay on pred. forever. You don't want to be in a situation where you have to have emergency surgery and then get the local surgeon who botches it.
Good luck. I was terrified before my first surgery. I am actually looking forward to take-down since it has all gone so well. I had mine done at the Cleveland Clinic...world renown for the j-pouch surgery.
Post Edited (Disneynut66) : 3/9/2011 2:29:48 AM (GMT-7)