So sorry Blueglass. I can feel your frustration. Two weeks after my surgery, soon after I got the staples removed, my abdominal incision started to
open up. At first just a small bit, and then a deeper and longer section. I went back to my surgeon's office expecting him to tell me we were just going to have to pack it with gauze. Instead, after he examined it he told me I should head over to the hospital (next door to his office) and that he would meet me there in a few hours to go back into surgery. Apparently the
opening went all the way down into my abdominal cavity and had to be surgically repaired. I was devastated as I had just started to feel better and this seemed like starting over. He felt it was also due to Prednisone.
The second surgery went great, though it set me back to square one pain and recovery wise. Then two weeks later, just as the staples were about
to come out, my incision started to drain and
open in another section again. It looked a bit infected and I had a fever. On top of this, I also had some stomach pains so I was sent over to the hospital again for a CT scan. Turns out, along with my incision woe, I had a bunch of fluid build up in my abdomen. They drained it by putting a drain in my but cheek. They thought it might be an abscess, but it wasn't. The fluid that came out was clear and not infected so I just stayed in the hospital for 5 days until the drainage stopped. We packed the new incision wound which fortunately didn't go through the muscle layer this time. Again, I was so disappointed that my recovery was set back.
My abdominal incision wound seemed to be getting smaller and smaller and healing nicely. Then, in the beginning of January it started tunneling under the skin and then a big, painful lump started to form. Boy, did it hurt! My surgeon and I were both pretty frustrated at this point, as I had been off of Prednisone for a while and it didn't seem like it should be causing this much trouble. So back to the hospital for a third surgery I went to see what was going on in the incision. My surgeon found that my body had reacted poorly to the dissolveable stitches in my abdominal wall from the original two surgeries. They had caused poor healing, the wound tunelling and an abscess to form. My surgeon was surprised, as he had used one of the least reactive types. He removed them, replaced a few with a different material and then left the huge wound to heal
open, from the bottom up. I was on a wound vac for 6 weeks. Again... so disappointed that my body was being so stubborn!
Now, finally, the wound vac is off, my incision is healed and I feel great. Yes, it took four months to get healed to the point that most people probably get to after 8 weeks. Oh well. At least I have gotten to this point... finally healthy and loving life again. Hang in there You will get there too!
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 3/10/2011 8:07:58 AM (GMT-7)