update on daughter

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worried mom 1
Regular Member

Date Joined Mar 2010
Total Posts : 172
   Posted 3/9/2011 7:21 PM (GMT -6)   
 Hi everyone just wanted to update everyone on my daughter.  It has been 4 weeks since my daughters surgery.
She is doing great.  I took her out her third week home and she realized she could eat and empty it while she was out.  She has been doing great since.  Havent't been home all week, had something to do everynight.  It is so nice to see the smile on her face and the sparkle in her eyes again.  I never thought I would be writing this but to who ever is thinking about surgery and is afraid, take it from me.  I was never so scared for her and didn't want her to have it.  It was the best thing she could have done. Yes it is hard at first, she is 15 but you would never have known she had just had major surgery.   You don't know how greatful I am to all of you for all your advice and support.  Thank you everyone.

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 3/9/2011 9:13 PM (GMT -6)   
Hooray! So glad you are happy with your choice. Most people are in the end!! It's wonderful to hear how great she's doing. It will only get better!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Veteran Member

Date Joined Apr 2009
Total Posts : 587
   Posted 3/10/2011 3:35 AM (GMT -6)   
That is wonderful news!
I am so glad things are going so well and you are both do happy with your decision.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

2b ColonFree
Veteran Member

Date Joined Nov 2008
Total Posts : 2603
   Posted 3/10/2011 5:38 AM (GMT -6)   
so glad she's doing well. it will only get better from here on. yeah

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 3/10/2011 7:40 AM (GMT -6)   
That is GREAT to hear about her and life post-op!

I bet you are breathing easier about the decision...(((BIG HUG)))
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 3/10/2011 8:33 AM (GMT -6)   
This news is making my day!....wonderful. There is nothing better than to see that "sparkle" return to their eyes!

PS....I think it is okay for me to say "Told you so"....lol
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

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Date Joined Aug 2008
Total Posts : 5951
   Posted 3/10/2011 9:29 AM (GMT -6)   
      Wonderful news!  It is a VERY tough decision.  I cannot imagine having to make that sort of decision for my child, bad enough I had to make it for myself.  My husband and daughter were my cheerleaders.  They pushed me in this direction.  If it weren't for them, I probably would still be sitting on those port a pots, having urgency, bleeding and wondering what med my GI doctor is going to put me on next.  I had a few blips but feel soooo awesome now.
     Wishing your daughter a long and happy, healthy life yeah !!!

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 3/10/2011 10:13 AM (GMT -6)   
Absolutely Wonderful! Thanks for checking in and letting us know how she is doing.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Regular Member

Date Joined Nov 2010
Total Posts : 111
   Posted 3/10/2011 10:17 AM (GMT -6)   
Yay, this is so great to hear! I hadn't heard from her by email in a little while so I was wondering. Not so "worried" mom anymore, huh? It's about time she got her life back!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 3/10/2011 10:41 AM (GMT -6)   
Excellent news! I'm so glad she is doing well. I love seeing these happy stories, they are so reassuring. We definitely need to share more of them whenever we can. I hope for continued health and happiness for your daughter. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 3/10/2011 10:45 AM (GMT -6)   
That is great news, and great that she's out and about so quickly. I'm happy for your whole family.
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