How did you decide on your appliance?

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run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 3/15/2011 12:04 PM (GMT -6)   
I know different stuff works for everyone, but I am curious how each of you decided upon your particular appliance of choice? Was it something that was introduced to you by your WCO nurse? Something you got as a sample from a company? Or something else? Right now I am going through some of the educational materials on the supplier sites (Coloplast, Hollister, etc) just to get a feel for what the different options are. I know that I won't have any idea what will work for me until I have my stoma and know what it's like, but I just like knowing what's available.

What is your appliance selection story?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/15/2011 12:35 PM (GMT -6)   
mine is what the ET told me to use, and it has worked so far. what an exciting story, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 3/15/2011 1:12 PM (GMT -6)   
I use convatec natura two piece. Like being able to change bag and leave wafer in place so keep skin irritation to a minimum. Also the wafer has two different adhesive parts, the inner flexible ring and the outer adhesive which looks like mefix tape. It gives me peace of mind that should a leak breech the first inner flexible ring that it still has to get through the outer adhesive.

I was given a one piece initially by stoma nurse after first op in 1992 and had to change from that as after 3 months the wafer wouldn't stick to my skin anymore, that's when I swopped to the two piece I use now and have used it ever since.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/15/2011 2:06 PM (GMT -6)   
i was given by the hospital's stoma nurse hollister's appliance. but it didn't work for me, the wafer didn't hold for more than 2 days 3 tops. then i asked coloplast to send me samples. i tried it and it worked great. their wafer holds for a whole week, so i sticked to it, never tried anything further. i tried paste of hollister's, coloplast and convatec - convatec has the best paste, but the addapt rings are even better.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

80sChick
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Date Joined Oct 2009
Total Posts : 1054
   Posted 3/15/2011 6:02 PM (GMT -6)   
I started with a Hollister two piece from my WOCN, and liked it fine. I saw in the ordering booklet when I got home from the hospital that they had a mini pouch, which I knew would be perfect for me! I love that.

Then the adhesive started bothering my skin. Luckily Hollister offers a pure-pectin wafter that has no irritating adhesives. Now I use that.

I've tried many other products but like this best. Really the best way to know if you love this is to try a BUNCH of stuff! Different brands have different adhesives, different closures, different-sized pouches, etc. You'll have to experience it to know what will work for you. Once you have your surgery companies will send you samples!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/15/2011 7:50 PM (GMT -6)   
Hospital introduced us to the Hollister New Image 2 piece. The pouch had the clip and we switched to the lock and roll velcro closure one that he likes much better. Dealing with a skin irritation and tried the all pectin wafer but he didn't care for that. Currently using the powder and will see how that helps if it does.

Not sure if the adhesive portion of the wafer is giving him the sensitivity or not as the all pectin didn't seem to make much of a difference.

We have samples from Convatech moldable type and haven't tried that yet. Guess we are still in an exploratory stage.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 3/15/2011 8:44 PM (GMT -6)   
Tried many, many different ones on J. Hollister, Coloplast, Convatec, one piece, 2 piece, paste,  you name it we tried it. I got samples from everyone. Talked to the ostomy specials at each of the companies. We never had a "really" good ostomy nurse, so did most of it on my own.  Ended up with a one piece Coloplast, EZ vents and Eakin seals.

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 3/15/2011 8:46 PM (GMT -6)   
Thanks everyone for your responses. I guess it's just a matter of seeing what they suggest I start off with and then trying different stuff if that doesn't seem to work like I want it to or I have problems. I think I am somewhat interested in a two piece where I can rotate the bag from vertical to horizontal position for use with something like the Stealth Belt for running, etc. It's funny though because at the same time I realize I have no clue what that will feel like or if I'll like it at all.

Such a weird process. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11
http://life-takes-guts.blogspot.com/

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/16/2011 5:42 AM (GMT -6)   
A two-piece is usually best at first because it's easier to put on, but try not to worry about it now. When you have your surgery you'll be able to actually try things and decide then!
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 3/16/2011 9:30 AM (GMT -6)   
I am early in the process of figuring out what I like (about three weeks post surgery). It's still overwhelming, but I am figuring out what's important to me. The nurse at the hospital started me on a convatec two piece with the moldable seal. I liked the moldable aspect, but I found that version hard to clean -- I needed to use a squeeze bottle of water, and it was hard to do in the hospital. The nurse then gave me a coloplast two piece, and I liked that better largely because it's much easier to clean. Then someone I met gave me a coloplast one piece, and I liked that better because it's lighter, but I'm not sure how that works when I'm more "back in action" and maybe will want to use different sized pouches. I just had edgepark send me some samples, which they are tailoring based on what I like so far.

I am gradually figuring out what's important to me, and I liked the coloplast one piece ones enough to order a box of them. You'll figure it out too ..... try two, see what you care about in the differences, start figuring out opinions etc....

The one thing I would recommend is to get some M9 drops in advance. The nurse didn't have samples of them. I haven't been able to sit on the toilet (with my surgical complications), so my face is closer than I'd like when I empty, and until I got the drops, the smell on changing was really bothering me..... the nurse didn't have samples of these, and they work a lot better than the other things I tried.

I guess I sound like a neat freak, really am not..... but not getting smelly poop all over my hands turns out to be a priority for me.......

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 3/16/2011 11:09 AM (GMT -6)   
I guess I sound like a neat freak, really am not..... but not getting smelly poop all over my hands turns out to be a priority for me.......


I can see that being a big deal! I will check into the drops. I'm wanting something I can carry in my purse for when I have to empty in a public restroom. I guess like a mini spray or something??

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 3/16/2011 11:50 AM (GMT -6)   
The drops come in an 8 ounce bottle.....I was thinking I'd just put some in something smaller, but I'm sure others here who are further along have solutions.....

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/16/2011 7:19 PM (GMT -6)   
My WOC Nurses were great and I've had a few adjustments over the years with my 'new' stomas each time, but I find the Coloplast extended wear works best with this one! I've almost always used and Eakin Seal (try both because they do work differently on each person) and a Sure Seal. You'll want to try the Sure Seal for running...I wouldn't take a step without it:) it's breathable and waterproof so the wafer doesn't lift with sweat. I'm not sure you'll like the stealth belt for running...friction...but if you are game, try it! I just fold mine up into my undies and run smilewinkgrin I haven't had a problem yet...even my half marathon was a non issue yeah

I carry a Bianca in my purse (or pocket) and spray it into the toilet before I empty...minty fresh...and not obvious!

It's good to know what you are getting into but don't request samples until you know how your stoma looks. That way you have a better idea what to ask for so it works for your situation.

Velcro closure and filters are a must and I always use a two piece appliance.

Good Luck!!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/16/2011 8:35 PM (GMT -6)   
i use the mouth spray stuff too, only i spray it on the toilet seat then wipe it off, cause that way the alochol in there kills the toilet germs too!
Although, the other day, some friends were over and i had the little thing of breath spray out of my purse, and one of them asked why that was in there, well they know but i just didn't feel like an explantion kind of thing, so i said, i just spray it on dirty seats, it fits in my purse.
So the guy says, but then your butt will smell minty, won't people notice?
and i said, well so far noone has sniffed my butt in public so i don't really worry!
He's not too bright, lol.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 3/17/2011 9:32 AM (GMT -6)   
LOL @ no one has sniffed my butt in public.

Good tip about the mouth spray! I never would have thought of that. :-)

Equestrian Mom: good point about the Stealth Belt. I keep going back and forth about it. I think if I can try the Sure Seal thing and feel confident, then I probably would prefer not to have something else around my waist. I already wear a mini-race belt from Fuel Belt with the small pouch for my iPod and the loops to hold gels and stuff. I sweat a lot, so some kind of extra adhesive or security will be a must for me, I think. So glad to hear you were able to do a half marathon with no problems. That is my favorite race distance. :-)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11
http://life-takes-guts.blogspot.com/

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 3/17/2011 8:47 PM (GMT -6)   
I tried everything before settling on the Coloplast Sensura Flex with the adhesive coupling. I was given super basic cut to fit convatec in the hospital and was kinda mortified at the thought of the clear bags and chunky clip that I had to sit somewhere that it would fall into the toliet. I knew nothing going into it everything since my surgery was an emergency. My colon perforated and 4 hours later I was in surgery. so i tried the convatec at home, found this section of healing well (was on UC board before that) and was like whoa there's all kinds of things out there! So i went sample crazy! In fact I had so many samples that I didn't order any supplies until i was 6 weeks post op. I tried a few different hollister and like those better than convatec so then i scraped convatec from my list of possible permanent picks. Then I tried marlen and coloplast. Marlen was a no go and coloplast was my new love. I tried some different types with them before finding and settling on the Sensura. for me the adhesive coupling and the clean-ability of the bag were the clenchers. My stoma is way above my belt line and click rings showed through all of my shirts, so when I found this I felt so much more comfortable. the end folds up so nice and neat, and is super easy to open and close and clean. the filter kinda sucks and gets clogged really fast, but they all kind do that so i live with it.

I also use a small eakin stretched around for light convexity and sure seals. I wear no belts because they are uncomfortable, and once again you can tell if i'm wearing one because of where it is situation on me. I had a small bout of leaks a month ago because i lost some weight and then regained it but other than the my system is golden. I'm just hoping its still golden when i get my loop ileo in a few days :/
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery scheduled 3/21/11

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 3/17/2011 10:16 PM (GMT -6)   
Good question. I have been wondering the same thing since I am finally at the point where my incision that I had multiple complications with is healed, and I can try new things. Up to this point, I have been using the same ones I left the hospital with (Coloplast Assura one piece extended wear) as they were really lightweight and my nurse wanted me to stick with one pieces as they put less strain on my healing wound. Not to mention that I had zero leaks with them and decided it was best not to experiment with an open wound so close. Now at four months I am super eager to try some of the many samples I have. Kinda scared though too since the ones I have been using are so predictable. I just don't like how they are clear, and I am incapable of getting an opaque one-piece over my irregularly-tear-drop-shaped stoma correctly. Plus I think a two piece would be better for some of the sports I like doing as I can swap out pouch styles or wear them horizontally for a bit of time if needed.

Also, I thought I loved the Adapt Rings, but recently tried an Eakin ring and it worked so much better for me. Didn't erode as quickly and helped heal up a tiny little irritated spot under my stoma that I have been plagued with since November. So definitely try both of those to see which one works best for you.

Betsaronie, are you able to switch out pouches on the adhesive coupling? For instance, if I use a drainable most of the time but want to put a closed end pouch on for a swim or climb, can one swap bags out multiple times on one wafer or does it become unsticky?
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 3/18/2011 4:59 AM (GMT -6)   
I've recently ordered loads of samples as have been using the same bags for 18 years and thought would have a look at latest developments. I currently use convatec natura two peice system as hate the velcro built in clips and prefer having separate one, much easier to clean and don't need to fold the bag up half a dozen times which means you don't lose volume. Also like a two piece so can change bag and leave wafer in place and the wafer has a two part adhesive system to give better seal and leakage protection.

Well recently got new wafers from convatec. They have a mouldable inner piece inside the wafer ring. A bit like a sure seal or eakin seal. You roll it back against inself then put bag on as normal and it then gently seals around stoma. Have to say very comforatable, no need for paste or seal rings as it does it all in one. Have always used paste as have high output and more liquid so need extra protection on the skin around stoma. Oh and this wafers don't need cutting, they just take your normal wafer size and ask for approx size (just smaller than) of stoma and round hole is cut in wafer so it is a snug fit.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 3/22/2011 1:10 PM (GMT -6)   
I ordered samples from every company that would send me some, which turns out to be a LOT.

The horror that I was sent home from the hospital with was clear, crunchy, and I dread to even think about the poor souls who think that is all there is! I was advised not to use a 2 piece in the beginning, but that is hogwash. The hollister wafers I use do no require pushing on or around the stoma any more than a 1 piece, and I don't screw up 25 times trying to get it on properly.

After plowing through sample after sample, I found the Hollister 2 piece to be my best friend. The wafer lasts for a full week. The bag is quiet an flesh colored.

The pouch, and the powders and pasts etc, are all trial and error. So, order samples of everything you can get your hands on, and keep good notes! It took me about 6 months to find my "dream team" line up.
28 yr old female
crohn's since 2004
every med.
ileostomy Jan 2010
wondering why I waited so long.

Trixiemom
Regular Member


Date Joined Nov 2010
Total Posts : 89
   Posted 3/23/2011 10:07 AM (GMT -6)   
I like the coloplast products...right now it is the sensure click system but with my stoma being so high up have had probs with it popping off if i bump it the right way.I am in the process of getting samples of the coloplast sensure flex hopefully I wont have any pop off problems with that. I like the coloplast wafers as they do not cause any skin probs for me so I will stick to coloplast. Trixiemom
have loop ileostomy
diagnosed with colon inertia
I love my ileo and life
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