New here- Total Colectomy anyone?

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Sommer88
Regular Member


Date Joined Mar 2005
Total Posts : 37
   Posted 3/2/2005 2:03 PM (GMT -7)   
Hi
I think I posted in the wrong area last time.  I was looking for anyone who has had their large intestine removed.  I had mine removed 8 weeks ago and am looking for some answers on how life is going to be.  Will I have normal BM's again?  Should I be having these sharp pains up high?  I have an idea of what to eat and what not to eat but it would be nice to get a better insite into when I can eat veggies and fruit again.  Thank to anyone who can help or suggest another forum.

M
New Member


Date Joined Feb 2005
Total Posts : 12
   Posted 3/3/2005 7:07 AM (GMT -7)   
Hi Sommer
I had had my large intestine & rectum removed about 9 years back & now have a perm illeostomy. At first I was devastated & had trouble going back to my normal routine (I guess I still do) but after a while u get used to it & its not so bad after all. About the diet I still can not take any dairy products but fruits & veggies are no problem at all. though u may want to stay away from very oily/spicy food. After the surgery I had some pain but it subsided eventually. maybe u should consult ur doc about that.
I am also a new member of this website unfortunately I dont know any other forums.

Hope u feel better - feel fee to get in touch if u have any other concers

Sommer88
Regular Member


Date Joined Mar 2005
Total Posts : 37
   Posted 3/4/2005 10:11 AM (GMT -7)   
M
Thanks for the reply. I think my pain might be from the Imodium AD I was taking to slow down the "water works" i've been having lately. I guess I have to just trade off one problem for the other. Thanks for letting me know about the fruits and veggies...... good to know. I thought I would never be able to eat them again. I don't know if you remember, but do you know how long it was before you could do normal things again like exercise, sit-ups, jog. I think I'm just being impatient, but I want to get back to doing those things and I don't feel up to it yet. I have 2 little one's, a girl 3 1/2 and a boy almost 2 who run me so hard I feel very exhausted by the end of the day. Is that normal just because of surgury.
Thanks again, it's nice to talk to someone who knows how I feel!

M
New Member


Date Joined Feb 2005
Total Posts : 12
   Posted 3/7/2005 6:30 AM (GMT -7)   
Hi Sommer
Docs adv me minimum 8 weeks of rest & then slowly get abck to my normal routine . It actually took me about 6 months to get back to my normal routine but I guess each individual is different. Even after so many yrs I still get a little tired & my doc says thats normal ...
Its good to know u are feeling beter. Did u have the surgery due to Crohns or UC.

Sommer88
Regular Member


Date Joined Mar 2005
Total Posts : 37
   Posted 3/7/2005 9:22 AM (GMT -7)   

Hello M

I actually had the surgery due to colonic inertia (paralyzed colon). I've had chronic constipation since I was 13... now 37. After two children, it was unbearable. Only going every week to 10 days was good. After a lot of tests and three doctors telling me (as far back as 10 years ago) the only solution was to have my colon removed, I decided it was time. My doctor said I would eventually have to have it removed ...now or when I was older ...better now ...younger and in good health. He also said I was at a very high risk for colon cancer which was pretty much the deciding factor. Thanks for the info.  Very helpful


Betsy1949
New Member


Date Joined Mar 2005
Total Posts : 1
   Posted 3/13/2005 12:28 PM (GMT -7)   
I am about three weeks out of my surgery - large intestine removed and rectum sewn shut.  I am gradually getting used to the bag, but have not totally changed it by myself yet.  I find myself emptying it six to eight times a day, including during the night.  I was told that Bob Hope had worn a bag for many years, and find that very hopeful, as he certainly didn't seem to lead a restrictive life style.  My main problems right now, aside frome some pain still from surgical site, is total lack of any energy, and trying to find a comfortable way to sit  I don't even want to think about going back to work, but know it will have to come eventually.  How long does it take the rectum area to heal, anyone know?

edwina
Regular Member


Date Joined Sep 2004
Total Posts : 75
   Posted 3/14/2005 4:42 AM (GMT -7)   
IT TOOK MINE A COUPLE OF YEARS. AND WAS ALWAYS SORE. THIS HAS BEEN SINCE 86. BUT NOW I AM OK. IT JUST TAKES AWHILE.
i have to look out for fistulas now tho.
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