Ileosotomy Reversal Surgery Scheduled/Should I?

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painshot
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/15/2011 11:04 PM (GMT -6)   
I am a 59 y/o male with SLE and s/p total colectomy  and loop ileosotomy 2 yrs ago.
After 2 yrs of pelvic floor rehab.,I am schedule for surgery but due to the "everything that could go wrong did" with my 1st surgery,8mos. in hospital.Long story!!!
Now Pre-op,I have been put thru the mill,34 medical procedures and exams .
There is a test called anamanometry ballon test which I have never been able to pass.A ballon is inserted in the rectum and you must pass it in less than 10 min.
Has anyone ever had this test and not been able to pass it and have the reversal surgery performed?
Despite being in the medical field for 30 yrs.,SCARED as hell!
thanks for your time and consideration.

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 3/16/2011 4:49 AM (GMT -6)   
hi painshot,

sorry you had so many complications. i had the anal manometry test twice before my TC and on both times couldn't expel the baloon. i had my whole colon removed and my small intestine attached to my rectum, but i couldn't manage b/c i couldn't expel the stools, so i opted for an ileostomy.

i say first have the test and see how it goes, maybe meantime things have improved. good luck!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 3/16/2011 5:54 AM (GMT -6)   
Hey
 
why do you want to go through with all that if it could go wrong?  If i knew now what woudl happen to me after reversal i wouldnt have bothered.  life is ok with an ileo so why put yourself through pain and suffering if you are ok with a bag?  That is my theory.
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well

painshot
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/18/2011 1:20 PM (GMT -6)   
Thank you for your respones.
Despite the 2 years of having "the bag" ,I have not been able to  adapt to the ileostomy.
Having lupus, the bag erodes my  skin,and I have not had the success of like others with it.
The reversal is scary because the 1st surgery I coded and was  on the vent x 2 mos.(later to find out I was
missing several sutures at site of where they connected my small bowel causing me to become septic
and bleeding out).I was givin last rites.
Karen it is a war with my immune systerm and the bag,my body won't get onboard.
I really appreciate the support,
I feel alone and scared in the medical nightmare/dilema .  

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 3/20/2011 10:08 AM (GMT -6)   
I am so sorry to hear of all the other problems and your dilemma - i do hope your drs can be of some help and support to you and help you in the outcome. really feel for you and hope you can find peace and not feel alone. x
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well

painshot
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/21/2011 11:00 AM (GMT -6)   
Karen
"not going well" ,I am afraid to ask what this means ??????????????
My surgeon is aware of what i went thru the 1st surgery and said I probably should be on the internet making my mindset already worse.
I am 2 weeks from surgery and I still feel i may back out.My doc's understand my relutance but the other side of the coin is living with SLE/lupus and a loop ilieostomy where when you change the appliance/bag ny skins rips and starts to bleed and will not heal.
In the AMA's new England Med. Journal i was written up about my TC and loop and what happened.they found less than 1.5% of the population survive.
Do I hope the next time I have the same luck if they break out the defibrillator?
Or live in 24 hr. pain and be glad i am "just alive"?
Thank You very Much

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 3/21/2011 11:10 AM (GMT -6)   
Have you considered a k-pouch?

Sue

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 3/22/2011 5:44 AM (GMT -6)   
hey
 
i dont quite understand all your words but am i correct in saying they think people like yourself dont survive operations?
 
No - no one wants to 'just be glad to be alive' if they are in constant pain.  It sounds like you have no choice in the matter with your skin coming off and not healing!!! I expect you have tried special types of bags for sensitive skin.....
 
I am sorry your drs are not being very helpful.  sue bear mentions a K-pouch and that might help with outlet problems i dont know.  praying for you. x
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well

painshot
New Member


Date Joined Mar 2011
Total Posts : 4
   Posted 3/25/2011 9:02 AM (GMT -6)   
Thank you
I have tried all type of ostomy supplies available.
Having an auto-immune disease such as SLE(lupus) just makes things 10x more complicated medically.
I am afraid of all the horror stories of post ileostomy reversals.
What is the most common problem incurred after having a ileostomy reversal?
Again thank you!
p.s. ? K pouch

2much2bear
Veteran Member


Date Joined Mar 2008
Total Posts : 624
   Posted 3/25/2011 9:46 AM (GMT -6)   
Hey

i have no idea what a k-pouch is - you might have to google to find out....

I think the most common problem is lots of bowel movements after a reversal of an ileostomy - if you dont have your large bowel that is. Lots of ppl manage however and the bowel sorts itself out after a while. However ppl with colonic inertia - like myself - could end up stil having constipation problems. so i that is only 'horror' story i know of... most ppl get through ok.
Karen: 49 years old
1997: Diagnosed IBS
2003: Pelvic Floor repair
2006: STARR procedure - mucosal prolapse/ODS/diagnosed slow transit constipation
2007: Sigmoid resection (MRI showed twist) - made colonic inertia worse (cleared obstruction though)
March 2009: Total colectomy with ileorectal join and loop ileostomy
23 Sept 2010: Ileostomy reversal - not going well
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