Thanks for the advice everyone, I am doing my best to deal with the "wait" right now. The biofeedback sessions are confusing and uncomfortable, and I feel like my pelvic floor area is more irritated since beginning them!
I have been wondering, if anyone here has had a defecography test - what is that like? For me, if I am going to have a bowel movement without laxatives (those rare times) I have to sit and relax with a heating pad on my stomach and relax and do something like work on my computer or something for a while, and then I will gradually feel an urge to go and when it's strong enough I sort of hurry to the bathroom and with a little pushing everything mostly comes out. But if I just sort of have an urge I can go sit on the toilet and push until the cows come home but nothing happens. I have to really have an urge, and then I can almost just sit down and relax and it will come out. The only frustrating thing is lately I have noticed that sometimes the very last bit of my bowel movement is very soft and a tiny bit stays up in the rectum. But not an amount that I can feel or that makes me uncomfortable - almost like if you squeeze all of the toothpaste out of a tube of toothpaste, there is still toothpaste IN the tube but it's just "residual". Is that normal with bowel movements that are very soft or not well formed?
Back to the test - I was wondering how much barium they actually put in you, and how far up it goes? Do you feel an "urge" to go? I had a manometry and was told I had excellent nerve sensation, but I know having a bowel movement in a clinical setting is much different than having one at home. I am worried if I had this test and didn't get any urge to go I wouldn't be able to get all of the barium out. Do you have to get it ALL out to "pass" the test? I don't even know if or when I'll have this test but I'm sure it would be in the cards eventually. I also wonder sometimes if I have some kind of prolapse or intestines pushing down into places they should not be. With my sitzmark test I had all the markers left and they were all spread out for the most part, not clumped down in the pelvic area, so I know I have slow transit but I'm not sure what is going on outlet-wise. I have been hoping to eventually look into surgery for my extremely slow transit but I know things like a bad defecography can limit ones options. If someone could shed some light on these issues or this test I would really appreciate it. I feel I have so many questions and some of them I don't even know how to ask, or what to ask. It is nearly impossible to talk to my family because much of this is beyond anything they are familliar with. I get so much advice on my diet and people say things like, "Can't you just...." or "What if you try...." It is frustrating, but being able to come here and ask you guys helps a lot.
hurtboy, thanks for introducing yourself! I agree, the bloating is the worst. I also graze in the evening. I'm just so tired of thinking about
this all the time. My next appointment is not until April 19th...and every day that I have to wait feels like an eternity.
Post Edited (Alibee) : 3/24/2011 11:45:52 AM (GMT-6)