Battle of the Bag

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Regular Member

Date Joined Sep 2006
Total Posts : 241
   Posted 3/18/2011 8:57 AM (GMT -6)   
I am on my third week with an ileostomie bag.  At first, it was fine.  Now, the last three days, I have had to change the bag twice a day.  Needless to say, I am hating life right about now with the rawness.....
I am using the stomahisive.  Can't wet it with the skin prep because of the sting.  Although I just bought No Sting barriers last night and they may help.  Could I be making the opening to small?  My stoma is about a 1/2 but after a while in the bag, it turns into a turtle and pulls it's head it.  I'm sitting here now just holding a bag on to try and give the skin some air.  Thoughts???? confused

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/18/2011 9:16 AM (GMT -6)   
If you keep breaking through your wafer, then yes, you could be cutting the hole too small. Have you an ET nurse you can consult with? I found them to be invaluable in the first few weeks post surgery.


Dave D
Regular Member

Date Joined Aug 2005
Total Posts : 404
   Posted 3/18/2011 12:34 PM (GMT -6)   
Ditto Suebear's response about the ET nurse. I'm anything but an expert although I have had 3 loop ostomies before. If you are having burning skin problems you should probably use a seal like Eakin as paste has alcohol in it and therefore burns. Also, if you have some sores around your stoma some skin prep crusting might be in order.

Veteran Member

Date Joined Aug 2006
Total Posts : 6571
   Posted 3/18/2011 2:40 PM (GMT -6)   
The skin prep will shorten wear time
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Veteran Member

Date Joined Feb 2011
Total Posts : 1059
   Posted 3/18/2011 4:18 PM (GMT -6)   
I've used cavilon skin barrier wipes and they don't effect wear time adversley. They provide just enough of a film to protect the skin and allow it time to heal and the bag still sticks on ok.

Also sounds like your stoma could be convex, they do special bags and adaptors to push the stoma back out so it stops the leaking under the wafer bit.

Have a word with your stoma nurse as they should be able to give you samples to try and find which one works best. Stomas do shrink and change a few weeks after surgery so best to keep a supply of different types of bags until swelling from op all settled down.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Veteran Member

Date Joined Mar 2010
Total Posts : 1595
   Posted 3/18/2011 7:57 PM (GMT -6)   
My stoma is sometimes out and sometimes retracted, like you describe. I had to change to a convex wafer. It is hard and pushes your abdomen in around your stoma. I used to have blowouts often but none since I changed to a convex wafer. For the raw skin problem I use Friars Balsam compound. It stings like hell but heals. It is sticky when dry and does not shorten wear time. Skin preps shorten wear time and promote leaks.


Veteran Member

Date Joined Oct 2010
Total Posts : 776
   Posted 3/19/2011 12:36 PM (GMT -6)   
Agree with both posts above, sounds like your stoma has retracted.. mine did exactly the same at 3 weeks post surgery. I switched to a convex bag with a hard flange which pushes the stoma out and it worked a treat. I also had burning around the stoma but used a powder to heal the skin - can't remember the name. Ask your stoma nurse as they should be able to help. You shouldn't have to suffer like this. Good luck
Sarah - 38 year old mum of 2 boys, competitive runner/triathlete, fitness magazine editor

June 2010 - Peritonitis caused by perforated diverticulitis
August 2010 - Partial colectomy and temp ileostomy
October 2010 - Ileostomy reversal - but didn't go well and struggling since
February 2011 - Suspected CI or IBS.......
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