Reversal scheduled for April 6

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worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 3/18/2011 2:29 PM (GMT -6)   
 
  Hi everyone, just got back from a visit with her surgeon.  Surgery scheduled for April 6. Everything going great.  Energy is back, gained seven pounds (up to 96 lbs now), Never at home anymore.  This time I am asking here for any help instead of getting myself all worked up.  So is   their anything I should know or do before or after surgery?  I wish I would have asked more questions here before her first one.  So this time I am being ready.
 
    Thanks everyone this site is great.
        worried mom1

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/18/2011 4:51 PM (GMT -6)   
Wow, so soon! I'm jealous. ;) It sounds like she's doing absolutely wonderfully, I'm so happy for her.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Bay Area Guy
Regular Member


Date Joined Jul 2010
Total Posts : 301
   Posted 3/18/2011 5:46 PM (GMT -6)   
Expect her to have a ton of gas for a while. Walking will help a lot. The second night after my reversal, I actually ended up walking from about 10PM to 7AM the next morning. Not constant, of course, but very regular walking, as that was the only thing that kept the gas at bay. Then, when I finally had a bowel movement (and yes, the nurses will ask just about every time they see her), the flood gates opened and I think I had something like 12 movements in the space of about 10 hours. The surgeon finally relented after the nurses told him and had me take something to reduce the frequency.

I also kept on the same diet I had while I had the ileostomy for about a month after I got home. My wife and I introduced new foods slowly, and I also kept fibrous foods to a minimum during that time. I can't tell you how happy I was to finally be able to eat the various veggies that I loved to have.

The gas stayed on for a while, probably about a month or so, then finally just disappeared.

Make sure she stays just as hydrated as she did while she had the bag. I went on a Mexican cruise this past January and made the mistake of too little water and too much wine, got a little dehydrated, and ended up with a small bowel obstruction. Painful, but easily quickly and easily treated by just bags and bags of IV fluids and a liquid diet for a while, but still a valuable lesson about something to avoid at all costs.

One other thing. Make sure she takes a multivitamin. Not sure of her age, but your daughter's weight seems a little on the low side. I was underweight after my initial surgery, and also anemic, so I took (and still do take) a multivitamin with iron. That seems to have helped me quite a bit, as my hemoglobin level is back to normal now.

Please wish her good luck and good health!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/18/2011 9:52 PM (GMT -6)   
How awesome that she is doing so well and her surgery is due soon.

When we were reseaching various information about j-pouch surgery hubby was hoping to be a successful candidate for.... one thing that stood out was the need to use something like Desitin after each movement to create a barrier and help eliminate the "butt burn/irritation" after effect due to the acidity of the output.

How wonderful that she is doing so well. What a relief for you!
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

worried mom 1
Regular Member


Date Joined Mar 2010
Total Posts : 172
   Posted 3/19/2011 5:51 PM (GMT -6)   
bay are guy,

Thanks for the information. She is 15 yes is on a multivitamin, iron and b 12. Sometimes it is hard to get her to take them, before surgery she was taking at least 15 pills a day. She was getting tired of all the medicine. So she is slowly starting to take them again.

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 3/20/2011 10:48 PM (GMT -6)   
Worried Mom:

Best of luck to your daughter..she is in good hands with a Mom like you....by April 6th, I will have been two days out of surgery..no more colon....so, post me some good news to read while I am healing...

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 3/21/2011 4:44 PM (GMT -6)   
I am so excited for her. I will be ahead of her by a couple days. I hope that will be a good week for both of us!
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.
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