Saw a picture of my colon

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blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 3/18/2011 4:02 PM (GMT -6)   
I went in today for a follow up visit with my surgeon, and as promised, she showed me a picture of my (former) colon, which she removed three weeks ago. Oh, my, it was WAY worse than I realized..... a doctor at the hospital a few months ago gave me a slide show tour of all my colonoscopies to try to help convince me that surgery was the best option, but boy did it look worse from the outside. The transverse part was so narrow, and it looked like it had been cooked on a grill; it was mosstly black (my surgeon said they call this part "burned out," an apt phrase). The rest of it didn't look quite as bad, but no part of it looked healthy, and looking at it, it was pretty much impossible to imagine that an organ this diseased could ever get better. I can't believe I lived with it so long..... and that it functioned at all.

I also just realized that I had my appendix out three weeks ago too! I didn't even know I was losing that too, but it is kind of attached..... just add that to the list, I guess. The pathology report said I had appendicitis too.... everything they took out was inflamed. The good thing was that the little bit of ileum she took out has no sign of disease at all.

Not that I was doubting having surgery, but seeing the photos just made things so clear.... my gi doctor said before that it was a problem that you can't see your colon, that if a piano fell on my leg and it was all mangled and I could see it, I wouldn't be saying that a little rest might fix it..... my colon looked more like it'd been barbecued than that a piano fell on it.....

In any case, if you're up for this sort of thing, I recommend asking your surgeon to take a photo and show you afterward (I asked mine if I could have the colon itself, no can do, but she routinely takes photos .... she couldn't slice it open for more photos because the pathologists would get angry).... she's also going to send me a copy of the photos (had to promise I wouldn't post them on the web....)

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 3/18/2011 4:14 PM (GMT -6)   
I always see the scans that they do on me and on a normal person you see, for want of a better description, a long hose pipe coiled inside your abdomen. Mine looked like a great big blob of stuff all mushed up together where the CD has made so many of it's own pathways and fused all the bowel together. No wonder no one else apart from my surgeon will operate on me!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/18/2011 4:53 PM (GMT -6)   
Your colon was black!? That's insane... sounds like you got it out just in time. Now I want to see pictures of mine!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 3/18/2011 5:15 PM (GMT -6)   
Parts of it were black! I had no idea..... weird part is that jacked up on pred a week before surgery, I was actually having formed stool and doing as well as I have been in a year or two.... I thought maybe it'd look normal for a minute or something....

polishdan
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Date Joined Mar 2010
Total Posts : 1595
   Posted 3/18/2011 7:45 PM (GMT -6)   
Back in the mid '70's when I first started with UC my Dr. would do colonoscopies in his office. At times I would do the prep, go to his office in the early morning and do the coloscopy wide awake then go to work! Yes he used an air compressor.....you wanna talk about gas pains. One time he had me look into the eyepiece to see my colon and a polyp. I cannot believe I went through it with no relaxation medication.

Dan

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/18/2011 9:40 PM (GMT -6)   
OMG Dan.....my very first sigmoidoscopy was done with no sedation and I took a mild tranquilizer before...they had to stop at least 3 times and only went about 70% of the way...the pain was intolerable for me. Suffice to say a note was made next time the full colonoscopy with sedation. Hubby sailed thru his like you did. I realize the sigmoid is less of an area but my feeling is get sedated and do a colonoscopy and feel no discomfort. Once hubby had a sedated procedure he agreed..lol.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 3/18/2011 9:49 PM (GMT -6)   
"Hubby sailed thru like you did"? There was no sailed thry. Maybe "squirmed thru". It was he**

Dan

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 3/19/2011 2:45 AM (GMT -6)   
They tried to do my first colonoscopy without sedation, after they scraped me off the ceiling from the pain they said maybe they had better do it in hospital under sedation. When I had it done eventually they admitted me immediately as the scope was so bad, he did say no wonder I was in so much pain when they tried to do it first off.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

ENIGMAWRAP
Regular Member


Date Joined Nov 2010
Total Posts : 422
   Posted 3/20/2011 10:45 PM (GMT -6)   
All I can say to your doctors, for the ones who went through with no sedation, is "NUTS!" yeah
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