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J's Mom
Regular Member

Date Joined Oct 2008
Total Posts : 109
   Posted 3/25/2011 8:50 PM (GMT -6)   
Just wondering how you are getting along? Have you gotten any resolution to your blockage issues?

Veteran Member

Date Joined Oct 2009
Total Posts : 1054
   Posted 3/26/2011 7:52 AM (GMT -6)   
Hi J's Mom,
Thanks for thinking of me. I'm doing ok! Haven't had a blockage in weeks. Looks like that one-week long blockage-after-blockage wasn't permanent. Right now the plan is to wait for the next one (which I'm sure will happen), and then go get a CT scan while its happening. Then my dr said I can put the tube in. Then he will come up with a plan for surgery. In the meantime I'm going to the Mayo Clinic in Jacksonville, FL,on April 20 to get a second opinion. I will keep you all posted.
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 3/26/2011 2:35 PM (GMT -6)   
glad to hear that you are feeling better and that you have a plan
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

J's Mom
Regular Member

Date Joined Oct 2008
Total Posts : 109
   Posted 3/26/2011 3:16 PM (GMT -6)   
Glad you are feeling better. I am a Mom, can't help but worry over folks. My 25 y/o daughter travels a lot and asks "at what age will I not have to call you when I get to my destination?" My answer to her " when I get alzheimers and can't remember that you are traveling:.
Take care and keep us posted.
22 year old developmentally delayed son with ileo since 2008
Dx'd with UC 2007

Veteran Member

Date Joined Jan 2007
Total Posts : 4147
   Posted 3/27/2011 4:32 AM (GMT -6)   

I was thinking of you too. Glad J's Mom wrote in. Good luck. Glad you have a plan B also. Rosemary

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 3/27/2011 10:00 AM (GMT -6)   
Because you have a plan you'll do fine until the 20th...Murphy's Law!

My fingers are crossed they find an answer.
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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