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Veteran Member

Date Joined Aug 2008
Total Posts : 5975
   Posted 3/27/2011 7:17 PM (GMT -6)   
     I was just curious as you mentioned your rectum was diseased when you suffered with UC.  But, you have a j-pouch.  Don't they leave part of your rectum intact in order to create a j-pouch?  My surgeon said my rectum was badly diseased...glad I got rid of it.

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 3/27/2011 7:49 PM (GMT -6)   
Hey...not Suebear... but Dillon had the same thing. My understanding was that they left part of the rectal tissue between having the colectomy and having the J pouch built. This is to keep the anal tissue healthy. Dillon's rectum was badly diseased but it did not cause him problems while waiting for his J pouch. We were told that it is because there is no stool passing over the ulcers so it is usually not painful. He did still have a little bleeding. When the pouch is built the rectal tissue is stripped away and the pouch is attached to the anal tissue. This is how I understood it.
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Regular Member

Date Joined Nov 2010
Total Posts : 111
   Posted 3/27/2011 8:29 PM (GMT -6)   
I believe the lining of the rectum is removed. That removes the layer that UC affects.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 3/27/2011 9:32 PM (GMT -6)   
Yes, my rectum was severely diseased. I had my rectal cuff, the last 1cm of rectal tissue, stripped. That's called a mucosectomy. A mucosectomy removes all UC cells and is only done by very skilled surgeons because if done wrong, one could become incontinent.
My surgeon is one of the most experienced surgeons in the US and does this procedure beautifully.

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