Expectations after reversal

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Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 3/28/2011 9:24 PM (GMT -6)   
Monday is the big day! The last surgery we didn't prepare my daughter for what I might be like (I don't react well to anesthesia). It was not fun for anyone. Anyway, what can I expect as far as pain, etc. after my reversal. I know I will have to go a lot. Will pain, walking, etc. be easier this time? Will there be any tubes coming out of me? I understand that I will be on a liquid diet for a week. Does that mean jello, Popsicles, etc. or will they give me creamy soups? Also if I'm on a liquid diet, isn't it hard to get the bowels moving? And I can't leave until that happens.

Oh, and not happy...I have to do a small bottle of that citric over the counter stuff for a prep and only liquids the day before. I thought I was done with preps. Oh well, at least I don't have to drink all that stuff.

Anything else I should be aware of? My daughter is so excited to spend her spring break at the Cleveland Clinic, lol. Dad is going to take her to see Les Miserable so she is quite excited about that.

Thanks...I am getting my pre-surgery panic attacks and hearing what to expect helps.

J's Mom
Regular Member


Date Joined Oct 2008
Total Posts : 109
   Posted 3/29/2011 4:46 AM (GMT -6)   
Good luck, will be thinking of you.
22 year old developmentally delayed son with ileo since 2008
Dx'd with UC 2007

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 3/29/2011 8:15 AM (GMT -6)   
I had zero pain with the reversal, took no pain meds, and was disconnected to the morphine pump almost immediately. I do have a high tolerance to pain, though, so I am not sure if my reaction is normal. No tubes for the second surgery, you can walk fairly freely pushing just the IV tower. You will be on liquids until you pass gas, for me that was about 4 days.

Takes some calmoseptine ointment and various diaper rash creams with you to see which products you like best. Take a bathrobe for walking the halls. You will be a lot more alert after this surgery so you might want more things to keep you occupied. Walk a lot. The more you walk the sooner your bowels will wake up and pass gas.

I didn't have the prep. My surgeon has did the no food after 6pm the night before. I've never had a prep since that pre-colectomy clean out!

Lastly, do not fear food. You can eat anything. Some foods might not agree with you right away, like fresh fruits and vegetables, but they are not forbidden. There are not forbidden foods with a jpouch so don't listen to what others might say about restricted diets.

Sue

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 3/29/2011 10:22 AM (GMT -6)   
I haven't had my take down yet but I've read a lot on jpouch.org about bringing wet wipes with you, way better than the crappy toilet paper hospitals have. You might want some disposable undies or nighttime pads for sleeping because of incontinence issues many people face at first. Try checking out other suggestions at jpouch.org too, and good luck!!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11

beanie6421
Regular Member


Date Joined Feb 2003
Total Posts : 51
   Posted 3/29/2011 10:57 AM (GMT -6)   
Wet wipes, and DEFINITELY some A&D or Bordreaux Butt Paste. I tries what the hospital had, too. Good luck to you! Cleveland Clinic  is awesome. Feel like I live there half of the year. :o)

Scrap Girl
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Date Joined Jan 2007
Total Posts : 653
   Posted 3/29/2011 12:48 PM (GMT -6)   

Wow, it seems like you just had your first surgery - but probably not to you! I don't remember a lot about after takedown but I wasn't in hardly any pain at all. One thing I will tell you is to consider buying some non-stick gauze pad coverings to use over the spot where your stoma used to be. I'm guessing your doctor will leave yours open? I think they are stitched up somewhere beneath. At the CC they just used normal gauze pads and when they pulled those puppies off to change them it was pretty painful. You can buy these non-stick pads at Walgreens for like $5 and I wished I had taken some with me to the hospital for them to use there. You'll probably start out with broth and those type foods. If you take it too fast you'll end up throwing up - not fun! On the day I left the hospital I think I had chicken for lunch and I remember packing my chocolate chip cookies for the ride home :-) It's a long four hours!

Yeah, you'll have to go to the bathroom a lot. Hopefully, you will not have a roomate who does too because that's what happened to me and it seemed like one of us was always waiting to get in there. I bought some Poise pads before my last surgery - couldn't bring myself to buy diapers. I think I wore them for a couple of weeks, mainly at night. Why I bought the jumbo pack I'll never know.

That stinks that you have to do a prep. I didn't have to and I remember my husband and I went out the night before for a really good meal. Every doctor is different though. You'll have no problem walking and most things will probably feel like a breeze compared to your first surgery. It does take a while, though, to get used to the new plumbing. I second the Calmoseptine - which you can buy at Walgreens - and soft toilet paper will be a big plus. You know I love my bidet seat and it might be something for you to consider down the road - maybe a nice Mother's Day present?? Good luck and let us know how it goes.


Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 3/29/2011 2:49 PM (GMT -6)   
Did the surgeon directly give you those prep instructions? People with ileos should not do preps...you'll dehydrate almost immediately shocked

Be safe and double check that the prep is necessary. Usually no solid food the day before is enough to clean us out.

This should be the easiest of the 3...just take it easy until things start moving through your system...and WALK!

Good Luck smilewinkgrin
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 3/29/2011 4:05 PM (GMT -6)   
Thanks for all the tips. I will be making a trip to Walgreens and taking my wipes with me. I use those now to clean out my pouch so I will bring them along.

The time has actually passed by quickly. I don't have much going on this week, so I am at the point that I just want it done.

The nurse gave me the instructions and I questionned her. I said "I thought I didn't have to do a prep?" She said that it was only a 10 ounce bottle of Citrate of Magnesia-Citroma...so the heavy duty prep stuff. It does say on the bottom that you can do it with an ostomy.

I am not looking forward to the long 5 hour drive home.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 3/29/2011 5:05 PM (GMT -6)   
I had prep for my MRI in Jan this year but it was only a normal laxative and didn't really notice any difference to normal seeing as I was in CD flare and having high output anyway.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/30/2011 4:54 PM (GMT -6)   
Oh, don't forget to bring any of your extra supplies left over to the WOC Nurse...they can get them to people all over that don't have supplies readily available!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 3/30/2011 5:09 PM (GMT -6)   
That is a great idea. I didn't think of that.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.
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