Does not having the use of the colon affect immune system?

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esoR
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Date Joined Jan 2007
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   Posted 3/29/2011 5:37 PM (GMT -6)   
Hi,

STILL battling flu that started with a head cold. Chest better but dizziness and weakness way out of control.

Do people who have ileostomies have immune system issues as in takes longer to get over stuff, or catch stuff more easily. Would sort of make sense as we are all basically a bit dehydrated from constant loss of water, etc. Let me know.

Also does anyone else have this? A lot of people in my town seem to have this. Starts with sore throat, sinus infection, chest fills, fevers up and down, then feel better one day, worse the next. Some of the kids have had vomitting and diarrhea. This would put me in the ER (a place NOBODY wants to go) as I would need an IV due to having the ileostomy.

Caught this on the ship in the Bahamas and supposed to take off again April 26. Am thinking I may not make it. This next trip is a 6-week Israel bound trip.

Hodaya, Hope I get to see you, but at this point who knows. Everything is up in the air. If I get one more health issue.......... I just can't take anymore.

Let me know if anyone has any immune system stuff that works. I am checking with an allergist to see if they use Sero Bacterin any more as immune system helper. I think I remember getting this as a kid and the stuff did wonders.

Rosemary

summerstorm
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Date Joined Aug 2006
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   Posted 3/29/2011 6:12 PM (GMT -6)   
I actually get less stuff I have a theory I know its wrong but I likeit anyway since nothing stays in very long the germs don't get a chance to take hold:-)
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 3/29/2011 6:50 PM (GMT -6)   
I pick up any colds/viruses going around but I take immunosuppresants and Humira so that is a bit of a foregine conclusion in my case. Have to agree with summerstorm on the lack of bowel means stuff can't stay around long enough though as oddly never get the stomach upsets that are going round even if everyone else comes down with them.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
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   Posted 3/29/2011 7:23 PM (GMT -6)   
I was worried about losing good bacteria when I lost my colon and what that would do to my immune system.... my gi doc said I probably didn't have much good bacteria left..... makes sense w/all the antibiotics and such I'd been on....

But I really don't know the answer to your question.... would imagine someone has researched it.... my gi doc probably would know that, he's like the encyclopedia of IBD....

Hope you feel better soon.

Lasardo
Regular Member


Date Joined Jan 2011
Total Posts : 373
   Posted 3/29/2011 8:40 PM (GMT -6)   
Bactrim is good to use for infections, does not upset stomach although I was always told with Crohns more immune to getting things because immune system is not as strong? what do I know.. I am just so impressed with all the travling you are doing!

Crohns desease
Pelvic floor tention
pelvic floor adhesions
severe scoloiosis
depression'
anxiety

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/29/2011 10:38 PM (GMT -6)   
Hi,

Thanks all. Sure hope I can keep traveling. I too used to think immunities were good due to stuff not hanging around in me for too long. But I was wrong. My ileostomy was from an irreparable colon and rectal injury rather than from a disease, so haven't been on the Rx's some of you have. Bluegrass, your GI doc sounds good, where is he? :-)

Rosemary

2b ColonFree
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Date Joined Nov 2008
Total Posts : 2603
   Posted 3/30/2011 3:19 AM (GMT -6)   
oh Rosemary.... so sorry you're struggling so hard still :(( poor thing. do you get immunization (is that the right word?) every year? i do, every year on Oct i get that shot to prevent flu, but i think the main reason they give me that is b/c i have lung disease. but in any case, maybe you should ask your family dr about it.

now pls pls pls...... you HAVE to feel better soon, israel and me are waiting for you!!!
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2011 5:01 AM (GMT -6)   
Hi Hodaya,

Yes I always get the flu shot in October. Then in March I get the flu anyway, go figure!

I KNOW, I want so much to do Israel and see you! I just gotta get better, gotta, gotta, gotta.

Rosemary

blueglass
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Date Joined Dec 2010
Total Posts : 3332
   Posted 3/30/2011 6:36 AM (GMT -6)   
He's at Mass General, in Boston, where I've had some fabulous docs..... very grateful for them.

I can see where the surgery is a whole different thing emotionally when you weren't sick and on a lot of drugs for a long time beforehand.....seems like it's often easier for those of us who were sick for a long time, as it's a way to get better.... not quite seeing that prize yet, but very hopeful.

I was on bactrim for a while for my cutaneous Crohn's (boils on my butt). It kept them in check, but I got a few other infections that were resistant to it. It made me nauseous for a while, and then I guess I got used to it..... I took tigan for the nausea and that helped. But I would not say it doesn't affect the stomach.... maybe in some people, but not everyone.

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2011 7:52 AM (GMT -6)   
Bluegrass,

Thanks for information on your GI. Yes, you are right. My irreparable colon/rectal injury was from a surgery that (on review) did not need to be done in the first place. Then in that same surgery, small intestine was severely scarred giving me on-going small bowel obstructions. Could not eat for 7 months. Only thing that could be done to save me was lysis of small bowel adhesions and permanent ileostomy. Which I was LUCKY to get. Had to see 11 docs nationwide at 7 medical centers before one stepped up to the plate. I'd be long gone by now if not for him. So, yeah, you are soooo right that the emotional thing is so different. BUT a life-saver nonetheless.

Rosemary

blueglass
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Date Joined Dec 2010
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   Posted 3/30/2011 8:49 AM (GMT -6)   
Rosemary,

I'm not sure where you are and it sounds like you found someone good already, which is great, but if you want, I can email you more specific info about my docs.

It must have been HORRIBLE to wake up and find out what had happened to you in the surgery ..... I can't imagine..... glad you were saved, but you must be or have been so angry....

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2011 11:04 AM (GMT -6)   
Hi Blue,

Actually I knew I was getting the ileostomy and had to battle to get it. See, when someone is injured in a surgery, then no other doc wants to deal with it because dealing with it means an error was made. Only this one doc did this. All the other 10 just either were confused about what to do, called me crazy because I was having small bowel obstructions, or just turned a deaf ear and were going to let me die. One at the hosp you speak of labelled me crazy, the other honestly tried some treatments, but I ended up being thrown in the psych ward at your hosp and held for 5 hours. So, I will pass on seeing your GI. But thanks anyway. Horrid story with fall out traums too. Now because I went on cruises which are less arduous than working Full Time teaching, my benefits have been cancelled. Any questions I ask docs now seem not to be really directly answered though where I currently go appears to be hanging in with me. So I guess OK for now. But iatrogenically injured patients are in a horrid spot for the rest of their lives even after their life gets saved the best that can be done. Rosemary

Christine1946
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Date Joined Aug 2008
Total Posts : 5965
   Posted 3/30/2011 11:25 AM (GMT -6)   
     Oh Rosemary, so sorry to hear you are ill.  We always loved to cruise too but haven't been on one since 08 due to my battling UP and my operation last year.  I have a friend who contracted the Norovirus while cruising last fall and she was sick as a dog.  I heard the Norovirus could become life threatening for people with ostomies, so I am afraid to take the chance.
     As far as the weakened immune system is concerned, I believe it was more compromised while taking prednisone and the biologics, but I may be wrong.  Since my operation, I only had one cold and seemed to get over it fast.
     I'll keep you in my prayers for a speedy recovery! wink    God bless!

blueglass
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Date Joined Dec 2010
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   Posted 3/30/2011 11:27 AM (GMT -6)   
Did you sue or threaten to sue or sign something saying you wouldn't sue? Seems like that's often what it's about....

Guess it's a big hospital, lots of different people....

Sounds hard, hang in....

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2011 11:41 AM (GMT -6)   
Thanks Christine. Prednisone would weaken your system so you are now better off. Glad you have been well with only one cold.

You are right about people with ileostomies; getting the Norovirus can actually be fatal IF those people are not given IV's and antinausea drugs. What you would do for the diarrhea, is leave the tail of the ostomy bag open and you would just drain out. Lucky I never contracted it with all the travel I've done, but I worked hard at not catching it as many ships were infected with it. So your concerns are legitimate. Lucky I only have this big respiratory issue going on now. So far no stomach stuff. Knock wood.

Blue,

I am in litigation with the folks who did the original unneeded surgery, (there was a misread on scan) Saw in surgery I did not have the issue identified on the scan and did the surgery anyway. (unreal as that sounds!) on review it was found they even did that incorrectly. Then they did many procedures not consented to, then no follow up to complications. So that is how I lost the use of my rectum and colon and for 7 months the use of my small bowel. They have multiple other similar suits on them unknown to me at the time, or I would not have gone to them. Yet our state med board lets them "practice on"

Whole different hospital in a different locale saved me. BUT any place who even suspects you are in litigation writes interesting things about you. The world of medicine I have fallen into is unbelievable. Nightmarish. BUT am lucky I found a place to deal and am hoping they stay in my corner with the physical help.

Rosemary

stripey
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Date Joined Feb 2011
Total Posts : 1059
   Posted 3/30/2011 1:37 PM (GMT -6)   
I went on a meditterrean cruise 3 years ago and had no problems at all, the ship had the hand sanitizer all over the place and had staff at the entrance of all the dining rooms squirting it on everyone's hands before they entered.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Equestrian Mom
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Date Joined Mar 2008
Total Posts : 3115
   Posted 3/30/2011 3:28 PM (GMT -6)   
I'm a freak hand washer...I get less colds than anyone in my family:) Even while on Imuran I had very few...I don't get a flu shot either...

My husband, on the other hand, is always sick!

I don't think the missing colon helps/hurts our chances. I think it's more the germs you are exposed to...if there are a lot of people in your area that are sick you were just more exposed to it:(

I hope you feel better soon!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

blueglass
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Date Joined Dec 2010
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   Posted 3/30/2011 3:33 PM (GMT -6)   
Rosemary, wow, seems like not only do you deserve compensation, and lots of it, but that someone there should be shut down..... any sort of class action thing going on, with people getting together? I have no idea when you can do that, but something seems very wrong ....

I need to get better at hand sanitizing etc..... got paranoid for a while when I thought I had pinkeye (actually had something worse, but less contagious)... but I forget to keep on it.....

esoR
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Date Joined Jan 2007
Total Posts : 4147
   Posted 3/30/2011 4:58 PM (GMT -6)   
Blue,
No class actions as my atty said those can only be done I believe through injury from a drug or something on the market. BUT, yeah, our state med board covers the docs so they can keep on working. The state med boards are all run for and by the doctors, so no surprise there. BUT ours has made one change maybe to do with me and perhaps other patients. PRIOR to my surgery with my defendants I had called the Board and asked about suits and claims with the Board for these 2 docs. The rep I got said no claims, no suits. So I thought OK to proceed. At the time I did not know how to research suits on docs at county courthouses or I would have. They are all public record. Who knew esp in these days of the HIPPA law and so on. Turned out the rep I got was not knowledgable of the database or some issue. NOW they have you write in to one central person for this info. So the board in my state has made a change for the better. BUT, on these guys practice. In the process I have found that really only docs who out and out break the law are ever disciplined by their state board such as non-payment of income taxes, sexual advances on a patient, and things like that. It is rarely done for multiple medmal suits. What each state needs is a Patient Medical Board. An idea for the future???? Want to do what I can to be sure others don't get hurt needlessly like I did. I was a "get paid per procedure" type of thing. What I ran into is not real medicine, not the way it is practiced in most places. Very scary, huh? Normally things like this are needed surgery gone awry, but this is way different. Some of the suits are absolutely horrific. Same theme, unneeded stuff, done wrong, no follow-up to complications. Same old pattern.
Rose

blueglass
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Date Joined Dec 2010
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   Posted 3/30/2011 5:13 PM (GMT -6)   
OK that's some scary stuff..... did you ever go to a newspaper or anything? Seems like a compelling expose, although I can understand why you might not want to do that.....

Surgery is so terrifying, so vulnerable, so much trust involved, and your story just confirms the worst fears ....

Good for you for helping make that change in how the board operates, no small thing....

esoR
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Date Joined Jan 2007
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   Posted 3/30/2011 5:50 PM (GMT -6)   
Hi Blue,

Unfortunately suit settlements come with a gag order. That means the minute I get settlement I have to stay TOTALLY MUM. Or as I understand they can counter sue and get their money back. Settlement pays for your silence. What I had in mind was 20/20 or the Today Show :-) But that will be a no-go. That is what perpetuates them being able to do this to others. This is what I had hoped to stop, but not the way things work. Maybe I can write a patient advocacy book or something to still help people. I can put in the part saying patients should skulk about the civil superior court clerk's office of the court house of the city in which the doc practices! Hardly what we as patients are thinking about when we go to a doc to get a problem solved or go on multiple consults as I did. Most patients trust, like we can, with MOST docs. But, it is scary..........R

blueglass
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   Posted 3/31/2011 7:18 AM (GMT -6)   
Rosemary, Not to mention that patients are sick! I mean, a patient advocacy board and such sounds like a great idea, if people are healthy enough to do that sort of thing, kind of makes me want to take a nap when I think of being on something like that now....

So it's compensation vs exposure..... I forgot about gag orders, but that's awful.... hard to get me to shut up about most anything....

Is there a list somewhere for iatrogenic injuries? Be good to talk to others, although maybe hard to do if you all have gag orders.....

esoR
Veteran Member


Date Joined Jan 2007
Total Posts : 4147
   Posted 3/31/2011 7:40 AM (GMT -6)   
Hi Blue,
I hear what you are saying. My initial issue was intermittent incomplete rectal emptying. Took about 2-4 hours and about 4-8 trips to the bathroom every morning to finish moving my bowels. Made me late for work. With what I now know I would have just taken early retirement, continued to take Miralax, done this in the a.m. and fully enjoyed my afternoons and evenings. Would not have gone for help. But it seemed extreme. 3 consults, (unknown to me) incorrect diagnosis, then the road I went down. But you are right. We all have an issue we are either sick with or inconvenienced by which we are focusing on. We don't go investigating. we tend to keep it simple: got a problem, go to the doc. Works in MOST cases. A real eye-opener on iatrogenic injury can be found at www.patient-safety.com/blacklisting_patients.htm. Tells how hard it is for iatrogenically injured patients to get help as was my case. Had I not gotten the lysis of adhesions and ileostomy after all my damages, I would have just died. Instead, I am enjoying life the way I can and go cruising a lot and ballroom dancing. So far so good. There are no promises. That is why I am totally in the now. Interesting, my LTD benefits I was getting from my school's insurance group were eliminated because they got wind I was on a cruise. (I had been a teacher for 17 years.) I have never regained the energy and stamina to return to full-time teaching upon which my LTD benefits were based, so even with them cut I just can't go back to teaching. So see there is this spiral downward politically once someone is iatrogenically injured. It's like falling into a well and calling for help. Those 13 months I was trying to get help after my injury until I finally got help were, so far, the worst 13 months of my life. Had I been run over by a truck or had had cancer, help would have been forthcoming much sooner and more rapidly and more openly. I DO have the material to write a best-seller. The made for TV movie is next. (Kidding! but you know what I mean.)

R

blueglass
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Date Joined Dec 2010
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   Posted 3/31/2011 9:02 AM (GMT -6)   
well, I suppose if it's fiction, you can say whatever you want......

Never been on a cruise, but I am a teacher, and I'm sure the cruise takes a lot less energy!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 3/31/2011 9:06 AM (GMT -6)   
christine-you got that ostomy so you could have your life back, don't let the fear that you MIGHT,MAYBE get sick keep you from going on a cruise you want to go on! You could get a stomach virus anywhere, from anyone. See i think, the key on the cruise, is to keep your stomach full of alochol, so the germs don't have a chance :D Nah that won't really work. But take some immodium, take some phenogren, and alert the dr, if you get sick start on the immodium and the phenogren and hit the dr up for some ivs!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!
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