How the heck am I gonna get this pouch off me?!

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elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/30/2011 8:23 AM (GMT -6)   
Hey all, hope you're feeling well today,
I have been having major skin troubles under my wafer. Cleveland Clinic ET nurses had me try an adhesiveless system for a while, and I saw a dermatologist who prescribed a steriod cream which worked wonders on me. The skin healed up, and yesterday I decided to put a pouch on using adhesives again. It feels great so far! yeah

BUT, after I put my pouch on I decided to do some more patch testing on my leg - I hadn't patch tested my Reliamed adhesive remover wipes yet. Well what do you know, I woke up this morning with a puffy, red, bumpy, itchy spot on my leg - I'm horribly allergic to my adhesive remover! Well how the heck am I gonna get this pouch off me when the time comes?!

We've already called Edgepark about this and are waiting on a call back. But I also wanted to ask if anybody here knows - if I'm allergic to one adhesive remover, does that mean I'm allergic to all of them? What other product would you suggest? Or if none of them work, how do I get a very well stuck on pouch off without destroying my skin if I can't use adhesive remover?!

Thanks!!

Post Edited (elddiReMsihT) : 3/30/2011 9:16:21 AM (GMT-6)


answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 3/30/2011 8:42 AM (GMT -6)   
I have the same issues with adhesive remover wipes, so I use NOTHING and it has not been an issue. If there is any adhesive left on my skin, then I just leave it and I have not had any issues with the wafer sticking.

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/30/2011 8:51 AM (GMT -6)   
It doesn't irritate or tear your skin to just rip the pouch right off??
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 3/30/2011 8:54 AM (GMT -6)   
No, I just pull the skin gently away from the wafer and it has not been an issue at all. Just be sure to slowly remove the wafer by pushing on the skin, not pulling on the wafer. I have had my ileo for 9 months now and have just now seemed to have resolved my skin issues with redness, rash, and itching.
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy. Parastomal hernia discovered in November, so more surgery, probably end ileostomy with relocation of stoma.

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/30/2011 8:57 AM (GMT -6)   
Great, thanks!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 3/30/2011 9:31 AM (GMT -6)   
You could also use baby wipes to clean the area of any adhesive left over. I only use the adhesive remover wipes around the very outside edges where the wafer was as I find if I wear something with fluffy inside like jogging bottoms the little bits of fluff stick to the millimeter or two of adhesive on the edge of the skin.

Pulling the bag off doesn't effect my skin and I have never used adhesive remover for that.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/30/2011 1:38 PM (GMT -6)   
I never use adhesive remover. It's really hard on your skin.

My WOCN has always told me to just use a WET washcloth/towel/paper towel/whatever, and like answers4me2 said, just push gently on your SKIN, to push it away from the wafer. It's never ripped my skin and doesn't even hurt much. Give that a try. :)
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 3/30/2011 3:22 PM (GMT -6)   
I don't use remover either. Just like it's been described, you have to hold the wafer and push your skin down...if you pull the wafer up you will tear your skin.

If I have any part of my Eakin Seal left on I just use a little soap and water and follow up with a dry piece of paper towel. I can usually get most off with that and if anything is left, I leave it, and I have never had a problem.

I don't use skin prep either...if anything, I'll use a little stoma powder, if needed, but other than that it's just the wafer and Eakin.

Glad you found out you have a problem with the remover...maybe the other products won't be as much of a problem!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 3/30/2011 4:17 PM (GMT -6)   
I don't use adhesive remover either. My ET nurse at the hospital said to only use it if I absolutely had to, as it can interfere with the pouch sticking if you don't get it all off. So I never really started using it and have never felt the need since. I just gently pull the wafer off the same way other folks have described above. I use my fingernail to gently get off the Eakin Seal residue if there is any (or a dry paper towel as Equestrian Mom mentioned). Then I clean the whole area with warm water and a washcloth and that is about it.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/30/2011 5:30 PM (GMT -6)   
If your bag is really hard to pull off then you are changing too soon. So if you change every 3 days say and its stuck fast try 4 and so on. I go about 6 days and it just pulls right of I have used the remover once in almost 4 years! Also if you change right aftr a shower its a little easier to get off.
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 3/30/2011 5:42 PM (GMT -6)   
eddi
If you think about it, the remover can't help. You don't get to apply the remover until you have pulled the wafer away from your skin. You keep applying the remover as you pull the wafer off....it's already off!

Dan

80sChick
Veteran Member


Date Joined Oct 2009
Total Posts : 1054
   Posted 3/30/2011 6:28 PM (GMT -6)   
On a side note, how was the adhesiveless system? I have been thinking about the possibility of using one because I seem to keep having skin issues as well. The non-adhesive sounds like it would be leak city. :/
Stephanie, 29 years old

March 2000-Diagnosed Crohn's Colitis
(Tried every drug imaginable, but lived 10 years with daily diarrhea)
March 18, 2010-Total Proctocolectomy and Permanent Ileostomy! :)
(Now med free, 4 subsequent procedures to correct blockages at stoma site)

Stoma named Zoe...She's my best bud!! :)

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/30/2011 7:05 PM (GMT -6)   
Happy to read this post as hubby is now having this same problem for the past few weeks...everything was great for 10 weeks and WHAM. I'm thinking he is having a reaction to the adhesive part of the outer bandage as that is where the irritation is. He does use the adhesive removers every time (never thought that could be a problem) and since it is red and irritated we use the medicated powder along with the skin barrier. Oh My!!!! He tried the wafer that is all pectin but that did not stick well but maybe because of what we are doing beforehand.

He sees the dermatologist on Fri for a normal body scan/check up. What steroid cream should he be asking for to try to clear this up?

Thanks for starting this thread.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/30/2011 9:05 PM (GMT -6)   
Thanks a lot everyone! I'm really happy to hear how many of you don't use adhesive remover - my nurse had said that it would be really hard on the skin to pull the pouch off without it, so I was nervous, but not so much anymore.

@summerstorm: I expect you're right! I just don't like to let it get to the point where it feels like it could just fall off, because then I'm scared to leave the house for the last day or so that I have it on. But I guess that's what the belts are for!

@80sChick: Well, I definitely didn't love the adhesiveless system, haha. I will say that it is great for letting your skin heal, especially because I was prescribed a steroid cream, and not having a wafer adhered to my skin meant that I had access to the skin every day to apply the cream. I slept on a towel and would wake up with a leak in the morning about 50% of the time. I changed every day because it didn't feel secure enough to go longer. :\ BUT it did give my skin some much needed rest, so it was worth it.

@Another UC Wife: Good luck to your husband - dermatologist is the way to go for this, cleared everything up so quickly for me while the ET nurses hemmed and hawed. The cream I used is called Clobetasol propionate, although my dermatologist referred to it by a different name too. That cleared up my HORRIBLE looking skin within three days! The pouch won't stick well if you use the cream, though - I was using an adhesiveless system so it didn't matter. But if he wants to use adhesives, he should ask instead for a spray, like Kenalog. But I haven't used that yet so I can't vouch for it. Since you say that your husband is adding a lot of new products to the mix, can I give some advice? Have him put a little patch of each product somewhere else on his body so he can make sure he doesn't get a reaction before he puts it on his belly! I had severe reactions to both the adhesive remover and the skin barrier wipes, so anything is possible - now I check every new product I try on my leg before I put it on my belly.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/30/2011 10:10 PM (GMT -6)   
What adhesiveless system did you use? And yes I think in the future a test patch is the way to go to check on sensitivity. Thank YOu.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/31/2011 9:10 AM (GMT -6)   
You can use any regular wafer, just don't peel the plastic backing off of it (I used Coloplast) so the adhesive doesn't actually touch you, and just hold it on with a paste ring and a tight belt!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

Chevypower1930
Regular Member


Date Joined Sep 2009
Total Posts : 254
   Posted 3/31/2011 7:24 PM (GMT -6)   
Here's what I always did... every time I had to change my appliance, I took it off in the shower! It was by far the easiest way for me, pick a time when you're not active, empty the bag really well, and then hop in the shower and really let the warm water get under the wafer. PLUS once you get it off it feels awesome to stand in the shower WITHOUT that dang bag on you!
20 Year Old Male

Diagnosed with Moderate/Severe Ulcerative Colitis May 2008
3 Flair ups (first flair- 2 months/Second Flair- 2 months/ Third flair- One week, then surgery)

Full Ileostomy surgery done on july 22!

Living with an ostomy bag right now and loving feeling healthy again! Finally have gotten this horrible disease OUT of my body!

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 720
   Posted 3/31/2011 8:11 PM (GMT -6)   
I agree with Chevypower. I took a shower without my pouch or wafer on for the first time. It was wonderful and I think my skin loved it! Couldn't do it before because my incision took forever to heal and was open for a long time... I didn't want to get stool in it.

My stoma is always a little active, so after I was finished I wrapped a bit of paper towel around it and then covered it with this little cup thingy I bought called a "Stoma Cup" (from C&M Ostomy Supplies). Once the cup is on, I could dry off and get situated for my appliance change without worrying about an eruption getting all over everything.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 3/31/2011 8:37 PM (GMT -6)   
I usually take the pouch off, hop in the shower and get the skin underneath nice and clean, cover stoma up with a bit of paper towel while I towel off (paper towel sticks on my wet belly, but that cup sounds fantastic!) and then repouch. Wouldn't be a big change of routine to just take the pouch off in the shower, and I can see how that'd make it easier to remove. Thanks!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/1/2011 2:07 PM (GMT -6)   
When we did my change yesterday the nurse didn't use any remover. I was surprised that we didn't need it. She did use one to remove some residue from my skin after everything was off. I think that is how I will do it once I'm on my own.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11
http://life-takes-guts.blogspot.com/

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/1/2011 3:13 PM (GMT -6)   
Last time I took off the bag, went in the shower to get the stool off, then dried off the stoma area, used a bit of adhesive remover where needed, and went back in the shower..... not as complicated as it sounds. Blueheron, I think I'll look into the stoma cup, hadn't heard of that, but it sounds useful.

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/2/2011 9:18 AM (GMT -6)   
Think I'll give the 'taking the pouch of in the shower' a miss, I can guarantee if I did there would be stuff everywhere. The joys of a high output stoma, you learn not to trust it. :)
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 4/2/2011 12:39 PM (GMT -6)   
Hubby showers in the morning when it is very low activity and before he has had anything to eat. Sometimes there is a thin yellowish output but nothing profuse. For him it makes the total changing process go so much better and he does remove the wafer in the shower. Afterwards the hand held shower with hot water to rinse the shower floor along with lysol or antibacterial spray as a preventative.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 4/13/2011 11:42 AM (GMT -6)   
I'm wondering how long your going between changes? If you're going at least 4 days - which I am - there is no adhesive problem - it's more "set up" if you will and the skins is adhesive free when I remove it.

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 4/13/2011 11:44 AM (GMT -6)   
Should have worded my response differently: I go 4 days between changes and have no adhesive issues" - if there's one thing I've learned here it's that everyone is different!
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