Bad time after recent surgery

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cghopper
Regular Member


Date Joined Nov 2010
Total Posts : 42
   Posted 3/30/2011 8:10 PM (GMT -6)   
I had surgery on March 17th.  My surgery did not go well.  This surgery was supposed to go in and "clean up" things from my last surgery where I got my ileostomy.  There was some grandulation or something that needed to be scraped off.  It was supposed to be a 20 min procedure, but turned into a 3 hour surgery.  The last surgery involved a muscle graft where they took muscle from my thigh and grafted it into my rectal area to fix a fistula which had occurred do to a severe abscess (infection) I had developed.  This whole thing has been going on three years.  This was the fourth surgery I've undergone.  When my surgeon went in, he found my muscle graft had failed.  The muscle had lost its blood supply and died. (So now I have this giant scar up my thigh for nothing.)  He not only had to cut out all the dead muscle, he then had to do reconstructive surgery.  This is a major set-back.  I'm in a tremendous amount of pain and I'm not really coping well.  I expected to be able to go back to work the following Monday (the surgery was on Thursday) and would have another surgery in 4-6 weeks to remove my ileosotmy and this would be over with.  Now it's going to be at least another 3 months and I might have to have another in between surgery (like this one was supposed to be).  This has been so difficult and it seems like I'm just not getting any where.  I'm to the point where I don't even want to look forward to making plans in the future for vacations or anything.  Just when it seems I'm always at the end of this thing, there is some set back.  The whole thing just sucks.  It is so hard to stay posititve when everything that has happened seems so pointless.

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/30/2011 8:18 PM (GMT -6)   
I am so sorry to hear this. Wish I had something to say to make things a bit better for you. I will say a prayer for you tonight cg. I hope things do ultimately work out as planned.

{{{{HUGS}}}}
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 3/31/2011 12:07 AM (GMT -6)   
Sorry to hear this. Is there another surgeon who specializes in fixing this who you could see, or do you feel like your surgeon is good?

I hope things get better for you .
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 3/31/2011 7:01 AM (GMT -6)   
So sorry, that sounds really hard. Maybe stop putting pressure on yourself to be positive, and let yourself be as upset as you are..... til you can get used to the new reality. I agree with Disney that it's good to consider a second opinion, although it doesn't sound like your surgeon necessarily did anything wrong.

Hang in. You can get through this....

FrostyinVt
Regular Member


Date Joined Aug 2008
Total Posts : 33
   Posted 3/31/2011 8:49 AM (GMT -6)   
sorry to hear. I can relate though...I've been through alot, sometimes it seemed as though Iwas put here as a practice dummy for the surgeons...in 1995 I had 11 surgeries in 7 months...didn't think I was ever going to leave the hospital, anything that could possibly go wrong did...wasn't the surgeons fault, or mine, just the way the cards were dealt.
try and not look too far ahead, at least not now while your still healing and things are farthest from 'normal' for you...concentrate on today...sometimes it takes going from hour to hour...eventually, things will level out, and the true healing will begin and after a while, you'll find that you've gotten through and it will all be a distant memory.
take care and try and keep positive.
Crohns since age 6...46 now.
No meds ever worked, 37 surgeries since age 11, intestines have ruptured 3 times. no large, very very little small left. Illeo since 89

Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 3/31/2011 12:41 PM (GMT -6)   
Well said posts above...just try and take it one day at a time.

I am definitely an over-thinker and over-analyzer about almost everything so I jump too far ahead with all the what ifs. Right now I'm trying so hard to get the "right"information to help and work for him and just need to be patient with the trial and error approach and in time things will work out.

So if you can try not to be so hard on yourself and the situation at present maybe you will be less upset. And sometimes you just have to vent, get p*ssed off and rant too in order to let it out and maybe make you feel a little better too! Hope today is a bit better for you.
64 yr old male suffered with UC & in May 06 had a severe flare & hospitalized 6 days...various prednisone treatments leading to steroid dependence and osteopenia, 12 asacol, 200 mg Imuran, failed remicade infusions Jan-May 2010 Dependence on pain meds. Made decision 6/10 to have surgery which was on 12/17/10 (total proctocolectomy & ileostomy - unable to have the j-pouch) and no longer in pain.

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/1/2011 4:54 AM (GMT -6)   
Sorry things are taking a little longer to work themselves out.

Have you thought about a second opinion? It might not hurt to put your mind at ease. If you do, make sure you find a C/R surgeon that does those graphs on a semi regular basis. They aren't rare, but they don't happen everyday. I know my surgeon has done them many times...so you may have to ask a few to find one.

Also, have you thought about talking to someone? Maybe a combination of traditional therapy and medication could help to get through this difficult period. It sounds like it is temporary but why let it get the better of you during that time?

Take care of yourself!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!
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