doctors & diet

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Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 4/1/2011 1:08 PM (GMT -6)   
Hi all,
At my next appointment with the motility doctor my mom is wanting to ask more questions. Specifically she wants to ask the doctor about eating. (She wants to know if maybe I ate MORE, or at different times, or things like that...if that would somehow jumpstart or get my bowels moving) I know that it won't make any difference at all because I've been dealing with this for so long...if it was as simple as eating more apples, or eating more often during the day...believe me I would not be having this problem right now. Even my colonoscopy prep took 2 whole days, and I had to drink multiple preps, and there was STILL residue in my ascending colon. But I still want her to ask her questions so she feels better.

I know the issue is deeper than just the way I am eating or my "stress" levels. I feel my GI doctor also understands this because she is the one person who has not given me ANY diet advice whatsoever, and she even said, "let me guess, more fiber makes you feel worse?"...she told me to keep taking miralax and dulcolax until I saw her again to try to keep things moving as much as I could.

So I guess my question is, in your experience, the GI/Motility doctors who deal with these things, do they have an understanding that if someone has colonic inertia, conservative changes like dietary things, really don't do anything? I am open to my mom asking her questions but I hope the doctor will help me out by explaining to her that slow transit is different from regular constipation. Once you all started seeing doctors who did actual motility tests on you, did those doctors push diet advice on you or did they treat your motility issue differently?

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/1/2011 4:18 PM (GMT -6)   
I can't speak for CI, as I have Crohn's, but in my experience GI docs talk a lot less about diet than one would expect...... a few things to avoid, but then mostly it's try and see what works for you.... there isn't a lot of research on diet, partly because there often is no one to fund it (nothing in it for the drug companies) and partly because it's really hard to study -- to do it right, you have to give someone all the food they're going to eat, but what person w/gi issues is going to comply all the way if some of the food is upsetting? Since docs like to go on evidence based, researched topics, well, that's why they have less to say about diet than a lot of us think they should....

On the other hand, some of your mom's questions seem pretty basic, and I think the doc should be able to say something helpful about quantity of food....

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 4/3/2011 8:09 AM (GMT -6)   
Alibee,
 
My mom asks the same questions, too.  Over the past several years, I have gotten advice on eat grapes, an apple, frosted mini wheats.  I mean, I have struggle with constipation all my life, but it has gotten really bad the past few years.  I love all these healthy foods, and right now, I actually miss eating them, but I just double over in sooooo much pain now, if I even touch anything with very high fiber. 
 
My current GI doctor has never mentioned anything with high fiber, but I know when I first complained to my primay doctor; he said metamucil (OMG! Awful!).  Currently, my surgeon that performed my left hemicolectomy said high fiber, more water-however, the problem is now that I get reflux very bad with about everything I eat or drink.  Another reason why it sooo hard!  I did get a book yesterday about acid-alkaline diet, which I have always been interested in studying.
 
I am not much help on what the next doctor will say for me, but I am getting very scared about my colo-rectal surgeon appt. on April 11th-hoping that he will listen-do another transit study on me-fix my stricture I have now, and do more comprehensive tests on me b/c right now I feel worse since I had my left hemicolectomy to remove my kink.  That is why it is time for a second opinion.  I am sure I will be where you at soon with another transit study, defecography, biofeedback, etc.  That is why it has been helpful reading your posts b/c I am preparing myself.  Good luck to you!  Keep us posted on how you are feeling!
 
IBS- Diagnosed 2009 after years of battling with constipation
2010- Tests peformed - Confirmed Colon inertia
Feb. 3, 2011 - Laprascopic left hemicolectomy to remove kink
Now have stricture from surgery
Still battling with painful gas and constipation

Post Edited (hurtboy) : 4/3/2011 7:37:04 AM (GMT-6)


Alibee
Regular Member


Date Joined Oct 2010
Total Posts : 286
   Posted 4/3/2011 12:28 PM (GMT -6)   
Thanks hurtboy,
I am so glad to hear my posts can help other people out, because I've gotten nearly all of my information from other people on this site as well. I would be completely in the dark if it weren't for this website.

Ahhh I hate when people recommend metamucil! My biofeedback therapist keeps telling me to try Benefiber, or she came up with this recipe and told me to eat a cup of it every day: oat bran mixed with prune juice and applesauce. I wanted to laugh and ask her if she was joking when she suggested it. If I ate a cup of that it would be like putting a cork in my bum and setting off a bomb in my belly! I would be in so much pain.

And I know what you mean when you talk about never knowing if laxatives will work or not, or if they will WORK! They used to WORK for me, but now they either sort of work or don't do anything. Most times they will sort of work ALL day long, and it is miserable. Does that ever happen to you? I take dulcolax pills with miralax at night, and I usually wake up around 5am with a stomach ache that lasts until the evening of the next day, and all that happens is I go some here, and I go some there, but it never feels like enough and I know there is plenty more where that came from. It's hard to explain, but its like I can either choose the pain of being constipated, or I can choose the pain of taking laxatives. I am so jealous of people who can just wake up and go about their day and not even have to make choices like that!

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 4/3/2011 7:03 PM (GMT -6)   
Alibee,
 
lol, I have heard of the bomb, and yes, I have tried it!  I have done sooo much research on things to try.  I remember I was eating some every night for awhile to help me go with no luck.  Yes, I did try benefiber for awhile, citrucel.  I remember I was really faithful on the citrucel for awhile, and I felt really full.  It was still a week or more till I went, not very much luck.  I think I only went a couple times that month when I stayed on citurcel for quite awhile.  Both times were just explosions b/c my colon finally just had it; at least it did finally come out, but boy, was it painful!  Didn't really feel better!
 
lol, other things I have tried, magnesium supplements, probiotics, the list goes on!  I even tried going gluten-free for a week, no-dairy, and I tried following religious Heather Van Vorous IBS diet.  Of course, all these things I found out didn't work b/c of my kink in my colon where my stool was getting stuck.
 
Now, I haven't really done anything besides laxatives since surgery b/c my body just can't handle it.  I stick to things on what I think I can handle, maybe a few fruit and veggies here and now, and I am still waiting to see what the this new colo-rectal surgeon will say about my newly formed stricture from surgery.
 
Yes, you are describing exactly the way I feel about laxatives.  I remember my surgeon was saying, well take a couple dulcolax with MOM.  That would be a disaster.  Yes, they can cramp me all day, too, take forever to work, or not work at all!  Yes, it will work a little bit, but I still can't get it all out,  then maybe later, I can get a little bit more.  I don't understand why I can't get it all out at once.  It is hard for me!  Yes and yes, pain without a laxative, pain with a laxative.  I know some people are like, oh, I take something, go, and I am on my way with my day!  Why can't I do that?  I am jealous, too!
 
I get really jealous b/c sometimes on the weekend my roommate gets very busy, and I actually ate more than him one day (he is a big eater!), and he still goes the next day!  I don't!  Don't understand!  I can tell you one thing as you have read from my posts; I am tired of this trapped air (gas) inside me all the time, especially on my left side that I can never get out unless I am totally and completely relaxed, non-disturbed, not too much food in me, with a heating pad trying to force it out (at work sometimes I try to push gas out of me to feel better!  It is soo hard sometimes!).  I think I let most gas out upwards instead of downwards!  Still many questions, and hopefully my stricture will get fixed soon, and this next colo-rectal surgeon will do more tests for me!
 
Oh, and my mom made her most recent suggestion of going alternative and doing like accpuncture or something.  Umm, yeah, I am right on that mom.
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