Volume of Output

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run4pancakes
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Date Joined Oct 2008
Total Posts : 938
   Posted 4/2/2011 7:40 AM (GMT -6)   
Ok, so for a couple of days in the hospital I was high output and they were worried about it. Since I've been home, I haven't had this problem. I have to do the empty in a container and track amounts thing for two weeks (joy!). The first two days were textbook, then Thursday and Friday were really low...yesterday was only a little over 400 for the whole day. (They want me to have 800-1000).

Anyone have experience with this? Is it really a problem? My weight has stabilized, so I feel I am eating enough food. I am peeing plenty and drinking lots of G2 between meals like they told me to. My consistency is right what it should be. I don't feel backed up, bloated, etc. I can't really think of anything to do except to add a little more liquids at meals maybe? I realized this morning that I'm drinking almost nothing during meals because they freaked me out about it "pushing" the food through too quickly. So I'm going to add a little more to drink at meals.

Any other thoughts or suggestions on this? I feel silly calling them about it when I feel good.

smackie
Regular Member


Date Joined Feb 2011
Total Posts : 55
   Posted 4/2/2011 8:02 AM (GMT -6)   
I'm currently keeping track of my diet, drinks and output for the next month for the DR's to see what impact food and drinks have on me. After 2 weeks so far of tracking I don't see any patterns that make sense....

My volume swings from 600-1100. My highest output day I drank a low amount of water (just over 2L) and had taken Imodium. My lowest output day I had drunk around 4L of fluids including some alcohol but no fibre supplements or Imodium.

I'd be happy to have lower output if I still feel healthy = less emptying!

And in regards to the emptying into the container....

I make a very educated guess on the volume - rather than the JOY of emptying into a container. I used an empty bag - filled it up with increments of water - 100mL / 150mL / etc. and marked on the test bag where each amount of water got up to when the bag is pinched. I then copy these marks onto my bags when I change the bag. Saves having to empty into a container and then cleaning the container. I guess you could also use one of those kitchen mini-scales - weigh the bag and convert the weight to volume. Both these are less accurate but much more enjoyable than emptying into containers!
Sep 2006 - Diagnosed with Crohn's disease
Dec 2010 - Subtotal Colectomy & (Temporary) Ileostomy

Disneynut66
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Date Joined Apr 2009
Total Posts : 587
   Posted 4/2/2011 8:04 AM (GMT -6)   
I had a couple days with really low output. I really wasn't eating too much, though. I think you could wait another day as long as you feel good. You will know if you have an obstruction. I was having issues yesterday...lots of pain. Feeling fine today.

Keep feeling well!
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/2/2011 8:50 AM (GMT -6)   
Yes, I don't think it is obstruction because I've seen hints that everything going in is coming out (not to be too graphic!). It's just weird. If it stays this low going into Monday I may call in to the nurse just to get her opinion, too.

Good luck with your surgery this week, Disney. I will be thinking about you! :)
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11
http://life-takes-guts.blogspot.com/

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 4/2/2011 9:16 AM (GMT -6)   
I have low output too, but mine is probably from not eating enough. I never really worried about it - they made it sound like high output is a problem, but not low.
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/2/2011 10:12 AM (GMT -6)   
It does depend what you eat, if you are eating foods that are low residue then your output will be lower. Chicken, white bread, unrefined pasta and rice etc are all low residue foods so think about what you have eaten on those days and it may have something to do with it.

Me, I would love low output!
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/2/2011 11:20 AM (GMT -6)   
It can only be two things, low food intake, or obstruction. It doesn't appear you have an obstruction so it's probably low food intake.
I had an overactive stoma in the hospital which is considered normal post surgery.

Sue

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/2/2011 2:50 PM (GMT -6)   
I'm trying to eat a little more today and it seems to be helping.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery scheduled 3/22/11
http://life-takes-guts.blogspot.com/

lifeinterrupted
Regular Member


Date Joined Mar 2011
Total Posts : 103
   Posted 4/5/2011 12:03 PM (GMT -6)   
Run4pancakes, I was wondering how is the eating and output going and how changing the appliance is coming along?






Dee
Prov3:5,6

run4pancakes
Veteran Member


Date Joined Oct 2008
Total Posts : 938
   Posted 4/5/2011 1:34 PM (GMT -6)   
I am still pretty low (around 500 a day) but my weight is stable and I feel fine, so I am not worried about it. I think it's a combination of eating pretty low residue and the fact that my digestive system has just always been a little slow.

I have not yet changed the pouch by myself yet. Today the nurse came and took my staples out of my incision and we both did the pouch change together. I felt very squeamish about the staples and it made it hard for me to mess with the pouch too much. The plan is for her to come back Friday and I will actually do the change while she watches me. I've observed and helped enough times that I'm confident I can do it.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD
http://life-takes-guts.blogspot.com/

stripey
Veteran Member


Date Joined Feb 2011
Total Posts : 1059
   Posted 4/5/2011 6:10 PM (GMT -6)   
The first time is the hardest and then it gets easier and you soon get into your own rythum and technique. I've got my changing time down to about 5 mins in total including cutting wafer.
Crohn's dx 1989, loop ileo 1992, end ileo 1992. Arthritis developed 1990 Stoma abcess 1995. Azathioprine started 1995. Panprocolorectomy 1999. Stillbirth 2000, antiphospholipid syndrome dx 2000. Flare up 2004, stoma abcess and strictoplasty 2004. Low blood pressure dx with impaired kidney function 2006, fludrocortisone pres. flare up 2010, steroids, Humira, codeine.

blueglass
Veteran Member


Date Joined Dec 2010
Total Posts : 3332
   Posted 4/5/2011 6:36 PM (GMT -6)   
I'm getting the changing routine down. The first few times were a bit stressful, as I'd forget something or be worried about various things.... but it's been a rapid learning curve.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery
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