Weeping skin and nothing is sticking HELP!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 4/2/2011 12:08 PM (GMT -6)   
I need some big time help.

Long story short, my skin is so irritated that it weeps nonstop and so nothing will stick to it. Friar's balsam is the only thing that will make anything stuck, but eventually the weeping breaks through and ruins my wafers. I have only 3 wafers left till Monday when i see my ostomy nurse again. I have no idea what else I can do to make my wafers stick so my skin can heal. I've detailed what has happened in the last week below, but this is the main issue. I've tried duoderm and 3 different wafers. nothing sticks without the friar's and it just isn't lasting. I need some serious help.

Long version:
I just had my temp loop ileostomy place about 2 weeks ago. I've been having issues with leaking ever since. First, the ostomy nurse that took the bar out and repouched me on the day I left the hospital did a terrible job and I leaked only an hour later, but she had already left so I had to do it myself. It took me more than an hour and 2 pouches to get it on. Come Monday (4 days later) and I go to change and I'm all red and irritated and the skin is weeping so bad that nothing wants to stick to it. I manage to get something on, it leaks on Wednesday and so I go to the ostomy nurse at my surgeon's office on Thursday and she repouches me. She doesn't tell me to do anything different than what I already do (eakin around and stair step the wafer out) 4 hours later I'm leaking. I change and begin to leak about 10 minutes later and then repouch yet again. I get this one pretty well stuck, but I can tell that it's not sticking where the main irritation is and so it's going to get worse. So i go to a local pharmacy and get some duoderm having heard it's great for weeping skin. Friday comes along, I feel ok, but then after dinner I start to feel some burning and think the leak is spreading and going to start coming out of the wafer. So I go to change it and spend the next 6 hours (6pm to midnight) dealing with nonstop activity from my dinner disagreeing with me and now the entire bottom half of my wafer area is red and weeping. I went through 3 wafers last night until I finally got one to seal well enough for me to sleep. When I woke up the eakin that I'd place all under the wafer was starting to get goopy and leak out on the bottom part of my wafer. When i changed it, it wasn't a leak but rather the skin had weeped so much that the eakin was already broken down like it was 5 days old. UGH! The only thing that makes anything stick is Friar's Balsam. The duoderm wouldn't stick so everything leaked. now just 4 hours after changing the bottom of my wafer is not sticking because of the weeping. I only have 3 wafers left. I'm at my wits end and have no idea how to make something stick to me until monday when I go to see the ostomy nurse again. HELP!!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11

answers4me2
Veteran Member


Date Joined Dec 2008
Total Posts : 1325
   Posted 4/2/2011 3:19 PM (GMT -6)   
Oh you poor thing, I am so sorry you are going through such a horrible time. I am not a pro yet, but maybe I can help you out.

What brand are you using? And have you tried not sticking the wafer to your skin, but just using the eakin seal and a tight belt? Someone else had to use this method until he could get his skin to heal....I can't remember who and what the name of the thread is though>He put the Coloplast wafer around the stoma without adhering it to his skin and used a very tight belt to hold it close to his skin.

Are you using powder and a no sting barrier over the powder? Does the skin look red and bumpy? Because I got a yeast infection all around my stoma right after surgery and it was a pain. The doctor gave me some diflucan pills to take by mouth and some nystop powder and it cleared up....BUT, I have had 3 yeast infections around the stoma in 9 months, so it is obviously a great breeding ground for yeast with it being so warm and damp. EWWWW YUCK

Also, I think you may be able to go to a special pharmacy and buy ostomy supplies???? If all else fails, then you may have to go to the local ER for supplies? Also, if you ever have an erupting stoma again, try to not let the output get on the skin. This has happened to me more than once and I have found that getting in the bath helped to protect my skin. I also try to get the skin good and dry and spray it with the barrier spray to put a protective coating on it! This way when the output runs down the skin, then it is protected.

Let us know exactly what you are using and hopefully more people will chime and help to get you through the weekend.

Tracy

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 4/2/2011 3:47 PM (GMT -6)   
Oh goodness, what a pain. My skin was like this a few weeks ago and I know, it's awful.

answers4me2's second paragraph was referring to me. (I'm a girl though! haha)
The adhesiveless system is great for letting skin heal up. answers4me2's description of how it works is quite accurate. If you don't have a belt, you can get one for free by requesting samples from any of the companies.

But I used the adhesiveless system to give my skin a rest because I was allergic to my products. It sounds like your skin irritation is due to leakage, so I don't know for sure how helpful it would be. I also don't know how well it would work for a loop ileostomy. Part of the reason why I was a good candidate for it was because my stoma sticks out a good inch, and I know loop ileos often don't stick out quite far enough. Either way, I think it would benefit you to wear a belt, because the weight of the pouch can pull the wafer loose if it's not stuck well, and the belt helps support the weight.

I wish I knew more to help you in the short term. But in the long term - if the ostomy nurse's help doesn't make a big difference, see a dermatologist! That's what I did, and he prescribed a steroid cream which healed up my inflamed skin within two days. Now everything's sticking great!

Post Edited (elddiReMsihT) : 4/2/2011 3:51:32 PM (GMT-6)


polishdan
Veteran Member


Date Joined Mar 2010
Total Posts : 1595
   Posted 4/2/2011 10:21 PM (GMT -6)   
betsaronie
If you don't have enough supplies to get you to monday, by all means go to the ER, at the same hospital that your surgery was done if you can. Don't wait until it's too late! If you were in Michigan I would bring you some supplies!

Dan

Equestrian Mom
Veteran Member


Date Joined Mar 2008
Total Posts : 3115
   Posted 4/3/2011 6:56 AM (GMT -6)   
If you want to find another WOC Nurse, to get their opinion, go to www.wocn.org and go to the bottom of the page and click on patient care and information...you can put your state information.

I hope you can find some relief!
formally known as OHIO76 ~ honoring my daughter's passion!
Crohn’s dx 1989
some terrible years before my temporary ileo in 2001
Proctocolectomy w/end ileo in 2008
...wish I knew then what I know NOW!

betsaronie
Regular Member


Date Joined Oct 2007
Total Posts : 318
   Posted 4/3/2011 8:45 AM (GMT -6)   
thank you all for the responses! I had my sister bring me some Microgaurd powder that I had left at home (I'm recovering for the next 3 weeks at my parents' house) and I used that last night. I think it's working! The only reason I even needed to change last night was because I had a defected wafer on, of all the times for that to happen! The base plate for the bag had pulled away from the wafer leaving a one inch hole, never had that happen before but I remember someone on here talking about it. I use Coloplast Sensura, which doesn't have belt loops so for the time being with the little supplies I have I can't do the belt thing.

What I ended up doing last night when I changed was what I did when i had a yeast infection. I cleaned everything with just water, powdered up the area, blowing off the excess then i used a barrier spray, I have 3M cavilon spray. The I used Frair's Balsam for it's healing and sticky properties on the worst parts. Then i repeated the whole thing 2 more times and got a good crust with stickiness. I put eakin over the whole bottom of my wafer, where the irritation is, along with a bit right around the top and over my stitches. I stuck the wafer on, applied some blow dryer heat and pressed on it for a good 30 minutes. It felt really secure, so I put a sureseal on for extra protection and to cover an area of irritation that wasn't under the wafer. I'm feeling pretty good this morning and will be taking all my stuff with my to my appointment on Monday to get my stitches out. I'm going to insist on putting the Friar's on, since I suspect the nurse won't want to since it's not an actual medical supply, but it really works wonders! I just need to make it to monday and then I can get some wafers from my nurse and put an order in for more supplies. keep your fingers crossed!
-diagnosed with UC Dec 2006 at 22
-allergic or intolerant to all 5ASAs, sulfa and 6-mp
-emergency transverse colostomy on 9/13/10 from perforated colon
-J-pouch surgery step 1 of 2 3/21/11

elddiReMsihT
Regular Member


Date Joined Nov 2010
Total Posts : 111
   Posted 4/3/2011 3:22 PM (GMT -6)   
Yay! So glad to hear things are moving in the right direction. Just so you know, there are Coloplast Sensura wafers available that have belt loops. Obviously that doesn't help you right now, but it could be something to look into in the future!
Diagnosed with UC in 2007
Flare in 2007 causing anemia requiring blood transfusions, eventually controlled by asacol and 6-MP.
Flared again in 2009 as 6-MP lost effectiveness, went on TPN and received more blood. Started Remicade, which induced remission.
Flared 2010; Remicade no longer effective.
Had 1st surgery of 3 step j-pouch at CC on 1/19/11. 2nd slated for April, and j-pouch in July!
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, June 22, 2018 1:29 PM (GMT -6)
There are a total of 2,974,537 posts in 326,186 threads.
View Active Threads


Who's Online
This forum has 161253 registered members. Please welcome our newest member, A_Warrior's Queen.
396 Guest(s), 11 Registered Member(s) are currently online.  Details
notsosicklygirl, Foo223, mattamx, lymenc4, Girlie, Hibee, hrpufnstuf, DJBearGuy, LJohn23, RunJerRun, U.C.Me?