Takedown surgery tomorrow

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worried mom 1
Regular Member

Date Joined Mar 2010
Total Posts : 172
   Posted 4/5/2011 6:44 AM (GMT -6)   
  Hi everyone,
             Daughters surgery is scheduled for tomorrow(wednesday).  She is so thrilled.  Yes it has been 8 weeks already.  Her surgeon said it was okay.  Had the test to see if her pouch was leaking on Friday, everything looked great he said.  She is doing wonderful.  Can't keep her home.  So nice to see.  Hope she does as well with this surgery as she did with her last one.  Any suggestions for me besides walk walk walk walk (lol).  Thanks everyone for all the help, you don't realize how much this had helped me through all of this.  You are the ones who truly understand what she is going through.  Thank you from the bottom of my heart.

Veteran Member

Date Joined Oct 2008
Total Posts : 938
   Posted 4/5/2011 6:48 AM (GMT -6)   
No advice as I haven't been through that part yet, but wanted to wish her well. I hope the surgery is easy and her recovery is quick. And I hope for peace of mind for you. It's never easy watching our kids go through surgery.
UC dx 2/08

Done with the drugs. Step 1 (of 3) J-pouch surgery 3/22/11, Steps 2 & 3 TBD

Rachel's Mom
Regular Member

Date Joined Feb 2011
Total Posts : 92
   Posted 4/5/2011 7:02 AM (GMT -6)   
Best wishes for her! We will be thinking of her. So happy to see her doing so well. My daughter has step two of three on April 20th and takedown in June/July. CANNOT WAIT!! Hugs to you, fellow Mom:)

Veteran Member

Date Joined Dec 2010
Total Posts : 3332
   Posted 4/5/2011 7:24 AM (GMT -6)   
Best wishes. I have a permanent ileo, so no advice, but I'll be thinking of you both.
48 years old, female.
2004 dx indeterminate colitis. Many drugs, minimal success.
2010-11 Official dx Crohn's colitis. Crazy complications -- cutaneous Crohn's, Erythema Nodosum, marginal keratitis, high fevers. Out of good drug options, tired of scary drugs.
Feb 2011 -- proctocolectomy with permanent ileolostomy; abscess, blood clot. Still healing, still glad for the surgery

Another UC wife
Veteran Member

Date Joined Jun 2007
Total Posts : 2111
   Posted 4/5/2011 7:37 AM (GMT -6)   
How wonderful that she is progressing so well.  I hope everything goes textbook perfect for her and she is up and about in no time.  Sounds like initially there may be some time to get everything going the way it should and tell her to be patient I suppose.  When you're that young you just want to go go go...lol...in a totally different sense.  I'm sure you'll get some great advice from others who can relate to this process.
I guess the real important thing is always applying a barrier cream of some kind after movements to keep the butt area from getting super irritated.  Initially that will be very often until things settle down but I am sure you know all that already.
I researched before hubby's surgery (assuming and hoping he would ultimately get the j-pouch performed successfully) on trying to locate small travel type tubes of desitin for him to have in his pocket when not home.  I never did find anything and tried making a one ounce travel container for him that I had home that was very pliable.....VERY difficult to try to get desitin into one of those!

Veteran Member

Date Joined May 2009
Total Posts : 827
   Posted 4/5/2011 9:25 AM (GMT -6)   
Worried mom....I am so happy that things have gone so well.

This surgery itself is a walk in the park compared to the last one however it is a bit of a psychological setback. She has been feeling so good that it is hard to go back to the numerous trips to the bathroom. Make sure she expects this and that it is the "norm" for a while but that it WILL get better. It is very easy for their minds to compare this to the old UC days (which did not get better).

You should also be prepared that it will be hard for YOU to hear her many trips to the bathroom....it took me while to not cringe every time I heard the bathroom door close. I found myself getting stuck on the "expected" 5-6 BMS and counting every time I heard the toilet flush. Don't let yourself get go there...just know that even if she has a lot of trips to the bathroom she is not in pain, her body is healthy and soon she will be going great again.

My advice for the hospital is to buy premoistened, disposable wipes. They are so much better than dry toilet paper. She should also use some sort of barrier cream after EVERY trip to the bathroom. At home, we installed a hand held shower head. Dillon would then air dry. At the beginning, when things are very runny and acidy, this helped a lot.....the cleaner (without rubbing) the better.

Even though you know....walk, walk, walk.....

Will be thinking of your family,
Mom to Dillon (age 19) who had three major UC flares over two years....Very sick. Colectomy Sept/09, J pouch built Jan/10 and take down Feb/10. Now out living life at University and doing great. NO MEDS

Veteran Member

Date Joined Apr 2009
Total Posts : 587
   Posted 4/5/2011 3:59 PM (GMT -6)   
I hope she has an easy time tomorrow! Give her my best wishes.
Diagnosed 2006. 1st step of 2 step j-pouch 1/3/11. 2nd step will be in April! So done with this disease.

Rachel's Mom
Regular Member

Date Joined Feb 2011
Total Posts : 92
   Posted 4/6/2011 7:38 AM (GMT -6)   
Thinking of your daughter today. How fabulous that she is to this stage and that this will all be behind her soon! Best wishes.

J's Mom
Regular Member

Date Joined Oct 2008
Total Posts : 109
   Posted 4/6/2011 6:26 PM (GMT -6)   
Hope all went well.
22 year old developmentally delayed son with ileo since 2008
Dx'd with UC 2007
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