I laughed when I read your post about
greeting the home health nurse with your butt. I was lucky in that I pretty much had the same nurse each time. Still, every time she came to the door, I would have my pants down with my appliance and wound vac tube hanging out. It was pretty funny. I always joked with her that I did not greet all my guests this way.
Seeing a therapist helps. I only went to see mine once, but she helped confirm that what I was feeling was completely normal given the situation. It was nice to just have someone to talk to who wasn't in my immediate family or a good friend. She did not feel I needed medication and thought the exercises for dealing with anxiety would suffice. I would have been
open to taking medication if she felt it would have helped me, but she did not feel that I was at that point.
It is weird returning to the real world. I had trouble knowing what to tell people at first. I went from being super secretive at first to now telling anyone about
it who is curious. It just felt like too big of a thing to hide... I mean, people wonder why you have been out for so long. So I started telling people I had surgery on my colon... then they wanted more specifics. I know it wasn't that they were trying to pry... they genuinely cared about
me and wanted to know what happened. I am pretty close to all the people that I work with and with the volunteers at my job site, so it felt strange to be so vague. Once I got more confident with the situation and had a chance to process everything on my own, I became a lot more
it. Again, now I tell people about
the ileostomy if they ask, and I have found they are pretty amazed by it all.
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 infusion of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
Post Edited (Blueheron) : 4/7/2011 7:54:55 PM (GMT-6)