I started at ulcerative colitis forum, and now jumping to ostomies because I finally made the decision to have surgery! I've been dx with crohns colitis but they are going to attempt to form a j pouch for me. I have been really sick since last July so they might do the surgery in 3 steps. So, I'm depressed (obviously after being sick sooo long). I sleep all the time, am terrified to leave the house. I go 25 times a day and another 10 or so at night. I am popping pain pills like candy but my whole stomach still aches! I had all this hope that surgery will make me feel better, then I found out I have to wait until June 8th (and hope it doesnt get rescheduled)... I can't imagine waiting another week, let alone two months! How do you cope? All I can think about is: how am I going to stay out of the hospital? Am I going to make it to the date or is my colon going to explode? Were any of you really sick and had to wait this long?? Maybe it's just since I made up my mind; I am now impatient? Ever since I've been diagnosed, it seems I can never get the help I need WHEN I need it! I'd have to wait a month to see my GI for each appt when I needed to see them much sooner. They'd keep me on meds longer than neccessary when I found out they don't work. I just feel neglected. I know the world doesn't revolve around me, I just need some advice on how to wait! Thanks for listening, I don't know any of you but all the posts on here have been a lifesaver for me!
DX 2/10 UP. DX 10/10 UC. Hospital 10/10, 01/11 dehydrated/anemic. Arthritis, sjogrens came w/colitis. On Asacol 3600 mg, Vicodin, Xanax, Imodium, tramadol. I've tried Canasa, Bentyl, Prednisone, Flagyl, Cipro, Morphine/codeine, Imuran, Prozac, Remicade ~ nothing worked. 1st surgery scheduled 6/8/11!